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PBC Foundation

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All posts for April 2017

Alternative/natural medicine?

I just wanted to ask if any if you are taking any alternative medicine/natural supplements such as NAC (N-acetyl cysteine), liquorice root, milk thistle, high...

I just wanted to ask if any if you are taking any alternative medicine/natural s...

Janeway

•7 years ago

9 Replies

Please can someone help

Hello I have also been diagnosed with pbc a year ago im so frightened I keep reading things on the net and one said life expectancy 7 to 15 years im terrified...

Hello I have also been diagnosed with pbc a year ago im so frightened I keep rea...

ronniedobbie

•7 years ago

40 Replies

Pbc wendy

Hi I have been diagnosed with pbc over 7yrs ago. I feel quite lonely as family don't understand how you feel. I feel like i am getting more tired and pains...

Hi I have been diagnosed with pbc over 7yrs ago. I feel quite lonely as family d...

wenava

•7 years ago

5 Replies

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Pbc & liver transplant

Looking to engage with someone who has pbc and went on to need a liver transplant.

Looking to engage with someone who has pbc and went on to need a liver transplan...

evelyn1

•7 years ago

10 Replies

Who had Esophageal varices and vomiting blood 😭😭😭😭

I'm really scared My husband is staying in the hospital 6 days to know Any one has had Esophageal varices could you please explain to me your experience?

I'm really scared My husband is staying in the hospital 6 days to know Any one...

Mysa1981

•7 years ago

6 Replies

PBC confirmed

So been to the hospital now, thanks for the tip about taking a book, it was needed, PBC diagnosis confirmed and put me straight on ursodeoxycholic acid. Doing...

So been to the hospital now, thanks for the tip about taking a book, it was need...

RoxyP

•7 years ago

7 Replies

My Hands

OK here is what has been going on, over the last year my right hand has changed dramatically it started when my pinky and ring finger started going numb and...

OK here is what has been going on, over the last year my right hand has changed ...

LisaBamaArd

•7 years ago

14 Replies

Green .....

Not the nicest of questions but have anyone had green poop ? I have it on and off ,do I need to report it to my doctor ?

Not the nicest of questions but have anyone had green poop ? I have it on and of...

Marysla

•7 years ago

11 Replies

Pbc/Aih

Well had my bloods done last week and my consultant said my liver levels had gone up. Advised to go see my Gp as i might have an infection. Any ideas In...

Well had my bloods done last week and my consultant said my liver levels had gon...

janine541

•7 years ago

9 Replies

Steroid versus immunosuppressant

I was diagnosed with PBC around 2006. And put on URSO, about 4 years ago my specialist thought that I had AIH overlap and put me on prednisone a liver biopsy...

I was diagnosed with PBC around 2006. And put on URSO, about 4 years ago my spec...

Biddyb

•7 years ago

4 Replies

Why my doctor won't give me Urso?

Hello, all, I am AMA M2 positive. LFTs high normal. GGT negative. ANA negative. I do have some symptoms: indigestion, constipation, muscle/joint pains, itchy...

Hello, all, I am AMA M2 positive. LFTs high normal. GGT negative. ANA negative. ...

JaneIng

•7 years ago

17 Replies

Synthroid levels and Urso

Hi, My first post here. What a fantastic community this is and an important resource for us with PBC. I was dx'd with PBC at the end of 2015. Been on 600mg...

Hi, My first post here. What a fantastic community this is and an important reso...

EileenUSA

•7 years ago

12 Replies

Organic Apple Cider Vinegar

I've had PBC for about 5 or 6 years now. Touch wood I have been ok. No itching and def no tiredness, in fact just the opposite, I hardly sleep at all. 3-4...

I've had PBC for about 5 or 6 years now. Touch wood I have been ok. No itching ...

sandgroundergirl

•7 years ago

14 Replies

Seeing a Rheumatologist...

Hello friends, After 6 weeks of swollen joints and terrible stiffness and pain, I'm seeing a rheumatologist tomorrow (Thursday) at 3:00. This question is for...

Hello friends, After 6 weeks of swollen joints and terrible stiffness and pain,...

Ktltel

•7 years ago

41 Replies

PBC

Hi , I've just started ursodeoxycholic today . I am currently on 1x250mg a day for 4 weeks then it goes up to 2x 250mg etc etc . late October last year I went...

Hi , I've just started ursodeoxycholic today . I am currently on 1x250mg a day f...

Hidden

•7 years ago

29 Replies

Not the worst thing I've had to live with....

I was diagnosed ten years ago and had a biopsy to diagnose PBC and have had two more, five year intervals, to stay on top of things. Also have upper...

I was diagnosed ten years ago and had a biopsy to diagnose PBC and have had two ...

Suzi8

•7 years ago

12 Replies

Throat swelling anyone?

Hi I was diagnosed with Pbc in Jan13 due to nodules on my liver( no other symptoms except raised Ggt-120)I cannot tolerate urso well and only take450mg daily...

