Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,756 members • 39,022 posts

All posts for August 2015

Increased swelling in face, jaw pain

Good morning! We arrived in Seattle, Washinton after a long hot drive from Sonoma, California. I am currently taking Prednisone 50mg for GCA. I have had "moon...

Good morning! We arrived in Seattle, Washinton after a long hot drive from Sonom...

Joyful13

•9 years ago

8 Replies

Pure PMR the final diagnosis!

Hi friends, Kitty here from Gig Harbor, WA. Thank you all for the great dialogue. I've learned so much following everyone's questions and replies. After...

Hi friends, Kitty here from Gig Harbor, WA. Thank you all for the great dialogu...

Hidden

•9 years ago

13 Replies

Alendronic Acid

I was advised to take Alendronic Acid weekly to counteract the danger to my bones from the Pred. I am not going to recount what has happened to me as I don't...

I was advised to take Alendronic Acid weekly to counteract the danger to my bone...

Ida-June128

•9 years ago

24 Replies

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Bloody eye

I have PMR, diagnosed in 2013. Taking pred, and holding for past 5 months at 5 mg. two weeks ago, I decided it's time to try to reduce a bit, so began to...

I have PMR, diagnosed in 2013. Taking pred, and holding for past 5 months at 5 ...

1Purplecrow

•9 years ago

7 Replies

Alendronic acid again

I have had PMR since December and been on prednisolone 15mg since January and am now just about on 9. I have had no flares and am almost symptom free except...

I have had PMR since December and been on prednisolone 15mg since January and am...

MaryWR

•9 years ago

4 Replies

Normal labs.

My labs have been normal for 8 months, I've been on actemra, double dose for 18 mos with no preds, when will I be concidered GCA free? And when will I stop...

My labs have been normal for 8 months, I've been on actemra, double dose for 18 ...

beringer

•9 years ago

6 Replies

Chronic fatigue

Hi can anyone tell me when the tiredness gets any better I'm currently on 11mgs pred and still so tired

Hi can anyone tell me when the tiredness gets any better I'm currently on 11mgs ...

Sandra1959

•9 years ago

30 Replies

My story so far

Hello Everone, Thank you so much for all the helpful advice and the insight you have all given me into PMR. My story started with aches in my pelvis Dec 2014....

Hello Everone, Thank you so much for all the helpful advice and the insight you ...

Irldino

•9 years ago

3 Replies

Positives about methotrexate please!

Consultant says I have to decide between the dangers of the pred and the dangers of my condition (GCA/PMR) . Been on pred March 2015 15mgs then 1st June til...

Consultant says I have to decide between the dangers of the pred and the dangers...

Carrollee

•9 years ago

9 Replies

BCC & PMR

I have just been diagnosed with a BCC (basal cell carcinoma) which is a form of skin cancer. I have to have a small lump removed from my nose which has only...

I have just been diagnosed with a BCC (basal cell carcinoma) which is a form of ...

PJPS

•9 years ago

12 Replies

Blood in urine

Can prednisalone cause blood in urine?

Shandon1

•9 years ago

4 Replies

From 1mg to 0mg how

Granddaughter had asked this she has taken interest in my reductions she has asked this in the finale stages is this how to do it 0.5 every second day then...

Granddaughter had asked this she has taken interest in my reductions she has ask...

olive2709

•9 years ago

2 Replies

patdencass

Hello to you all. I haven't posted lately but I regularly read and appreciate all the advice and support given. I have got my just reduced preds to 5.5mg from...

Hello to you all. I haven't posted lately but I regularly read and appreciate al...

patdencass

•9 years ago

6 Replies

Prednisone reduction

I have been on 60 mg of Prednisone for 0ver 6 weeks for recently diagnosed GCA. My rheumatologist had me reduce the Prednisone to 55mg, two weeks later to...

I have been on 60 mg of Prednisone for 0ver 6 weeks for recently diagnosed GCA. ...

Joyful13

•9 years ago

8 Replies

Methylprednisolone

I live in the States, and was wondering if anyone on here is on Medrol (methylprednisolone)? From what I understand it is prednisone but just works a little...

I live in the States, and was wondering if anyone on here is on Medrol (methylpr...

tiasbear

•9 years ago

5 Replies

Turmeric (cur cumin)

Decided to try circumin capsules 800mg once daily . Tapered to 5 mg pred but still achy . Anybody tried it ?

Decided to try circumin capsules 800mg once daily . Tapered to 5 mg pred but sti...

bumpermac

•9 years ago

7 Replies

Brush off from Rheumy......

Following my post "Brush off from GP" my day just got worse!! I turned up for my Rheumy appointment this morning and was told it has been cancelled and I...

