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Pernicious Anaemia Society

32,105 members • 23,259 posts

All posts for September 2023

Goggled how B12 deficiency is treated in India.

I found it interesting. Methylcobalamin is what seems to be used in that country and it is where my trials seem to be leading me. I found it interesting...

I found it interesting. Methylcobalamin is what seems to be used in that count...

WIZARD6787

•9 months ago

7 Replies

Problems when hiking.

I have been supplementing with B12 for over two years. Most of my B12D symptoms have gone and I feel great so we have just been on a short stay in the Peak...

I have been supplementing with B12 for over two years. Most of my B12D symptoms ...

charks

•9 months ago

10 Replies

Fanfare please!

Well I've just done my 1st B12 IM into my thigh. I was very brave and just went for a lull in the shaking and got on with it. Possibly washing my hands 15...

Well I've just done my 1st B12 IM into my thigh. I was very brave and just went ...

debra_bill

•9 months ago

26 Replies

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Some Nature

Even when bed bound, I would close my eyes and remember the beautiful places I have been. Now, I can walk, I daily go to a canal and sit watching a local...

Even when bed bound, I would close my eyes and remember the beautiful places I h...

Narwhal10

•9 months ago

17 Replies

Sorry to be a pain nor sure what to do -any ideas?

Hi, I'm so sorry to be a pain - I have posted twice about my low Folic Acid which continues or be a concern ... \\ust after some advice.... I took ill a...

Hi, I'm so sorry to be a pain - I have posted twice about my low Folic Acid wh...

Missprettyshoes

•9 months ago

3 Replies

Abnormal brain changes in a patient with vegetarian diet‑induced subacute combined degeneration: A case report

Interesting paper: https://www.spandidos-publications.com/10.3892/etm.2023.12190/download

Interesting paper: https://www.spandidos-publications.com/10.3892/etm.2023.12190...

Technoid

•9 months ago

12 Replies

Genetic test results

Had gene tests BH, Thyroid Traits and Genetic traits, learning how to screen shot 👍

Had gene tests BH, Thyroid Traits and Genetic traits, learning how to scree...

Polo22

•9 months ago

12 Replies

endoscopy

Hi guys! Well I got my endoscopy results back last week and everything looked good they tested MICROSCOPIC DESCRIPTION: 1, 2) Sections show fragments of...

Hi guys! Well I got my endoscopy results back last week and everything looked go...

brenanddave

•9 months ago

19 Replies

Help please!! Question about breathlessness and heart rate

hi!! So I know that b12 deficiency can cause breathlessness and a fast heart rate but exactly why does this happen? I have looked online and it says it’s the...

hi!! So I know that b12 deficiency can cause breathlessness and a fast heart ra...

Amyflood246

•9 months ago

22 Replies

Supplemental B12 and Animal Agriculture

I was curious about the destination of manufactured supplemental B12 (I am vegan). In several books promoting vegan or plant-based diets I had come across the...

I was curious about the destination of manufactured supplemental B12 (I am vegan...

Technoid

•9 months ago

21 Replies

Needle disposal hack

I use a B D Safe Clip available on Amazon for insulin needles. I snap the needle off and throw the rest in the normal trash. I used to keep all the items...

I use a B D Safe Clip available on Amazon for insulin needles. I snap the needle...

WIZARD6787

•9 months ago

10 Replies

Adenosyl/Hydroxy B12 LIQUID….could it benefit me in any way along with my usual cyano injections.

Hi all! Hope everyone is doing ok. I was just wondering if anyone could tell me if hydroxy liquid may benefit me as far as brain function. I do still get a...

Hi all! Hope everyone is doing ok. I was just wondering if anyone could tell m...

Plucky1976

•9 months ago

8 Replies

Can I buy b12 self injections in the uk

is it possible to buy b12 injections in the uk or purchase over the internet, any recommendations.

is it possible to buy b12 injections in the uk or purchase over the internet, an...

Tattlee

•9 months ago

20 Replies

Another flower.

Like a pom pom .Only just shedding in this heat.

Nackapan

•9 months ago

4 Replies

Licorice and B12 Absorption

Recently I was googling side effects from eating licorice (I love licorice but had stopped eating it years ago because I read it was bad for your heart.) I...

Recently I was googling side effects from eating licorice (I love licorice but h...

MoKayD

•9 months ago

22 Replies

Can a low b12 patient take drugs that has jitters as one of the side effects?

Hello everyoneI have been on B12 supplements for B12 deficiency treatment for a long time now. One of my persistent symptoms is inability to sleep and maintain...

Hello everyoneI have been on B12 supplements for B12 deficiency treatment for a ...

