I was labelled with this recently, after knowing I had some vague AI liver disease which was quite stable, for about a decade. The sppecialist is a bit uninformative so i've been reading up - to try and understand what this might mean for me. I'm being treated with immunosuppressants - at present prednisolone, and to begin on azathioprine in a few weeks too. So my question for you all is this: Is it similar to 'AMA negative PBC'? Or is it another condition? Has anyone else got it? Any info would be very useful really, then i can make up my own mind what i think :-). Over the years I've had several labels and now I'm very confused.
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