Since initial diagnosis and some doubt from me regarding medication and the hospital Dr saying once I take Urso I will stop itching and only on half dose
I had spoken to Robert last week, his good advice led me to contact my GP and he was not happy with what had been done and tests not done. I am very lucky in the respect that he is totally supportive, he has rung to change calcium and read and read up for days on PBC. He has had my results looked at by a liver specialist and friend. She said to him, I should keep taking the Urso at correct strength and the Questran (Boooo), but not the steroids yet. She says we have not got the whole picture as yet, it is a AI liver issue, my weight loss is a concern.
She has agreed to squeeze me in to see her in two weeks, Easter got in the way a bit.
Meanwhile my Urso is now two times a day so I can eat my meals and not affect the Questran, found cranberry and raspberry is helping, still cannot get to the two sachets. Does it make anybody else's throat sore from the grit left after you drink?
I hope to stay here on Health Unlocked, if I have not got PBC but another AI liver condition. The support here has been amazing and I have every symptom of PBC so time will tell.