Hi, Automatically given AA on PMR diagnosis. 3 months later , I discontinued it after researching potential problems, suffering heartburn, discussion with my dentist. GP not pleased although he did then refer me for dexa scan. This was above borderline so told myself if next 2yr scan showed deterioration, would reconsider. Disappointingly it has , despite fact that I have kept pred dosage under 7.5 mg for 16 months so perhaps rejecting AA was a mistake
Still feel extremely worried about resuming and could do with positive reassurance from any members having taken AA for several years. Does it work?
Using information from this forum and Kate Gilberts book have mostly self managed. Using 10% reduction, now on 0.75mg! , Has taken ages and a very sharp knife to reduce from 2mg. Aware that AA side effects can be similar to PMR will I be able to tell whether I have those symptoms or a PMR flare?
Thanks to everyone for contributing here. Must confess I tend to dip in and out. The varied problems can seem overwhelming at times. I realise that I have been extremely lucky so far. Prednisolone instant magic for me, no fatigue or weight gain, still dancing ,walking, exercising at normal levels. Therefore not felt in a position to post advice. Hopefully there are many more like me to give optimism to newbies