High Blood Pressure Spikes

[LoveFromB12]

Hello Everyone,

I have Pernicious Anemia, Bilateral Optic Neuritis & Antiphospholipid Syndrome. I keep a daily medical journal documenting my symptoms, blood pressure, & remarks about how I’m feeling. Having this journal has been very helpful following my journey with PA & to keep a close eye on my symptoms & general health.

Over the past ten years I have experienced sudden onsets of extremely high blood pressure spikes which generally last about ten days & then it just disappears. In the mornings my BP is normal & then it slowly escalates during the day even while resting. My pulse is always normal. Then this happens again a year or two later. This has happened to me eight times so far. Each time, I’ve had follow up appointments with my neurologist, cardiologist, & my family physician. None of them can explain this or provide a diagnosis.

It took me seventeen years to get my PA diagnosis. I was told that I had MS because three was no other logical explanation for Bilateral Optic Neuritis. Then the MS diagnosis was dropped & PA was determined to be the cause. Going seventeen years without injecting B12 has left me with permanent nerve damage.

Has anyone else experienced high blood pressure spikes ? Any thoughts on this ?

[topazrat]

It happens to me too and the GP has no idea why, so if you find a reason, I will be very interested. I ended up being sent to A&E a few weeks back by the G.P. with a BP of 210/124. As usual nothing was done and I was sent home. G.P puts me on BP pills, which make me ill, so he stops them, I do a few weeks of home readings and BP drops down to normal. A few weeks or months later, rinse and repeat. They've tried 5 different BP meds and they all make me ill.

I was undiagnosed for about the same time as you.

[LoveFromB12 in reply to topazrat]

Wow, I’m not alone this !!! You are the very first person to reach out to me with the same symptoms. My physicians have been zero help !!!

I will most definitely get back to you if I find out anything !!! Thank You !!!

[Nackapan in reply to LoveFromB12]

Your autonomic system may have been damaged.My daughter had this witb a feeling of anxiety .

Like z panic attack that wasn't.

She eventually gor a diagnosis of POTS .

Often got from untreated B12 deficiency .

A standing trst or a tilt table test csn Co firm this.

She was only able to get around I s wheelchair ax unable yo stand on the spot.

A drug has been very effective now.

She walks miles.

Nevef an option before.

My BP went up .

6 weeks later back to normal??

I didn't check it in between.

[LoveFromB12 in reply to Nackapan]

I knew nothing about the autonomic system so I looked it up & bingo !!! The description fits my symptoms perfectly. Now I’m digging deeper into this. This discovery is a game changer !!! I can’t thank you enough for this information !!! 😊

[Mrsmr in reply to LoveFromB12]

I had spiking BP and headaches. Felt awful. GP ordered a 24 hour BP monitor. I had my 10 weekly b12 jab just before having the monitor. I started to feel better ,headaches went and when I did 24 hour reading it had come down and remained stable. I put it down to b12 jab.Hope you feel better soon.x

[LoveFromB12 in reply to Mrsmr]

I also have headaches with my spiking BP. Lightheaded & feeling dizzy. One response I got was a possibility damaged autonomic nervous system. When I looked up info on this, it to matches my symptoms exactly. I am digging deeper into this…

Thank You for your response & kind words !