Trying desperately to reduce so don't have to go on Methotrexate. Got bumped up couple months ago to 40 then got down several weeks ago to 35 then took it down 1 mg. at a time and in two weeks ago. Today is day 3 at 30, but notice my face is getting really swollen. Can that be the GCA I know back in Oct. when 1st went on Prednisone left side was really bad, and just thought from the Prednisone. That was right before the biopsy, as originally told PMR and was on 15 till 12/1 biopsy then up to 60. Getting temple pain again and some jaw claudication I think on that side too. Left side is more swollen, and feels like throbbing. Looked in mirror and can see it twitching. Also heart palpitations (can that be GCA) related. So week and tired, and notice last night that my veins in my legs are really raised. Anyone tell me if they have any of these symptoms upon trying to lower their Prednisone. My Dr. is in Phila. and over an hour away, and can not go till Oct. with my daughter's work schedule and hours. I did just take another mg. an hour ago. Think will go back to 31 or 32 if this twitching in the cheek keeps up and heart palpittions. Was able to go off the Blood Pressure medication which caused the edema in my feet and my Blood pressure is blow normal which is good. Thank you so much for any info. you can give me. Don't know what we would do with out each other.
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