Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for April 2014

I have pbc and after ct scan doc says I have proximal small bowel thickening of 30-40 cm does anyone else have this and is it related to pbc

sophie666

•10 years ago

4 Replies

Does anyone suffer from blood blisters in their mouth after eating?

jenny66

•10 years ago

3 Replies

What foods are good for your Liver? I really want to eat healthy and I tried the Gluten free diet and I lost two pounds. I don't want to

Loose weight! I am 100 pounds and I would like to gain 5 pounds. It is better to have some weight on your body in case you get sick. Is there anything...

Loose weight! I am 100 pounds and I would like to gain 5 pounds. It is better ...

2006

•10 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Bit of an epic for which I apologise.

This is copy of the letter the consultant has sent to my GP. Do I have PBC? The consultant didnt ask me about tiredness but he does mention pain. I have had my...

This is copy of the letter the consultant has sent to my GP. Do I have PBC? The ...

flowerpower66

•10 years ago

10 Replies

Can pbc affect your bowels

I started having pains on right hand side of body lower down about 3 years ago. Dr pushed on it andi nearly went through roof. She told me it was my bowel and...

I started having pains on right hand side of body lower down about 3 years ago. ...

flowerpower66

•10 years ago

9 Replies

Can anyone recommend good brands, doses and forms (that is, tablets, or capsules, or drops) of Milk Thistle? Also is it best to ...

take it constantly or to have breaks? I was taking it for years, as a precaution, after I'd first been scared about my PBC (mis?)-diagnosis, then I stopped a...

take it constantly or to have breaks? I was taking it for years, as a precauti...

GrittyReads

•10 years ago

2 Replies

Help!gum disease!?

I'm a bit anal about cleaning my teeth brushing them several times a day.however since being diagnosed with pbc (feb2013) my gums have been bleeding when I...

I'm a bit anal about cleaning my teeth brushing them several times a day.however...

cazz22

•10 years ago

9 Replies

Does anyone have a pain in the groin that feels like bad period pains also cramps in that area that makes you want to open your bowels xx

sophie666

•10 years ago

8 Replies

Do you think stress can set off our immune systems?

I just wondered if there could be a link? Any thoughts?

flowerpower66

•10 years ago

28 Replies

Have a look at a new drug trial.

Obeticholic Acid/new drug. Just read about it on Reuters news.

flowerpower66

•10 years ago

9 Replies

Tumeric Tea

Just wanted to share this from Dr. Weil who states that it seems to delay liver damage in some instances that can eventually lead to cirrhosis....

Just wanted to share this from Dr. Weil who states that it seems to delay liver ...

Hidden

•10 years ago

Be the first to reply

Recently diagnosed with possible PBC. Had elevated LFTs. Next test showed AMAs 115. CT, ultrasound and biopsy negative.

Doctor wants me to take 500 mg of ursidiol 2x/day. If LFTs come down, likely PBC. If not further testing. Not happy with possible side effects of ursidiol....

Doctor wants me to take 500 mg of ursidiol 2x/day. If LFTs come down, likely PB...

Supernonna

•10 years ago

15 Replies

Feeling drunk (no alcohol!) Eyes can't focus,dizzy, empty headed.

LFTs fine.positive AMA. Awaiting liver ultra sound scan. Does anyone else experience these horrible effects. I am a migraine sufferer but never had so many...

LFTs fine.positive AMA. Awaiting liver ultra sound scan. Does anyone else experi...

flowerpower66

•10 years ago

2 Replies

Pregnancy Signs Help Please

I Had A Misscarrage Feb 26 I Was 11 Weeks March 5 I Started Back Having Sex With My Boyfriend Unprotected .. My Body Is Acting Strange Nd Im Not Sure Whats...

I Had A Misscarrage Feb 26 I Was 11 Weeks March 5 I Started Back Having Sex Wit...

Hidden

•10 years ago

6 Replies

Hi everyone, does anyone else have any close relatives with PBC, my mum also suffered from it.

scottiegirl

•10 years ago

14 Replies

Has anyone in the US had a fibroscan? Was it used in place of biopsy or in addition to biopsy? Hoping fibroscan is an option at MA General

moepag

•10 years ago

1 Reply

How can you find out if your doctor has got you on a liver transplant list(s) and is there anything you can do yourself to get put on a list

I need to know what I can do myself to get my name on the list(s) for a liver transplant and is there anyway to find out if your name is already on a list(s)...

I need to know what I can do myself to get my name on the list(s) for a liver tr...

cirrhosis35

•10 years ago

3 Replies

If you have PBC, how long would it take to destroy the liver?

Is it something that could take 20 years?

flowerpower66

•10 years ago

9 Replies

Pain and bloating in the upper right abdomen area.

Has anyone been told that Ursodiol can cause pain and bloating in the upper right abdomen liver area? My MD told me that and had my lower my does of Ursodiol...

