I was diagnosed as having PMR with possible GCA in March of 2015. An astute ER doctor in a small town in Minnesota heard my symptoms of two weeks, did blood work and gave me 60 mg of pred and sent me off to my primary physician. That said, I am now at 6 mg, having gone down slowly to as low as 4 mg, but headaches returned. No jaw pain or throbbing in left temple as had been the case, but headaches were enough to have my rheumatologist say back to 6 and see if that settles in. (I have not been tested for GCA as my rheumatologist didn't recommend doing so since I was already being treated with prednisone when I first saw him. So, my question is about vision issues. My ophthamologist asks if I see flashes of light. I do not, but have described something to him that I have experienced three times now - once, years before this diagnosis and now twice in the last few months. Can anyone who has had GCA-related vision problems describe in detail what those symptoms are like?
This forum is a lifesaver. When I read a description in here for the first time of how it feels to go through a day, it was as if I had written it. One cannot know how affirming that is. I would say I have been fortunate in relation to side-effects, etc., but it is comforting to know you are all out there when the going gets rough. My thanks to you all and know that I, too, am cheering you on.