Sorry for repeating an old topic but going back through old posts can't find what I am looking for .
I have GCA, been on Pred for 14 months. I tapered to 7mg using "dead slow" method and all was well. I stayed at 7mg for a couple of weeks feeling absolutely fine and last Sunday went to 6mg. Big whammy! Felt awful, shakey, jittery, and exhausted. So I thought, big mistake, let's just stay at 7mg. So all week I have been on 7mg. But still feel ill. Extreme fatigue, not just tired but no energy to move! I have been sleeping 10 to 12 hours a night. But no pain, no GCA flare. I can only assume this feeling is down to adrenal function. So what do I do? Ride it out and hope my adrenals kicks back in? Logic tells me that if I increase the Pred I will feel better but logic also tells me if I do that my own adrenals will never get the chance to work properly. After 14 months on Pred I am very keen to get as low as possible because of the many side effects. The one that is worrying me most is eye pressure which is now at 22 (heading for glaucoma ?)
I am sure many others have had this dilemma. Any advice greatly appreciated thanks