Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for May 2013

urso ?

have to add had pbc for about a year heard about urso medication should u be given it when first diagnosed confused thanks sadie x

have to add had pbc for about a year heard about urso medication should u be giv...

sadie21

•11 years ago

6 Replies

Unique experience from PBC Group

I was diagnosed 5 months ago, today. I immediately began searching on the internet for information & support groups. This website has truly been a blessing for...

I was diagnosed 5 months ago, today. I immediately began searching on the intern...

WendyMarie

•11 years ago

3 Replies

Really fed up

Sorry forgot to add that consultant not very helpfull , so feel a bit let down, no a lot let down . Got 2 consultants and both keep swapping meds around ,...

Sorry forgot to add that consultant not very helpfull , so feel a bit let down, ...

sillybilly

•11 years ago

1 Reply

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Really fed up

Hi all , got told late last year I had ulcerative colitis, autoimmumhepititis and PBC, have now found a lump in my neck and got to go for x ray and ultre scan...

Hi all , got told late last year I had ulcerative colitis, autoimmumhepititis an...

sillybilly

•11 years ago

3 Replies

Question re Urso.....

Hi. I have another question, about Urso this time . Maybe it is a coincidence but about two months ago I started with the bad itching, all over my body,...

Hi. I have another question, about Urso this time . Maybe it is a coincidence b...

Annac

•11 years ago

9 Replies

Which blood work and/or criteria was used to diagnose your PBC?

I'm 49, female and my gastroengerologist has quickly made the PBC diagnosis based on positive AMA (84.4 units , pos = >24.9), elevated AST (44, scale of 0-40),...

I'm 49, female and my gastroengerologist has quickly made the PBC diagnosis base...

JennerLayne

•11 years ago

24 Replies

Newbie!!

I have recently found that I have pbc. The consultant drew some squiggles on a piece of paper and said 'u r here, then u will get to this stage and then this...

I have recently found that I have pbc. The consultant drew some squiggles on a ...

rynick

•11 years ago

12 Replies

What is esa?

rynick

•11 years ago

1 Reply

Ursofalk is working

Hello. My doc thinks I suffer from PBC. Bloodtests showed I had high levels of ggt (185). All other tests are negative. I have been postponing biopsy so my...

Hello. My doc thinks I suffer from PBC. Bloodtests showed I had high levels o...

pax80a

•11 years ago

8 Replies

I have pbc,when I get minor infection such as a cold I get symptoms of pbc such as itching and nausea which most of the time are absent.

Does anyone else have this issue?

vicw

•11 years ago

2 Replies

GI Tract Bacteria May Protect Against Autoimmune Disease

http://www.sciencedaily.com/releases/2013/01/130117133003.htm Good to know more about probiotics and their many already known but also newly discovered...

http://www.sciencedaily.com/releases/2013/01/130117133003.htm Good to know mo...

Cristina_Romania

•11 years ago

2 Replies

Hello! PBC - I have no idea what's going on!

Hello there. I don't know quite what to do here but I'll try my best. I'm Martin, age 41 (mental age of about 11) and a couple of months ago diagnosed with...

Hello there. I don't know quite what to do here but I'll try my best. I'm Mar...

MitzLock

•11 years ago

11 Replies

Statin's

Do anyone of you take Ursofalk with Statin's my Cholesterol is going up and might have to take a low dose Statin. Thanks

Do anyone of you take Ursofalk with Statin's my Cholesterol is going up and migh...

cavi

•11 years ago

4 Replies

Does the Ursofalk medicine get rid of jaundice? My eyes are yellow! If it does how long did it take?

I have been taking the Ursofalk for about a week and a half. My billirubin was 45umol/dL (2.7 on the other scale) on diagnosis. I probably shouldn't do it but...

I have been taking the Ursofalk for about a week and a half. My billirubin was 4...

skippydownunder

•11 years ago

4 Replies

I have won my ESA appeal but I Don't understand the decision notice

Can anyone please tell me what all this means ? 1. The appeal is allowed 2 The decision Made on 12 November 2012 is set aside 3. Miss ** is entitled...

Can anyone please tell me what all this means ? 1. The appeal is allowed ...

weestephm

•11 years ago

8 Replies

Has anybody had lung lesions with their PBC? Apparently there is a link.

I had a lung biopsy and was negative for any form of cancer or sarcoidosis. They are called granulomas.

I had a lung biopsy and was negative for any form of cancer or sarcoidosis. They...

skippydownunder

•11 years ago

10 Replies

PBC for 2years

I was diagnosed with PBC 2years ago. Liver biopsy confirmed it. I'm happy to see I'm not alone. I have no symptoms yet. I'm located in Southern California...