Following my post "Brush off from GP" my day just got worse!! I turned up for my...

Caro12line

•9 years ago

5 Replies

Neck Ache

Hi have been on 5mg for about two months without much pain, but the last couple of weeks I have started with neck ache spreading to the top of my shoulders and...

Hi have been on 5mg for about two months without much pain, but the last couple ...

Hidden

•9 years ago

2 Replies

Numbness at top of head

Prescribed 60 mg press over 2 weeks ago. Now reduced to 30 mg for next 2 weeks. I had a biosopsy 2 weeks ago....biosopsy taken from upper lefthand side...

Prescribed 60 mg press over 2 weeks ago. Now reduced to 30 mg for next 2 weeks. ...

patsy53

•9 years ago

9 Replies

Brush off from GP.......

Sorry but I need to rant! Saw Rheumy 2 months ago and there were problems with my BP and High blood Calcium level. l will get your GP to keep an eye on that...

Sorry but I need to rant! Saw Rheumy 2 months ago and there were problems with ...

Caro12line

•9 years ago

26 Replies

Acyclovir and PMR?

Hello fellow travellers, this is my first post. I have had PMR for almost 2years now and recently got a whacking dose of Shingles and was given Acyclovir...

Hello fellow travellers, this is my first post. I have had PMR for almost 2year...

Zoshie

•9 years ago

6 Replies

Anyone experience this too?

Wondering if anyone else has experienced similar things? It seems that I've developed incontinence and don't know if it's the disease, pred or?? Also seem to...

Wondering if anyone else has experienced similar things? It seems that I've deve...

PamelAnneCT

•9 years ago

16 Replies

Pulsating and throbbing face with GCA

Has anyone else experienced this. It is really weird and came on after lowering the prednisone. You can actually watch it I guess it is your pulse. Look up...

Has anyone else experienced this. It is really weird and came on after lowering...

cassey1879

•9 years ago

4 Replies

pubic symphysis after hip operations in men ?

Hi.i just wondered if anyone had had symptoms of pubic symphsis after a hip operation or after being on steroids,i had to have 2 hips after 3 years of hospital...

Hi.i just wondered if anyone had had symptoms of pubic symphsis after a hip oper...

Bell4796

•9 years ago

1 Reply

Protruding veins ?

Are protruding veins on the back of hands and on feet another side effect of being on steroids ?

Are protruding veins on the back of hands and on feet another side effect of bei...

alice1940

•9 years ago

9 Replies

GCA and prednisone reduction complications

Trying desperately to reduce so don't have to go on Methotrexate. Got bumped up couple months ago to 40 then got down several weeks ago to 35 then took it...

Trying desperately to reduce so don't have to go on Methotrexate. Got bumped up...

cassey1879

•9 years ago

9 Replies

Cardiac symptoms

Today, I am going to have a 24 hour cardiac monitor. Since starting the 60 mg Prednisone about 6 weeks ago for diagnosis of GCA/PMR, I have experienced...

Today, I am going to have a 24 hour cardiac monitor. Since starting the 60 mg Pr...

Joyful13

•9 years ago

11 Replies

Difficult weekend, feeling alone.

For the last 3 weeks or so, I have been getting worse and realising that I cannot even go down 1mg on the very slow reduction plan- hoping I can go down by 0.5...

For the last 3 weeks or so, I have been getting worse and realising that I canno...

suzy1959

•9 years ago

19 Replies

Next steps!

No pun intended by the title but I'm wondering what my next steps should be as I am really struggling and especially with the walking? Up hill is a complete...

No pun intended by the title but I'm wondering what my next steps should be as I...

Griggser

•9 years ago

8 Replies

Nearly at Zero....

Have managed to reduce down to 1 mg per day.....using the very slow method. Feeling fine now no PMR pains, tiredness gone, energy good. This is after 3 years...

Have managed to reduce down to 1 mg per day.....using the very slow method. Feel...

suzieh

•9 years ago

40 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2015

Increased swelling in face, jaw pain

Pure PMR the final diagnosis!

Alendronic Acid

Bloody eye

Alendronic acid again

Normal labs.

Chronic fatigue

My story so far

Positives about methotrexate please!

BCC & PMR

Blood in urine

From 1mg to 0mg how

patdencass

Prednisone reduction

Methylprednisolone

Turmeric (cur cumin)

Brush off from Rheumy......

Neck Ache

Numbness at top of head

Brush off from GP.......

Acyclovir and PMR?

Anyone experience this too?

Pulsating and throbbing face with GCA

pubic symphysis after hip operations in men ?

Protruding veins ?

GCA and prednisone reduction complications

Cardiac symptoms

Difficult weekend, feeling alone.

Next steps!

Nearly at Zero....

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