Throat swelling anyone?: Hi I was diagnosed... - PBC Foundation

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Throat swelling anyone?

cazz22 profile image
4 Replies

Hi I was diagnosed with Pbc in Jan13 due to nodules on my liver( no other symptoms except raised Ggt-120)I cannot tolerate urso well and only take450mg daily when I should be over 1000 however my liver results are bordering on normal now.Was told at Christmas some of the nodules had got bigger so had ct scan with dye for results to come back ok.Working full time and no problems until 2 weeks ago.Soaking in the bath I felt like I had a piece of string tight round my throat.This went on all week until I noticed a swelling( not a lump) at base of my neck.I had part of my thyroid removed 12 years ago due to a 'lump' -not a goitre on it but it works perfectly.Docs sent off a barrage of tests-thyroid fine-but showing some ' inflammation somewhere.Got neck scan in morning but a bit worried as it's not like last time.Anyone had similer?

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cazz22
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Angel_b profile image
Angel_b

Not had similar but just want to wish you good luck with the scan and hope all goes well tomorrow.

GaelOB profile image
GaelOB

Hi Cazz22

Read your post with great interest...I just started having throat tightening, i even struggle swallowing coffee at times. I do not have a history of thyroid issues, though. My next appointment isn't until September, i am scheduled for an endoscopy. Please let me know how you are doing. Wishing you all the best!

cazz22 profile image
cazz22 in reply to GaelOB

Thanks Angel andGael.Had scan this morning so fingers crossed it's nothing.Thought I was doing ok with this Pbc thing but then again it may not be related.Will keep you posted

cazz22 profile image
cazz22

Well blood results came back amazing-my half thyroid working better than most full ones do apparently.bloods show inflammation somewhere tho

Ha scan results in-2 nodules on thyroid -not cancerous tho so no further action to be taken tho I'm choking!!!!

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