Hi I was diagnosed with Pbc in Jan13 due to nodules on my liver( no other sympto...

cazz22

•7 years ago

4 Replies

Diagnosed a week ago today

Hi all, I have been participating in a few posts and had some questions. First of all im in the US...Sterling Va, and feel very lucky to have a knowlegable PA...

Hi all, I have been participating in a few posts and had some questions. First ...

tonia66

•7 years ago

11 Replies

Update

Since initial diagnosis and some doubt from me regarding medication and the hospital Dr saying once I take Urso I will stop itching and only on half dose I...

Since initial diagnosis and some doubt from me regarding medication and the hosp...

Jo_Br

•7 years ago

2 Replies

SBP, arrhythmia, tachycardia

Last week I was hospitalized due to Spontaneous Bacterial Peritonits--- infection in abdominal cavity caused by/related to ascites. I was treated with IV...

Last week I was hospitalized due to Spontaneous Bacterial Peritonits--- infectio...

tntarheel

•7 years ago

3 Replies

Blisters in lungs

Hi everyone, just wondering if anyone else has had a problem with their lungs. My lung kept collapsing and eventually they discovered that I have bullions ,,...

Hi everyone, just wondering if anyone else has had a problem with their lungs. M...

lennie9215

•7 years ago

1 Reply

Sjogrens syndrome

Hi I have PBC but have started with a dry mouth and eyes over the last few months been to the doctors for a blood test that came back normal but my symptoms...

Hi I have PBC but have started with a dry mouth and eyes over the last few month...

tinajohnston

•7 years ago

9 Replies

Itching

I have been "itching" since 2014. I have slowly worked my way through GP recommendations and since January I am in the care of a specialist here in the UK. I...

I have been "itching" since 2014. I have slowly worked my way through GP recomm...

butterflyEi

•7 years ago

4 Replies

Maagzuur

Zijn er mensen met pbc die ook zo'n last van maagzuur hebben lig er elke nacht wakker van. Ben benieuwd

Zijn er mensen met pbc die ook zo'n last van maagzuur hebben lig er elke nacht w...

Peetje195

•7 years ago

4 Replies

I want to sleep!!!!

its 3am and I am sat here writing this post, tried to sleep but given up made a cup of tea. Last night slept all night, bliss!! unusual. My fault had a spicy...

its 3am and I am sat here writing this post, tried to sleep but given up made a ...

Sandie1

•7 years ago

19 Replies

Job worries

Hi everyone hope everyone is ok just asking for some advice I have been of sick during the Christmas holidays about 8 weeks I am on the transplant list but I...

Hi everyone hope everyone is ok just asking for some advice I have been of sick ...

Jose1974

•7 years ago

1 Reply

I have congestive pelvic disease with varicose veins. Are PBC and this go hand in hand?

I want my veins removed. My doctors says it isnt wise but i am now going to a vascualar surgeon. I am hoping these can removed by schlerotherapy or stenting....

I want my veins removed. My doctors says it isnt wise but i am now going to a v...

lisababs

•7 years ago

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Does the PBC cause the itch or the urso?

Before diagnosis I had no perceivable itch. I've been on urso about a year now. Recent bloods came back normal lft. So I guess urso must be working. I...

Before diagnosis I had no perceivable itch. I've been on urso about a year no...

Frances61

•7 years ago

3 Replies

PBC/AIH conference in Indiana

Hi Ya'll, A conference is being organized by the Autoimmune Hepatitis Association (AIHA). This will be their second conference and many of the speaker topics...

Hi Ya'll, A conference is being organized by the Autoimmune Hepatitis Associati...

JaneIng

•7 years ago

6 Replies

Liver flush, anyone?

Hi, all: In a recent health webinar it was mentioned that liver flush can flush out liver/gall stones naturally. It says we need to clean the gall stones even...

Hi, all: In a recent health webinar it was mentioned that liver flush can flush ...

JaneIng

•7 years ago

12 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2017

Alternative/natural medicine?

Please can someone help

Pbc wendy

Pbc & liver transplant

Who had Esophageal varices and vomiting blood 😭😭😭😭

PBC confirmed

My Hands

Green .....

Pbc/Aih

Steroid versus immunosuppressant

Why my doctor won't give me Urso?

Synthroid levels and Urso

Organic Apple Cider Vinegar

Seeing a Rheumatologist...

PBC

Not the worst thing I've had to live with....

Throat swelling anyone?

Diagnosed a week ago today

Update

SBP, arrhythmia, tachycardia

Blisters in lungs

Sjogrens syndrome

Itching

Maagzuur

I want to sleep!!!!

Job worries

I have congestive pelvic disease with varicose veins. Are PBC and this go hand in hand?

Does the PBC cause the itch or the urso?

PBC/AIH conference in Indiana

Liver flush, anyone?

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