Pbc & liver transplant

[evelyn1]

Looking to engage with someone who has pbc and went on to need a liver transplant.

[Brummi]

Hi, always ready to chat . Had PBC and a transplant. Ask away any questions...

[evelyn1 in reply to Brummi]

Hi thanks for your reply. I am only 11 weeks post. After op we obv still have pc as transplant takes away the damaged liver only. Do you haveall any pbc symptoms at all now or they all gone after transplant. Also wondering why we are not on urso again to protect our new liver being attacked from the beginning x

[Brummi in reply to evelyn1]

Hi, I had my transplant in June 2013, I have the itch back and clay colour stopped but not everyone gets this. This may be because the surgeon done something he should not have. I still have the diabetes so I'm stuck with that, otherwise I live a fairly normal life. Just watching what I eat, as long as you take it steady and don't expect to run the London marathon this year you will be ok. As for urso I don't know why I never went back on it...

[evelyn1 in reply to Brummi]

Thank you dad to hear the dreaded itch is back it was one of my worst symptoms,I really feel for you. I know it can start to attach our new liver so really interested in knowing why urso is not 1 of the meds we should be on for life. Is your bloods ok or they starting to ride again to. X

[Brummi in reply to evelyn1]

I have not had any problems with my bloods. When I go to liver clinic bloods are taken had there been a problem I would have been told.

[nannabn]

I had PBC and went n to have a transplant in 2004.

[allotment]

Evelyn 1

I had a liver transplant 2 and a half years ago after being diagnosed with PBC in 2001. Doing fine.

Happy to discuss experience.

[debi_p]

Hi had a transplant in January this yr. Happy to chat x

[jackk9]

Hi had liver transplant splenectomy then 2 heart attacks still not feeling well over a year ago now aching joints and swollen belly anyone else had any problems after transplant . Hopefully I'll be feeling better soon

[evelyn1]

Hi everyone please feel free to reply I have done so under 1st comment but was a general question to everyone. Thank you all once again & look forward to hearing from yous x