Has anyone been told that Ursodiol can cause pain and bloating in the upper righ...

friendozzy

•10 years ago

5 Replies

What should I expect my specialist to do to me at my first appointment once he sees these results...

ST-BIL 83H. Normal-3-15 S ALP 153. 20-105 SGGT 867. 5-35 S ALT. 1264....

ST-BIL 83H. Normal-3-15 S ALP 153. ...

Bundymiss

•10 years ago

2 Replies

Double the itch - Chicken Pox

Hi. I went to my dr yesterday as came out in spots to be told at the age of 43 I have Chicken Pox. Not been around any children so no idea where I picked...

Hi. I went to my dr yesterday as came out in spots to be told at the age of 43...

Mcinnel2

•10 years ago

10 Replies

Elevated Amylace levels

Has anyone received elevated levels of Amylace? Diagnosed with PBC October 2012 Stage 3. I've been having severe pain under my left rib cage, along with...

Has anyone received elevated levels of Amylace? Diagnosed with PBC October 2012...

carrot14

•10 years ago

1 Reply

I wonder if?

Just pondering at 3.10am in the morning when not sleeping! Having looked on the Liver Trust website and the details related to a funded research programme,...

Just pondering at 3.10am in the morning when not sleeping! Having looked on the...

Ginger_11

•10 years ago

2 Replies

Does anyone know why salt is bad for pbc x

sophie666

•10 years ago

2 Replies

hi all. my question is , is osteoarthritis or it may be osteoporosis, linked to pbc? thanks

shakira10

•10 years ago

8 Replies

My AMA have been elevated for 2 years now. Currently they're 66. My Dr. 2 years ago didn't take it seriously since its very rare for a man.

to have PBC. My bilirubin is also elevated at 1.3 and has been for years. If I test positive for AMA does that mean I have PBC? I was negative for hepatitis.

to have PBC. My bilirubin is also elevated at 1.3 and has been for years. If I t...

rdameron

•10 years ago

2 Replies

Bloating with gas

I wanted to know if there is anything over the counter I can take for my bloating. It gets so bad I can't even button my pants sometimes. My doc does not even...

I wanted to know if there is anything over the counter I can take for my bloatin...

POZY

•10 years ago

7 Replies

Night Sweats?

Are night sweats PBC related?

Lisacj

•10 years ago

8 Replies

I have just been diagnosed with pbc I'm having 750mgs of urso daily I feel very unwell have bad night sweats n have constant diarrhoea

I dont know what stage im at does anyone know

sophie666

•10 years ago

38 Replies

I have a rough liver?

My consultant said I have a rough liver, after my biopsy test. When I asked what this meant she said it is not smooth. This was obvious to me but does anyone...

My consultant said I have a rough liver, after my biopsy test. When I asked what...

hotdog

•10 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2014

I have pbc and after ct scan doc says I have proximal small bowel thickening of 30-40 cm does anyone else have this and is it related to pbc

Does anyone suffer from blood blisters in their mouth after eating?

What foods are good for your Liver? I really want to eat healthy and I tried the Gluten free diet and I lost two pounds. I don't want to

Bit of an epic for which I apologise.

Can pbc affect your bowels

Can anyone recommend good brands, doses and forms (that is, tablets, or capsules, or drops) of Milk Thistle? Also is it best to ...

Help!gum disease!?

Does anyone have a pain in the groin that feels like bad period pains also cramps in that area that makes you want to open your bowels xx

Do you think stress can set off our immune systems?

Have a look at a new drug trial.

Tumeric Tea

Recently diagnosed with possible PBC. Had elevated LFTs. Next test showed AMAs 115. CT, ultrasound and biopsy negative.

Feeling drunk (no alcohol!) Eyes can't focus,dizzy, empty headed.

Pregnancy Signs Help Please

Hi everyone, does anyone else have any close relatives with PBC, my mum also suffered from it.

Has anyone in the US had a fibroscan? Was it used in place of biopsy or in addition to biopsy? Hoping fibroscan is an option at MA General

How can you find out if your doctor has got you on a liver transplant list(s) and is there anything you can do yourself to get put on a list

If you have PBC, how long would it take to destroy the liver?

Pain and bloating in the upper right abdomen area.

What should I expect my specialist to do to me at my first appointment once he sees these results...

Double the itch - Chicken Pox

Elevated Amylace levels

I wonder if?

Does anyone know why salt is bad for pbc x

hi all. my question is , is osteoarthritis or it may be osteoporosis, linked to pbc? thanks

My AMA have been elevated for 2 years now. Currently they're 66. My Dr. 2 years ago didn't take it seriously since its very rare for a man.

Bloating with gas

Night Sweats?

I have just been diagnosed with pbc I'm having 750mgs of urso daily I feel very unwell have bad night sweats n have constant diarrhoea

I have a rough liver?

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive