Anyone have cutis marmorata?

[princssjackieo]

Hi im new here. My name is jackie i have cutis marmorata all over my body and have psoriasis and just been diagnosed with psoriatic arthritis. Im real curious to find others who have cutis marmorata seems like noone know very much about it.

[polkadotcom]

Not sure you are in the right place, Jackie. This forum is for those who have PMR and/or GCA.

[princssjackieo in reply to polkadotcom]

Sorry im new

[Celtic PMRGCAuk volunteer]

I haven't ever heard of anyone on this forum with cutis marmorata, Jackie. In fact, I have to admit I had never heard of it so looked it up and find it to be a sort of vascular condition of the skin, and that it can improve with age. However, as polkadot has mentioned, this forum is for those with PMR and GCA - have you tried asking the question on the Vasculitis forum, or even the Psoriatic Arthritis forum? I hope that proves successful for you as it's not any fun feeling alone with such diseases.

[princssjackieo]

I posted that here by mistake. I signed up for this group too bc my gmom just diagnosed with gca and lost her sight and wanted to read up about thing others are going tho too . cutis marmorata can be from alot of different things and its very rare in adults just looking everywhere for someone who has it to. Thanks

[Celtic PMRGCAuk volunteer]

Oh so very sorry to hear about your Mum's sight loss due to GCA, Jackie. Carry on reading this forum on her behalf and ask away if she has any questions. I do hope she is getting plenty of help from the right resources, such as the RNIB, Fight for Sight, etc.

[princssjackieo]

Shes 84 and was so healthy bf this 2 months ago besides hard of hearing she use to jump rope in the kitchen every morning its a sad thing. I will check those sights out. Thank u

[Celtic PMRGCAuk volunteer in reply to princssjackieo]

I've just noticed you are in the USA, Jackie, so, if you haven't already done so, will need to contact the relevant organisations dealing with sight loss there - NFB for one - who will be able to advise on helpful aids for those with sight loss: talking books, technology etc.