I was diagnosed with PBC 2years ago. Liver biopsy confirmed it. I'm happy to s...

Mimigal

•11 years ago

5 Replies

Oh no not something else!!!!!!!!

Just wanted to ask if any one as got Kidney problems,just had some blood tests and they have come back just about border line,so feel quite worried, Liver...

Just wanted to ask if any one as got Kidney problems,just had some blood tests a...

cavi

•11 years ago

5 Replies

Feeling crap.

Hi guys, In my last post I mentioned I was steroid free. I went to see my consultant yesterday and my LFT's are elevated again. I am tired and thirsty and...

Hi guys, In my last post I mentioned I was steroid free. I went to see my con...

Alley27

•11 years ago

7 Replies

Why a liver biopsy?

My "consultant" said last time I saw him he'd like to do a liver biopsy. What benefit is that to me`? I can understand his wanting to do one for his records...

My "consultant" said last time I saw him he'd like to do a liver biopsy. What b...

kaywire

•11 years ago

17 Replies

Some good news. . .

Kngs hospital. . . Amazing team of specialists. Had my first appt yesterdsy with top lead clinician in auto immune diseases and for the first time since being...

Kngs hospital. . . Amazing team of specialists. Had my first appt yesterdsy wit...

gracesofia

•11 years ago

9 Replies

how many people on an esa appeals panel

higher

•11 years ago

3 Replies

Depression

Hi all, just thought I would let you know that I took the bull by the horns and finally visited my Dr today, as expected she didn't have a clue what PBC was so...

Hi all, just thought I would let you know that I took the bull by the horns and ...

Bookworm7

•11 years ago

4 Replies

How can someone say they love you and walk away from a relationship with no explanations.Would never talk about the relationship during.

She was a widow and ive been told thats the reason.Im Confused.

Hidden

•11 years ago

14 Replies

Errmmmm Where to start.

Hi all not been on for a while, I am so confused right now, my mood swings are on over drive I don't want to see anyone or go anywhere my partner cant seem to...

Hi all not been on for a while, I am so confused right now, my mood swings are o...

Bookworm7

•11 years ago

10 Replies

Advice please

Hi I don't post much these days but I do read the posts that others put on here. Ihave AIH/PBC overlap. Was taking prednisolone up to 2 weeks ago. They have...

Hi I don't post much these days but I do read the posts that others put on here....

Alley27

•11 years ago

7 Replies

Just an update

I was diagnosed with PBC in August last year and had gall bladder out in December. I have felt fine for the last 3 mths but have to say have been...

I was diagnosed with PBC in August last year and had gall bladder out in Decembe...

hannah1973

•11 years ago

3 Replies

so unhappy

just got letter through to cancel my appoint ment for consultant cancelled next 1 is in october means that i have not seen him in a year so upset im really...

just got letter through to cancel my appoint ment for consultant cancelled next ...

sadie21

•11 years ago

6 Replies

Slim fast?

Is this ok with PBC, or not?

Nikinoo75

•11 years ago

4 Replies

Lets all make a list to get real recognition!

It seems to me that we are all/mostl of usare at the hands of doctors that rebuke our symtoms or know very little about PBC. Reading and researching shows me...

It seems to me that we are all/mostl of usare at the hands of doctors that rebuk...

Lisacj

•11 years ago

32 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2013

urso ?

Unique experience from PBC Group

Really fed up

Really fed up

Question re Urso.....

Which blood work and/or criteria was used to diagnose your PBC?

Newbie!!

What is esa?

Ursofalk is working

I have pbc,when I get minor infection such as a cold I get symptoms of pbc such as itching and nausea which most of the time are absent.

GI Tract Bacteria May Protect Against Autoimmune Disease

Hello! PBC - I have no idea what's going on!

Statin's

Does the Ursofalk medicine get rid of jaundice? My eyes are yellow! If it does how long did it take?

I have won my ESA appeal but I Don't understand the decision notice

Has anybody had lung lesions with their PBC? Apparently there is a link.

PBC for 2years

Oh no not something else!!!!!!!!

Feeling crap.

Why a liver biopsy?

Some good news. . .

how many people on an esa appeals panel

Depression

How can someone say they love you and walk away from a relationship with no explanations.Would never talk about the relationship during.

Errmmmm Where to start.

Advice please

Just an update

so unhappy

Slim fast?

Lets all make a list to get real recognition!

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