Hi everyone i check in every couple of days to read new posts your advice and encouragement have been invaluable these last few months. I rarely post myself as I guess I am still trying to find my way with this illness ! I have been on 12.5 mg of pred for last few months now, started at 15mg, pain did improve at the beginning but seems to have stuck at this point ! I have blood tests done every 3 weeks latest shows markers at 35 ( not sure if this is crp or esr) started at 50, after all these months i had hoped to be doing better! Dr has now upped pred to 15mg again and next round of blood tests in couple weeks. Are these levels high or is this just how long it takes to settle ? pain is still pretty bad and fatigue awful.
Thanks for listening
beye for now x