Thank you

[30048]

Just had to write to thank everyone for making me not feel so guilty about having to cancel my trip to Hawaii tomorrow. My daughter was taking her family to a resort on Maui and I was included. I was doing so well after my surgery and had a really good Xmas...even made dinner ( only for five ) on Xmas eve. I had sorta convinced myself that maybe I was in remission.( Haha..) and let my helper have the week off . I ran errands myself and then wham......pain, fatigue and all out misery. Not so fast...my body said. The rheumatologist had insisted I try to reduce...I have taken the pro's advice and gone back to the level that I feel is the best dose for me. I had gone from 12 to 10 in two months ..so back up to 12 and I am contemplating 15 as I have GSA also and only one good eye. Anyway...you all made me feel better.....at least I am not alone .

[EdithWales]

Never feel guilty about cancelling anything. I do it all the time. I had to pull the plug on an expensive holiday in India because I swelled up like a Michelin Woman and had dangerously high blood pressure. But I had been looking for tigers in the jungle so it was worth it as we saw one. I have leaned over the last 2 years and 9 months since I was diagnosed with GCA that I have to listen to my body, I have an autoimmune disease but I have always pushed myself too far. Now I book holidays and a variety of activities so I always have something to look forward to but sometimes I just can't go and that's fine. Be gentle with yourself, there will be other holidays

Best wishes

[Lafontainepam1]

Yes it is so hard to get it through our heads that we cannot take on the world anymore. I had a big fancy wedding to go to last summer, I had to drive into the city and it was just more than I could handle. Yes I pulled it off but later became very sick. No more, if it makes me uneasy, Im Not doing it anymore. I am just not like I use to be before PMR, and that's almost 5 years.

[madie1945]

I had to cancel mine to vegas for a surprise Birthday party for my husband,,