High Blood Pressure Spikes

[LoveFromB12]

Hello Everyone,

I have Pernicious Anemia, Bilateral Optic Neuritis & Antiphospholipid Syndrome. I keep a daily medical journal documenting my symptoms, blood pressure, & remarks about how I’m feeling. Having this journal has been very helpful following my journey with PA & to keep a close eye on my symptoms & general health.

Over the past ten years I have experienced sudden onsets of extremely high blood pressure spikes which generally last about ten days & then it just disappears. In the mornings my BP is normal & then it slowly escalates during the day even while resting. My pulse is always normal. Then this happens again a year or two later. This has happened to me eight times so far. Each time, I’ve had follow up appointments with my neurologist, cardiologist, & my family physician. None of them can explain this or provide a diagnosis.

It took me seventeen years to get my PA diagnosis. I was told that I had MS because three was no other logical explanation for Bilateral Optic Neuritis. Then the MS diagnosis was dropped & PA was determined to be the cause. Going seventeen years without injecting B12 has left me with permanent nerve damage.

Has anyone else experienced high blood pressure spikes ? Any thoughts on this ?

[topazrat]

It happens to me too and the GP has no idea why, so if you find a reason, I will be very interested. I ended up being sent to A&E a few weeks back by the G.P. with a BP of 210/124. As usual nothing was done and I was sent home. G.P puts me on BP pills, which make me ill, so he stops them, I do a few weeks of home readings and BP drops down to normal. A few weeks or months later, rinse and repeat. They've tried 5 different BP meds and they all make me ill.

I was undiagnosed for about the same time as you.

[LoveFromB12 in reply to topazrat]

Wow, I’m not alone this !!! You are the very first person to reach out to me with the same symptoms. My physicians have been zero help !!!

I will most definitely get back to you if I find out anything !!! Thank You !!!

[Nackapan in reply to LoveFromB12]

Your autonomic system may have been damaged.My daughter had this witb a feeling of anxiety .

Like z panic attack that wasn't.

She eventually gor a diagnosis of POTS .

Often got from untreated B12 deficiency .

A standing trst or a tilt table test csn Co firm this.

She was only able to get around I s wheelchair ax unable yo stand on the spot.

A drug has been very effective now.

She walks miles.

Nevef an option before.

My BP went up .

6 weeks later back to normal??

I didn't check it in between.

[LoveFromB12 in reply to Nackapan]

I knew nothing about the autonomic system so I looked it up & bingo !!! The description fits my symptoms perfectly. Now I’m digging deeper into this. This discovery is a game changer !!! I can’t thank you enough for this information !!! 😊

[Mrsmr in reply to LoveFromB12]

I had spiking BP and headaches. Felt awful. GP ordered a 24 hour BP monitor. I had my 10 weekly b12 jab just before having the monitor. I started to feel better ,headaches went and when I did 24 hour reading it had come down and remained stable. I put it down to b12 jab.Hope you feel better soon.x

[LoveFromB12 in reply to Mrsmr]

I also have headaches with my spiking BP. Lightheaded & feeling dizzy. One response I got was a possibility damaged autonomic nervous system. When I looked up info on this, it to matches my symptoms exactly. I am digging deeper into this…

Thank You for your response & kind words !

[chrisbuy63 in reply to Nackapan]

Hello I am suffering from orthostatic tremor and have PA and Hashimotos. I can't stand still on the spot either which is very debilitating .

I am very interested to hear which treatment has been effective for your daughter. I am glad she is able to walk well again. Any improvement would be a blessing. Can you share the name of the drugs and supplements she takes please.

[Nackapan in reply to chrisbuy63]

My daughter was diagnosed with POTS. A result of a late blood test to show B12 deficiency

Vitamin B12 deficiency

Megobolastic anaemia

Folate deficiency

Ferritin very low

A consultant prescribed Fludrocortisone.

She has daily folate 400mcg

10 weekly B12 injections

Vitamins D 1000

A completely different diet shd can absorb.

Gluten Free

Fructose free

Diary free

Egg free .

Red meat Free

Is adding things back in smsll quantities now .

[LoveFromB12 in reply to Nackapan]

That’s very helpful to know. I’ m digging deeper into POTS to gain better knowledge of it. The symptoms match perfectly with what I’m experiencing. Thank You for sharing !!! 😊

[chrisbuy63 in reply to Nackapan]

Thank you and I am so glad to hear that she has found treatment that has worked well for her.

[NOTI1]

I have this too; I have just had an episode of spiking high blood pressure, headaches, feeling lightheaded and dreadful; another load of tests (heart scans etc), all normal. Home testing over 7 days and I manged to get normal readings again. So far no further contact from gp. I was late diagnosed so wondered if it is linked to my PA. It started to happen when I began to get (unknown to me at the time and over 3 years prior to diagnosis) significant PA symptoms.

[mo2march]

If you ask Chatgpt it says, Targetted Exosomes along with NGF can heal nerve damage upto 70% at any stage but even if you don't see improvement you need to revive you're body's b12 reserves which is required for nerve regeneration. Then after mentioned treatment hyperbaric oxygen therapy can maintain proper oxygen level in deep nerves. Just try to keep your blood circulation effective in all blood vessel and try to boost NGF, IGF1, BDNF, GH. Low carb diet is required for stimulation of nerve regeneration along with keto diet supplements plus Lion's mane mushroom, ALA, acertyl L carnitin and phosphatedylserine. But in making journal make sure stress doesn't affect your blood pressure. In the meantime autonomic nerve damage is rare and keep in mind blood pressure depends on muscle contraction in all body. Magnesium along with zinc, omega 3, vitamin D3 in high dose, k2, boron is required for blood vessels to work properly. Walking, stretching muscles and some weight training is required, HIIT training can boost nerve regeneration along with quality sleeping and stress management.

[ScottishAnnie]

I was told 12 years ago I have PA. Apart from injections given, firstly 12 weekly and now 8 weekly, I have seen no specialist for symptoms. Over the last 4 years I have been taken to hospital 5 or 6 times with very high B P spikes. Always the ECGs and blood tests are clear. My BP, regularly checked by myself is good, apart from the periodic spikes. My GP just dismisses this and no further investigations have been done. I know it's wrong for me to feel like this but I feel relieved to read your post and the replies and learn that I am not alone.

[Hockey_player]

How often are you injecting B12? I wonder if more often might eventually help heal your nerve damage?

[LoveFromB12]

I’ve been injecting 0.3 ml of Methylcobalamin daily since June 2023. Prior to that I did injections weekly. I tried much higher doses for a full month three times on a daily basis without any noticeable improvement. I’m physically fit & go hiking frequently. I get out on often for daily walks of four miles or more.