Feeling very frustrated and angry as hips & shoulder pain has come back. I have been reducing the pred by 1mg per month from base of 15mg (well that's after 2 years of up and down!). Getting fatigued very quickly, not sleeping and generally feeling not well. I have been off sick for about 3 months now and hope to retire at the end of this month but am really fed up with this condition ruling my life and not seeming able to manage it. Should I increase back up to 15mg? It just feels that I have failed yet again and I'm concerned about this level of steroid use over a prolonged period. I am also back on leflunomide at 10mg per day but only been on that on the 23rd of February so probably no affect yet. I have not been able to get the same relief I initially got when first put on 15mg at the start of this journey, all the pain went then but now I always have some what ever level of steroid. I am trying to go for a walk every day but that tires me right out and I end up falling asleep in the pm. Just not sure what to do?
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