Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 7,999 posts

All posts for April 2017

Questran Light, (cholestyramine) and other meds - timings of taking advice.

I finally have given in and requested Questran Light, no proper sleep for over a week no with the intense itch, the daytimes not any difference in itch but I...

I finally have given in and requested Questran Light, no proper sleep for over a...

Jo_Br

•7 years ago

15 Replies

(Finally) Right Strategy to Cure Autoimmune Diseases: Alma Biotherapeutics

Hi, found this yesterday in some Biotechnology related News/Blog Site. They are indeed at the beginnings but can be one day a real cure for many Autoimmune...

Hi, found this yesterday in some Biotechnology related News/Blog Site. They are...

Betonarme

•7 years ago

1 Reply

Stress and PBC

Hi everyone, I thought I'd ask the question as to how stressed we are feeling with PBC? I've been battling with work stress for a year now. I'm wondering if...

Hi everyone, I thought I'd ask the question as to how stressed we are feeling wi...

Hils67

•7 years ago

5 Replies

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Update:

Went to Dermatologist last week to ask him if he had any "new" idea's or therapies that might help with my intense itch? He suggested I try photo therapy. It...

Went to Dermatologist last week to ask him if he had any "new" idea's or therapi...

krazy-girl

•7 years ago

3 Replies

What to blame?

Has anyone gone on cholestyramine for the itch of PBC and then had trouble with it changing your bowel habits? Since my recent increase of the cholestyramine...

Has anyone gone on cholestyramine for the itch of PBC and then had trouble with ...

krazy-girl

•7 years ago

4 Replies

Peri portal lymphadenopathy

I have literally just received a copy of of the letter sent to my GP from gastro. It states AMA at 1:640, ALT 57, ALP 143 with gamma GT 442. Chronic liver...

I have literally just received a copy of of the letter sent to my GP from gastro...

bullett

•7 years ago

7 Replies

Pain after biopsy

Hello everyone, I had a liver biopsy about 18 months ago now to diagnose my PBC. I have to say although the biopsy itself was virtually painless, within a few...

Hello everyone, I had a liver biopsy about 18 months ago now to diagnose my PBC....

Caroline-12

•7 years ago

8 Replies

YAY!!

Hi all, I just wanted to share my good news. I was recently diagnosed two months ago and started on URSO 6 weeks ago. I have been taking my URSO and started...

Hi all, I just wanted to share my good news. I was recently diagnosed two month...

youaremysunshine

•7 years ago

47 Replies

tauroursodeoxycholic acid

Hi Everyone, Has anyone ever used tudca? We've recently found information about this bile acid which supposedly can be used also to treat PBC (??) Below is...

Hi Everyone, Has anyone ever used tudca? We've recently found information about...

Betonarme

•7 years ago

3 Replies

Good info on PBC symptoms and treatments

Mayo Clinic has a link about PBC symptoms and treatments. I though it's helpful to me and want to share:...

Mayo Clinic has a link about PBC symptoms and treatments. I though it's helpful ...

JaneIng

•7 years ago

7 Replies

Life insurance

Does anyone have experience of applying for life assurance/insurance cover and declaring a PBC problem? I am still under investigation and apart from that...

Does anyone have experience of applying for life assurance/insurance cover and d...

luley

•7 years ago

4 Replies

Anyone else have PBC and RA?

Hi PBC family, So, I was diagnosed with PBC 10/10/16. Good news is they found it early. And after a second attempt I seem to be tolerating URSO. Been back on...

Hi PBC family, So, I was diagnosed with PBC 10/10/16. Good news is they found i...

Ktltel

•7 years ago

23 Replies

Bezafibrate for irretractable itch

I have seen Professor hirschfield at Queen Elizabeth in Birmingham today and he has prescribed me bezafibrate for the dreaded itch ... anyone else tried this !...

I have seen Professor hirschfield at Queen Elizabeth in Birmingham today and he ...

Melwoods

•7 years ago

3 Replies

Just been told today that pbc doesn't cause pain 😬

I told gastroenterologist that yes it does! Why do doctors keep saying it doesn't hurt? I feel wrecked, can't sleep and have pain but I'm only stage one...

I told gastroenterologist that yes it does! Why do doctors keep saying it doesn'...

Aussielouise

•7 years ago

14 Replies

Pain on my right side

I'm a 59 year old women having just been diagnosed with stage one pbc. I started taking ursodiol 300 mg twice a day two days ago. Yesterday I started getting...

I'm a 59 year old women having just been diagnosed with stage one pbc. I starte...

dahlia54

•7 years ago

29 Replies

Dermacool strength, which do you buy/use?

Well my consultant said this itch would be gone by Thursday and as it seemed to increase each day, I was hopeful. It has not and is making me weep and want to...

Well my consultant said this itch would be gone by Thursday and as it seemed to ...

Jo_Br

•7 years ago

16 Replies

First endoscope

Hi all, I went for my first endoscope yesterday and no sign of varices - yay. But they did find a sessile polyp, the report said they are doing a biopsy....

Hi all, I went for my first endoscope yesterday and no sign of varices - yay. B...

Angel_b

•7 years ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2017

Questran Light, (cholestyramine) and other meds - timings of taking advice.

(Finally) Right Strategy to Cure Autoimmune Diseases: Alma Biotherapeutics

Stress and PBC

Update:

What to blame?

Peri portal lymphadenopathy

Pain after biopsy

YAY!!

tauroursodeoxycholic acid

Good info on PBC symptoms and treatments

Life insurance

Anyone else have PBC and RA?

Bezafibrate for irretractable itch

Just been told today that pbc doesn't cause pain 😬

Pain on my right side

Dermacool strength, which do you buy/use?

First endoscope

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