Alkaline phosphate : Hi. How concerned... - PBC Foundation

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Alkaline phosphate

Mrsfancypants profile image
10 Replies

Hi.

How concerned should I be ? My latest lab tests indicate that my alkaline phosphate has increased and is increasing slowly ! Freaked out as I don’t know what this means for me and can I reduce these levels with diet ? Xxx here’s hoping

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Mrsfancypants
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ninjagirlwebb profile image
ninjagirlwebb

Mine were abnormal to begin with & it rose another ~40 points or so in 3 months. My hepatologist is concerned so he is running more tests. If it is the pbc, have to go on ocaliva. He will chat with me when he has the answers.

Talk to your hepatologist about your concerns.

Mrsfancypants profile image
Mrsfancypants in reply toninjagirlwebb

I will of course. I thought I would ask here first. I was diagnosed with pbc 3 years ago my original alk phosphates were 500 plus then when I wAs prescribed urso they brought it down to 130 ish but in the last 6 months it has gone up to 190 ish ?? I’m wondering what I have done eating / drinkin/ anything wise !?!?!

ninjagirlwebb profile image
ninjagirlwebb in reply toMrsfancypants

After urso my numbers were normal, but last year or so, my alk phos trending high/abnormal. It is not anything we did. I increase my lipitor dosage...it might be that too. Meds can have an impact.

ninjagirlwebb profile image
ninjagirlwebb in reply toMrsfancypants

Also diet can contribute to a fatty liver which might cause a higher number too.

For me, it is not the diet or lifestyle; I lost 10 lbs in 6 weeks by adding exercise.

ninjagirlwebb profile image
ninjagirlwebb in reply toMrsfancypants

Please share what your hep says after you speak to him. Would like to see what he thinks.

Dinasmom profile image
Dinasmom

When I was in your boat, I researched how to decrease inflammation through diet and came across intermittent fasting. In one month's time all my symptoms were gone, ie, bloating, GI distress, loose stools, etc, and my liver enzymes dropped back to normal. I do intermittent fasting most days now, only eating between 12pm and 6 pm most days. I feel so much better I don't mind it all. And my liver enzymes continue to drop a little lower each time and are always normal. Good luck. There is much we can do to fight back against chronic diseases if we enlist our body's inherent ability to heal us.

Polkadotscr profile image
Polkadotscr in reply toDinasmom

Do you DRINK anything outside of 12-6?

MysticShaman profile image
MysticShaman in reply toDinasmom

Good to hear from someone successfully using IF. I started an alternate IF plan this week. What I struggled with previously is that I only eat 2xday and rarely more than 900 calories. I’m hoping that consciously following the IF will bring down weight.

JaneEyre55 profile image
JaneEyre55

Talk to your Hepatologist about going on Ocaliva. It is specifically designed to reduce Alk Ph. levels. I've been on it since the FDA approved it and my numbers are now in the normal range and I've had no side effects.

Dinasmom profile image
Dinasmom

Yes. Water liberally, coffee with stevia and a small bit of cream.

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