Sunshine : I have heard from numerous people... - PBC Foundation

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Sunshine

1155Cat profile image
11 Replies

I have heard from numerous people that you should not be in the sun if you have PBC ... does anyone know if this is true ?? And if it is true ... is it because of the URSO or just because of PBC ???

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1155Cat profile image
1155Cat
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11 Replies
gwillistexas profile image
gwillistexas

My drs say st least 15 minutes of sunshine a day and more if possible. We need the vit d.

Hi

I havent heard it said about PBC. Only time i was warned about sunlight is when i was put on azathioprine.

Angela

1155Cat profile image
1155Cat in reply to

Thanks, I figured I better check .. being as I am a Florida girl and there is sunshine everywhere !!

in reply to 1155Cat

Enjoy the sun,im in the very less sunny scotland but betty beutiful. My brother lives in tampa and ive experienced the Florida sun before. 🌞🌞🌞 xx

1155Cat profile image
1155Cat in reply to

Thanks .. I am right outside of Tampa .. I love the sunshine 🌞 so happy I can continue !!

in reply to 1155Cat

My brother and his family are in Trinity. Not been over for a while,travel insurance is ridiculous now for me. Its a shame,i loved it when over before,so many pretty places.

My niece is opposite, she loves coming here for the cold weather,was disappointed last Christmas when there wasnt any snow. 😊

The sun tends to make people in general happier .

Happy sunbathing x

butterflyEi profile image
butterflyEi

I've not heard this before, in fact the opposite due to the need for vitamin D.

exy21 profile image
exy21

Opposite need 15-20mins daily. Only if you're on steroids or Azathioprine as it thins your skin.

sleepytink profile image
sleepytink

have had pbc (diagnosed) 7 years and the only thing that gets me slightly better is sunshine, i ve never been told to avoid sun and for me its the best thing.

As others have said, sunshine is good for us! Not that we get much this time of year in England but we’ve had some really beautiful cold sunny days recently!

The only time I was told to avoid sunshine was when I was put on Rifampicin, and it was mid summer 🙁

Alishav2003 profile image
Alishav2003

I can not tolerate the sun or heat for me it increases the intensity of itching. Cotton linen sundress in the filtered sunlight

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