Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for April 2013

Can anyone tell me about milk thistle. Never heard of it until I read it on this site.

Annac

•11 years ago

26 Replies

Questran Light

I just wanted to know how long it takes before you get any relief from the Itching,only just started to take it and i am living in hope that it does help...

I just wanted to know how long it takes before you get any relief from the Itchi...

cavi

•11 years ago

1 Reply

Hi has anyone gained weight since starting on the urso I've gained 1 and half stone can't decide what's causing the weight gain xxx

karenlesley

•11 years ago

20 Replies

Want to take advantage of all our features? Just log in!

ACE results

Just had a report from the consultant. Including blood results. ANA and AMA are positive. ACE levels slighly elevated to 61.. IDoes anyone else have...

Just had a report from the consultant. Including blood results. ANA and AMA...

Ellanvannin

•11 years ago

1 Reply

Re..Incapacity benefits appeal info needed please folks.

I went to my appeal ESA tribunal on 08-04 2013 where the DWP didn't even bothering to turn up to dispute the original decision..I won the appeal..I havn't...

I went to my appeal ESA tribunal on 08-04 2013 where the DWP didn't even botheri...

cooookkkie

•11 years ago

1 Reply

Itching

Can someone tell me if the Urso helped with the itching? I have only been on it about a week. Thanks

Can someone tell me if the Urso helped with the itching? I have only been on it ...

beckydyer

•11 years ago

4 Replies

What should you Igm levels be?

I have just got my blood results back, and my liver functions are stable however they say my IgM levels are raised's. What does this mean?

I have just got my blood results back, and my liver functions are stable however...

Fudger126

•11 years ago

1 Reply

My friendwho ids brain damage has had his DLA stoped by ATOS but he can appeal ,how can he get about it ?as i dont know it either ?ideas?

libertad

•11 years ago

2 Replies

Is there anyone with pbc who's not had a liver biopsy yet

karenlesley

•11 years ago

12 Replies

memory loss

since been diagnosed with PBC I have struggled with memory I didn't know if it was a side effect of the illness or the urso medication. The doctors aren't much...

since been diagnosed with PBC I have struggled with memory I didn't know if it w...

jess1990

•11 years ago

3 Replies

My poor old eyes!

Thank you to everybody who replied to my question regarding "Deteriorating Vision". Since reading your replies I am not sure if I have Sjogrens Syndrome as...

Thank you to everybody who replied to my question regarding "Deteriorating Visio...

MoPo

•11 years ago

2 Replies

are people with pbc able to work full time?

jess1990

•11 years ago

25 Replies

URSO and itching

I read that URSO can cause itching to get worse. I started URSO on tuesday and my itching immediately became worse. I read that it helps release bile salts...

I read that URSO can cause itching to get worse. I started URSO on tuesday and m...

engasser

•11 years ago

4 Replies

Does PBC mostly affect older people?

Or are they diagnosed too late?, I was diagnosed in my 30s but I read a lot are diagnosed from 60s onwards. It makes me wonder if my body is ageing quickly,...

Or are they diagnosed too late?, I was diagnosed in my 30s but I read a lot are ...

TracyLou

•11 years ago

5 Replies

Does URSO help the immune system from attacking the bile ducts

My mother was diagnosed this past December with PBC, she is 81 and was immediately put on URSO and diuretics. Since then, the inflammation has decreased and...

My mother was diagnosed this past December with PBC, she is 81 and was immediate...

Hidden

•11 years ago

4 Replies

Now or Later

Gastroscopy ( Endoscopy) Has anyone had a Endoscopy to check if Varices are ok and not bleeding.Just had a look iny PBC booklet and this has been...

Gastroscopy ( Endoscopy) Has anyone had a Endoscopy to check if Varices are ok...

cavi

•11 years ago

11 Replies

just started on urso

Hi, I was diagnosed last November with PBC and AIH I have just started on Urso this last month. Is it quite a while before it starts to kick in or take any...

Hi, I was diagnosed last November with PBC and AIH I have just started on Urso...

sandgroundergirl

•11 years ago

5 Replies

ALP skyrockets

For 2 weeks in February, I had the flu & took flu meds, every 4 hrs. for 2 weeks. I was still a little sick when I had a blood test & my ALP was elevated from...

For 2 weeks in February, I had the flu & took flu meds, every 4 hrs. for 2 weeks...

WendyMarie

•11 years ago

11 Replies

Just saying hi.

Hi everyone not been on for a while hope your all doing well. As for me ive had a few things going on,got to have my gallbladder out going for my pre op on...

