Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2016

Steroid research

I think that a vital question was missed from this research questionnaire and that is length of time taking steroids as surely cause and effect linked to this...

I think that a vital question was missed from this research questionnaire and th...

LJhome

•8 years ago

3 Replies

Alendronic acid, vitamin D3 and turmeric

Hello All My GP asked to see me to discuss the way forward after I had failed to reduce from 10mg to 9mg before Xmas. I thought he was going to pressurise me...

Hello All My GP asked to see me to discuss the way forward after I had failed to...

Zhenya

•8 years ago

30 Replies

Blood test showing normal

I had a blood test last weeka nd my GP said she is pleased as mu inflammatory markers are now noirmal having being high on diagnosis of PMR in Ocober last...

I had a blood test last weeka nd my GP said she is pleased as mu inflammatory ma...

cassie1208

•8 years ago

23 Replies

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Trembling etc

reading others post re twitching etc I have recently developed a sort of tingling/trembling particularly in upper arms. It has certainly got worse in the...

reading others post re twitching etc I have recently developed a sort of tinglin...

kingharold11

•8 years ago

7 Replies

Homeothapy

A friend has just directed me to a Dr in Bristol at the homeopathic hospital who specialises in PMR. I have always been a little sceptical about homeothapy and...

A friend has just directed me to a Dr in Bristol at the homeopathic hospital who...

Jennykk

•8 years ago

19 Replies

Sevenoaks Polymyalgia+GCA meet u

Looking forward to seeing you this month. Join others from your area to share experiences and learn more about these two little known illnesses. The Sevenoaks...

Looking forward to seeing you this month. Join others from your area to share ex...

pennyw

Administrator•8 years ago

Be the first to reply

Rheumatologist Yorkshire?

Hi, please can anyone advise me of a rheumatologist they are seeing or know that they are really good. I am willing to pay and go private as getting nowhere...

Hi, please can anyone advise me of a rheumatologist they are seeing or know that...

caz3333

•8 years ago

15 Replies

PMR and GCA

Anyone suffering this in Hertfordshire? let me know...

morrison

•8 years ago

6 Replies

MPR and GCA

have been on 40 mgs of steroids, now down to 12mgs, my eyesight is terrible, wake up every morning with sticky eyes, that is the only way I can describe it,...

have been on 40 mgs of steroids, now down to 12mgs, my eyesight is terrible, wak...

morrison

•8 years ago

22 Replies

Prednisone info needed

I stated earlier that after my meds were reduced too quickly I had a flare up. I am now back on 20 mg but I am finding it does not hold for 24 hrs. I would...

I stated earlier that after my meds were reduced too quickly I had a flare up. ...

Nosslrac

•8 years ago

6 Replies

Sharp shoulder pain

HI all Sorry another quest (I seem to have so many!), been suffering a flare, doc has put me back up to 20mgs Preds, had got down to 16mg - (have PMR?CGA),...

HI all Sorry another quest (I seem to have so many!), been suffering a flare, d...

lesley2015

•8 years ago

10 Replies

Hastings Meet up

After a great start in November and December the Hastings group is looking forward to a successful 2016. If you would like to join us at a meeting please let...

After a great start in November and December the Hastings group is looking forwa...

pennyw

Administrator•8 years ago

4 Replies

Orpington Polymyalgia+GCA Meet up

Join us on Tuesday 12 January at the Orpington Café Meet-up, meet and get to know others in your area who face the same challenges! Enjoy a cup of tea or...

Join us on Tuesday 12 January at the Orpington Café Meet-up, meet and get to kno...

pennyw

Administrator•8 years ago

Be the first to reply

Ellie

I have PMR, now on 10mg Prednisolone, after about an hour getting out of bed i start to feel disorientated, eyes go blurry and my legs feel heavy and weak. If...

I have PMR, now on 10mg Prednisolone, after about an hour getting out of bed i s...

Hidden

•8 years ago

1 Reply

Severe headache for past two days

Dear friends, I have had an increasing severity in headaches the past 2 days. I have GCA/PMR and am presently taking Prednisone 40mg. The pain has been in the...

Dear friends, I have had an increasing severity in headaches the past 2 days. I ...

Joyful13

•8 years ago

11 Replies

Leflunomide - Stomach Pain

I have been taking 20mg of leflunomide a day alongside 15mg of pred for the last 8 weeks. Over the last week or so I have been getting severe stomach pains,...

I have been taking 20mg of leflunomide a day alongside 15mg of pred for the last...

Griggser

•8 years ago

10 Replies

PMR and Antibiotics for Dental Pain

Hi - I have PMR since March 15 and I am experiencing a new problem. I had complex dental surgery done – 2 inflamed teeth – but only one could be fixed last...