Orimini

•9 months ago

4 Replies

Pernicious Anaemia Day 12 October 2023

the Pernicious Anaemia Society is announcing the first "day" to raise awareness of Pernicious Anaemia. We've chosen the 12th because, you know, B12! and...

the Pernicious Anaemia Society is announcing the first "day" to raise awareness ...

PAScomms

•9 months ago

5 Replies

A thank you!

As often happens to me on the forum someone posts something that resonates and I consider it for a while and make it my own and then can not credit the person...

As often happens to me on the forum someone posts something that resonates and I...

WIZARD6787

•9 months ago

8 Replies

Fundraising

I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of...

I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a ...

Narwhal10

•9 months ago

18 Replies

Non-Toxic does not mean benign.

I have found than any increase in dosage leads to temporary adjustment including digestive issues.

I have found than any increase in dosage leads to temporary adjustment including...

WIZARD6787

•9 months ago

6 Replies

Designing a new protocol.

6 months ago +- I found that 1 mg hydroxocobalamin three times a day with other supplements lead to feeling better after 1.5 years of feeling less worse.This...

6 months ago +- I found that 1 mg hydroxocobalamin three times a day with other ...

WIZARD6787

•9 months ago

1 Reply

Hydroxocobalamine

Anyone know how to get hydroxocobalamin in high doses? I'm looking for something in the 10-50mg range.

Anyone know how to get hydroxocobalamin in high doses? I'm looking for something...

Misterholmes

•9 months ago

13 Replies

Mcas and Pa questions

I have Sub Acute Degeneration of spine from b12d as well as MCAS. I have always been sensitive to shots and I do react to them. should I keep taking them?...

I have Sub Acute Degeneration of spine from b12d as well as MCAS. I have always ...

SickNessa

•9 months ago

3 Replies

Tragic case of yet another disease but the same ignorance!!

I was sent this by my brother saying isn't this the same thing happening to you!! And it is! To all of us. It is so heartbreaking....

I was sent this by my brother saying isn't this the same thing happening to you!...

brenanddave

•9 months ago

17 Replies

Vitamin B12 and B1, B2, B3, B5 and B7.

In every matrix (outer bit) of our powerhouses (mitochondria) that are in our 30 trillion cells. There are lots of reactions (metabolic pathways). So, the...

In every matrix (outer bit) of our powerhouses (mitochondria) that are in our 30...

Narwhal10

•9 months ago

52 Replies

Starting B12 injections, how often?

Hello everybody, I will be receiving my first B12 injection next week. My blood test results were as follows folate 3.4ug/L, ferritin 19.9ug/L and B12 218ug/L...

Hello everybody, I will be receiving my first B12 injection next week. My blood...

Sotired3

•9 months ago

8 Replies

High b12 readings

Hi, Just a quick question I was wondering about. My b12 stays consistently on the number 1460! I hear of some people with 5000! Does the number indicate...

Hi, Just a quick question I was wondering about. My b12 stays consistently on th...

brenanddave

•9 months ago

5 Replies

Don’t give up fighting

After many years of battling with various GPs and HCAs , same as far too many people on here, I’ve made another breakthrough!! Following a referral letter...

After many years of battling with various GPs and HCAs , same as far too many pe...

Jason_h123

•9 months ago

15 Replies

Update

Last week while ordering repeat prescription I asked the receptionist if there was any one to speak to about my self injecting. A doctor said she would ring...

Last week while ordering repeat prescription I asked the receptionist if there w...

3rdNettydoon

•9 months ago

24 Replies

Proton pump inhibitors, hearing loss, and B12

The linked article is ostensibly about a connection between proton pump inhibitors and hearing loss. Much of the article actually descibes several causes of...

The linked article is ostensibly about a connection between proton pump inhibito...

WiscGuy

•9 months ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(77)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2023

Goggled how B12 deficiency is treated in India.

Problems when hiking.

Fanfare please!

Some Nature

Sorry to be a pain nor sure what to do -any ideas?

Abnormal brain changes in a patient with vegetarian diet‑induced subacute combined degeneration: A case report

Genetic test results

endoscopy

Help please!! Question about breathlessness and heart rate

Supplemental B12 and Animal Agriculture

Needle disposal hack

Adenosyl/Hydroxy B12 LIQUID….could it benefit me in any way along with my usual cyano injections.

Can I buy b12 self injections in the uk

Another flower.

Licorice and B12 Absorption

Can a low b12 patient take drugs that has jitters as one of the side effects?

Pernicious Anaemia Day 12 October 2023

A thank you!

Fundraising

Non-Toxic does not mean benign.

Designing a new protocol.

Hydroxocobalamine

Mcas and Pa questions

Tragic case of yet another disease but the same ignorance!!

Vitamin B12 and B1, B2, B3, B5 and B7.

Starting B12 injections, how often?

High b12 readings

Don’t give up fighting

Update

Proton pump inhibitors, hearing loss, and B12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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