Fibrates/ fenofibrates and bezafibrates yay... - PBC Foundation

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Fibrates/ fenofibrates and bezafibrates yay or nay?

Ktltel profile image
15 Replies

(The link below redirected me but just hit the new link that's there. Should take you to the article about Fibrates. Interesting read. The "2nd link" is a 2013 article that compares fenofibrates to bezafibrates.) Interesting read.)

Hello,

Hope this link comes through in working order. Please let me know your thoughts. Especially anyone currently or who has taken fibrates. They sound promising although there are some things to watch out for.

"Thought I'd share a nice picture"

Thank you,

Stella❤

link.springer.com/article/1...

ncbi.nlm.nih.gov/pubmed/245...

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Ktltel profile image
Ktltel
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15 Replies

Thanks Stella. Happy New Year! I'll read article in a while. Now, just wanted to tell you, I thought it was you riding the elephant! It's a lovely pic! :-)

Ktltel profile image
Ktltel in reply to

Lol lol lol....I wish!!!

❤❤

in reply to Ktltel

No wishing needed - you are beautiful!

Ktltel profile image
Ktltel in reply to

Thank you. ❤❤We all are!!👩‍🦳👨‍🦰👦👧👵👴👨‍🦰🙋‍♀️

in reply to Ktltel

After I ‘sent’ the last reply it occurred to me that you maybe wished you could be riding an elephant so I’m relieved At your reply ! 🐘🐘🐘🐘😀

Wocket profile image
Wocket

Yay. I am a non responder to Urso so 6 months ago they put me on bezafibrate which has now brought my figures down to not far off normal so I’m happy 👍

Ktltel profile image
Ktltel in reply to Wocket

That's wonderful. Any side effects?

Wocket profile image
Wocket in reply to Ktltel

Nothing as far as I can tell. Maybe a bit of muscle and joint problem but that could just be PBC.

Candy12 profile image
Candy12

Hello Stella, hope your well.

As you know I’am on Bezafibrate after 3 months my Alp went into the normal range for the first time in 9 years, so all my tests are now normal. Or were 🤞 they still are, I’am due to have my bloods done again next week. I feel so much better so hopefully that’s a good sign it’s doing something positive.

I don’t get any side effects now , but for the first few days I felt a little dizzy, but then started to take it before bed and that sorted out the problem, it only lasted a few days.

I’ve read both the articles before when I was considering trying bezafibrate. Did you speak to your doctors about Fenofibrate, it would be interesting to know there view point.

Wocket profile image
Wocket in reply to Candy12

I had some dizziness but never thought about the fact I had been put on bezafibrate

Candy12 profile image
Candy12 in reply to Wocket

It only lasted a few days, but I now take it with my evening meal all is okay.

Ktltel profile image
Ktltel in reply to Wocket

Thanks so much for your posts.

Stella❤

Ktltel profile image
Ktltel in reply to Candy12

My numbers aren't bad. Only alkaline phosphatase is elevated. 158 as of last labs...BUT, my fibrosis did go up "a stage" in a year! I went from stage 1-2 to stage 2-3 as per my MR Elastography last month. Not good.

So, I'm wanting to take fenofibrates to slow down fibrosis. Those articles state it has that effect. But, my doctor says there's not enough data (clinical trials) to put me on them. He's very conservative AND, he is a liver surgeon as well, so....he maybe thinking down the road a bit. Still, if I could equip myself with current data/articles to send him he might change his mind. Thanks for your posts.❤

Stella

Sandy220 profile image
Sandy220

I went on fibrates and within 3months my blood work was all normal.It hadn’t been normal for ten years.No side effects as yet

Ktltel profile image
Ktltel in reply to Sandy220

Thank you for sharing your experience with fibrates.❤

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