Hi - I have PMR since March 15 and I am experiencing a new problem. I had comple...

josvanloo

•8 years ago

9 Replies

Paul

Hi I am new to this forum and this my 1st post, I am a carer for my father who has GCA & PMR Dia last July, he was prescribed a high dose of Prednisolone...

Hi I am new to this forum and this my 1st post, I am a carer for my father who h...

pam555

•8 years ago

18 Replies

Heavy legs

Hi, have had pmr now for 18 months, down to 8 mg pred but have really heavy feeling in legs which makes walking and stairs/inclines difficult.......also...

Hi, have had pmr now for 18 months, down to 8 mg pred but have really heavy fee...

Hidden

•8 years ago

12 Replies

update replies

Thank you everyone for your quick replies, as always they really helped me think more clearly. I guess I am probably trying to do too much, I am still working...

Thank you everyone for your quick replies, as always they really helped me think...

isabella-34-55-345

•8 years ago

9 Replies

Sore knees and calves

Down to 2mg prednisalone but getting very sore knees reaching down to calves. Should I increase my dose of pred?

Down to 2mg prednisalone but getting very sore knees reaching down to calves. S...

Shandon1

•8 years ago

9 Replies

PMR: Exercise:Tiredness

I like swimmimg and I am fine in the water for half an hour - I don't overdo it gentle swim and just moving those muscles. I feel great when I get out and have...

I like swimmimg and I am fine in the water for half an hour - I don't overdo it ...

cassie1208

•8 years ago

15 Replies

update

Hi everyone i check in every couple of days to read new posts your advice and encouragement have been invaluable these last few months. I rarely post myself...

Hi everyone i check in every couple of days to read new posts your advice and en...

isabella-34-55-345

•8 years ago

5 Replies

Optic Neuritis

I had my MRI report back yesterday. Apparently the MRI shows a "Subtle enhancement of the left interorbital optic nerve but without thickening is nonspecific...

I had my MRI report back yesterday. Apparently the MRI shows a "Subtle enhanceme...

J33PCX

•8 years ago

2 Replies

Hair loss due to medication

Hello, I have joined the sight on behalf of my mum who has GCA. She was diagnosed in May 2015, started on 80 pred and is now down to 1 but my mums hair has...

Hello, I have joined the sight on behalf of my mum who has GCA. She was diagnose...

MrsM1940

•8 years ago

15 Replies

Zolendronic Acid Yearly Infusion

Hi everyone. It has been suggested that I take Zolendronic Acid as a yearly infusion. I think the list of possible side effects looks horrendous and would...

Hi everyone. It has been suggested that I take Zolendronic Acid as a yearly infu...

Attic

•8 years ago

25 Replies

Pain Relief

Hi I am having a bad PMR flare up which started last weekend and spent all day Sunday in bed. Unable to move both arms without extreme pain, can't lift...

Hi I am having a bad PMR flare up which started last weekend and spent all day S...

caz3333

•8 years ago

9 Replies

THREE MONTHS ON ...

Following a flu injection at the end of September 2015 ... I began to feel unwell approx 10 days later with what I know now as the classic symptoms of PMR !...

Following a flu injection at the end of September 2015 ... I began to feel unwel...

Polylinc

•8 years ago

23 Replies

Shingles vaccination

Has anyone had experience of having a shingles vaccination when on Pred. for PMR. I have been offered one as I am the right age group this year (born 1937)...

Has anyone had experience of having a shingles vaccination when on Pred. for PMR...

Jilldrog

•8 years ago

27 Replies

Temporal artery biopsy today

Hi diagnosed probable GCA November- up and down days , back up to 50mg pred this week after jaw pain on chewing . Biopsy done today no problems - quick. Simple...

Hi diagnosed probable GCA November- up and down days , back up to 50mg pred this...

Pamela60

•8 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2016

Steroid research

Alendronic acid, vitamin D3 and turmeric

Blood test showing normal

Trembling etc

Homeothapy

Sevenoaks Polymyalgia+GCA meet u

Rheumatologist Yorkshire?

PMR and GCA

MPR and GCA

Prednisone info needed

Sharp shoulder pain

Hastings Meet up

Orpington Polymyalgia+GCA Meet up

Ellie

Severe headache for past two days

Leflunomide - Stomach Pain

PMR and Antibiotics for Dental Pain

Paul

Heavy legs

update replies

Sore knees and calves

PMR: Exercise:Tiredness

update

Optic Neuritis

Hair loss due to medication

Zolendronic Acid Yearly Infusion

Pain Relief

THREE MONTHS ON ...

Shingles vaccination

Temporal artery biopsy today

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