What do you think of this video on ho... - Pernicious Anaemi...

Pernicious Anaemia Society

32,662 members24,044 posts

What do you think of this video on homocysteine?

Oneash profile image
7 Replies

youtu.be/9lb_Js5KMq4?si=0sB... watched this and wondered are our problems, fatigue, inflammation etc. to do with toxic build up of homocysteine?

I already take B12, of course by injection, B9 l-methylfolate and B6 (though not p5p sort in a larger dose). I take a methyl B complex too and vitamin D.

Before I go and buy a whole load more supplements, I was thinking Choline, trimethylglyphine, SAMe and MSM do you think they would help get some energy back, let alone clear some arteries?

Am I getting them in food anyway?

Thanks for any wise heads.

Written by
Oneash profile image
Oneash
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Technoid profile image
Technoid

Unless you have a functional deficiency, heart disease, thyroid issues, kidney disease, or inherited homocystinuria, I don't think it's likely you would have raised homocysteine while injecting B12 and getting adequate amounts of Folate, B6, B2 etc.

For those whose homocysteine tests high because of one of the above, some TMG supplementation could be useful. You should be easily able to get the rest from food. I'm not sure why the supposed answer to every problem here ends up being to purchase more and more supplements.

I'm not anti-supplements where they're needed but there's way too much of a fixation with them while at least some members of the forum have not the faintest idea what a healthy diet looks like. You can't supplement your way out of a bad diet.

If you're really worried about homocysteine, you could ask for it to be tested by your local GP, or failing that, get a private test. If it's not raised, you don't have to worry about lowering it.

Oneash profile image
Oneash in reply toTechnoid

Thanks Technoid,

I do eat a reasonably healthy diet. I guess I got a bit fixated lately because of shifting from folic acid to l-methylfolate.

I still don't feel like progress is happening and do a ridiculous amount of sleeping at times. I can get tired very quickly, like a switch goes in my head and have had a couple of worrying moments when driving. Some mornings my husband has a hard time waking me up.

I'm feeling very frustrated. I've got some big decisions to make.

Technoid profile image
Technoid in reply toOneash

To be honest, if you look at my early posts I was all about every supplement I could get my hands on 😆. Comes with the territory. I think there's points where some supplementation is warranted but for the most part supplementation is overrated.

Fatigue seems to be the most common long-term complaint of many people with PA even with adequate treatment. I don't know why that is but is something I am often thinking about why that would be.

MorningMist profile image
MorningMist in reply toTechnoid

It’s easy to assume that with the right diet and supplements we can have boundless energy. I expect we all have an optimal level determined by our genetic makeup.

I do all I can to get enough exercise, sleep, eat healthily without unnecessary additives etc and yet I’m aware that there’s an underlying pattern that I don’t seem able to influence. There are weeks when I sleep well and feel really positive and then for no apparent reason I have disturbed sleep, increased resting heart rate etc. Optimal seems to be the best I can aim for. But I’m not sure what that is!

WIZARD6787 profile image
WIZARD6787 in reply toTechnoid

>>You can't supplement your way out of a bad diet.

Thank you for sharing your personal opinion. As I understand it your diet requires supplementation to be 'healthy'.

>>I'm not sure why the supposed answer to every problem here ends up being to purchase more and more supplements.

No reason for you to understand self-treatment not related to diet.

Gambit62 profile image
Gambit62Administrator

I'd be a bit wary as the presenter links to a supplement store.

WIZARD6787 profile image
WIZARD6787 in reply toGambit62

>>I'd be a bit wary as the presenter links to a supplement store.

Studying supplements is the wild west right now. Profitable

Medicine is just this side of prehistoric. Profitable

Doctors in the USA attempted to get MNM be a controlled substance by slightly modifying the molecule and started testing it. The supplement industry was able to prevent that because if a supplement was not developed by doctors the FDA can not at this time control it unless it is shown to be harmful.

Not what you're looking for?

You may also like...

What do you think? Advice please new to this.

Hi everyone, I’m new here because I honestly don’t know where to turn and need to hear from other...

Well what do you think

So had a B12 diagnosis in January of B12 114 had six B12 loading doses, felt great and then after 3...
MandyPandy profile image

this is what GP's think of us.

First off let me say I like my GP, although I must admit to rubbing most of them up the wrong way....

What do you put in the sharps bin?

So this may be an odd question, but if you have a sharps bin w a needle remover are you meant to...

Help on pernicious anemia,what do doctors mean?

Hi please could anyone tell me I have suffered on and off with anemia for about 13 years I also...
Biddledeboo profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.