Hi, I am new on here and had my very bad flare up of TGA which I thought was my migraines 4 years ago and on within 3 days was on 60mg of preds, eye clinic, no one could enough for me.
Then last year guess what, I could hardly walk as my muscles felt like someone was twisting them with their fist !! They were so sore and I could hardly walk, doctor diagnosed straight away I also got PMR .
So preds were increased once again which I hate taking !! Went down to 7.5mg and every time have to up to 10mg which does the job.
Go back to 7.5mg in a couple of days again thankfully but I know it's going to flare up again as usual, I just can't seem to get lower than 7.5mg without one or the other flaring up. I am fed up with the weight gain as diabetic also.
Anyone had any luck at coming off the prednisoline ? Or gone into remission like my doctor said within 3 years ( I had it 4 years now )
Is there anything else we can take instead of preds ? Or are we doomed for life with our problems ?