Hi everyone not been on for a while hope your all doing well. As for me ive had...

donnathompson

•11 years ago

2 Replies

Would you tell the newspapers your story about PBC?

Hi all, How many of you live in greater Manchester? If you could would you tell the paper within your area your story about PBC? I am asking because I sell...

Hi all, How many of you live in greater Manchester? If you could would you tell...

Fudger126

•11 years ago

24 Replies

Autoimmune cholangiopathy

I was labelled with this recently, after knowing I had some vague AI liver disease which was quite stable, for about a decade. The sppecialist is a bit...

I was labelled with this recently, after knowing I had some vague AI liver disea...

witchiegirl

•11 years ago

3 Replies

Deteriorating vision

My eyes have deteriorated significantly in the last month or so with everything becoming blurred and some double vision, especially in my left eye. I went...

My eyes have deteriorated significantly in the last month or so with everything ...

MoPo

•11 years ago

7 Replies

Elevated ALP means nothing??

My doctor says elevated ALP means nothing as far as liver damage or outcome. Bilirubin & Albumen are the only numbers the doctors are concerned with. I am very...

My doctor says elevated ALP means nothing as far as liver damage or outcome. Bil...

WendyMarie

•11 years ago

22 Replies

Stage 2 PBC

Does stage 2 mean I have a shorter amount of time until I need a transplant? From what I read it seems more the bilirubin levels. But stage 2 seems like there...

Does stage 2 mean I have a shorter amount of time until I need a transplant? Fr...

engasser

•11 years ago

12 Replies

Itchy looking bite's

Don't know if this is all to do with the Dreaded Itch but i am getting area's on my body that look like i have been bit they really itch and then bleed,i get...

Don't know if this is all to do with the Dreaded Itch but i am getting area's on...

cavi

•11 years ago

4 Replies

Does anyone suffer with itching inside and outside the ear and what is the best treatment to use?

I have read previously of a link to PBC of itching of the ear and this is what I have put it down to. I suffer intermittently with this problem so I suppose I...

I have read previously of a link to PBC of itching of the ear and this is what I...

mumofthree

•11 years ago

16 Replies

NOT AN ALCOHOLIC

OMG,I wish that people would educate themselves a little atleast,im so tired of explaining my illnes to them and still get that feeling that they dont believe...

OMG,I wish that people would educate themselves a little atleast,im so tired of ...

sandrakay

•11 years ago

22 Replies

Has anyone on Azathioprine lost or skipped their menstrual cycle?

I would like to get pregnant,but i no longer have my period. Any input would be great...thanks

I would like to get pregnant,but i no longer have my period. Any input would be ...

sutorres

•11 years ago

9 Replies

Is there anyone on here from Eccles in manchester who attends the support group at the manchester royal each month

lainey67

•11 years ago

18 Replies

I have now been off the Urso for nearly 8 months but despite feeling better off it than did on it my Liver is not responding so well.

My LFTS are rising steadily since being off it and slowly but surely all the other symptoms apart from the dreaded itch (though not so sure way things are...

My LFTS are rising steadily since being off it and slowly but surely all the oth...

littlemo

•11 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2013

Can anyone tell me about milk thistle. Never heard of it until I read it on this site.

Questran Light

Hi has anyone gained weight since starting on the urso I've gained 1 and half stone can't decide what's causing the weight gain xxx

ACE results

Re..Incapacity benefits appeal info needed please folks.

Itching

What should you Igm levels be?

My friendwho ids brain damage has had his DLA stoped by ATOS but he can appeal ,how can he get about it ?as i dont know it either ?ideas?

Is there anyone with pbc who's not had a liver biopsy yet

memory loss

My poor old eyes!

are people with pbc able to work full time?

URSO and itching

Does PBC mostly affect older people?

Does URSO help the immune system from attacking the bile ducts

Now or Later

just started on urso

ALP skyrockets

Just saying hi.

Would you tell the newspapers your story about PBC?

Autoimmune cholangiopathy

Deteriorating vision

Elevated ALP means nothing??

Stage 2 PBC

Itchy looking bite's

Does anyone suffer with itching inside and outside the ear and what is the best treatment to use?

NOT AN ALCOHOLIC

Has anyone on Azathioprine lost or skipped their menstrual cycle?

Is there anyone on here from Eccles in manchester who attends the support group at the manchester royal each month

I have now been off the Urso for nearly 8 months but despite feeling better off it than did on it my Liver is not responding so well.

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive