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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for March 2023

A goodbye

So Martyn Hooper has decided to step down after ? 19 years of hard work on behalf of PA sufferers . I wish him well. Hoping The Pernicious Aneamia Society...

So Martyn Hooper has decided to step down after ? 19 years of hard work on behal...

Nackapan

•1 year ago

8 Replies

New method of dosage of B12--Discredited!

The below is without citation and I may be incorrect. Statement of Facts: Edit-I was using a form of analysis. The 'Statement of facts' Is what I was...

The below is without citation and I may be incorrect. Statement of Facts: Ed...

WIZARD6787

•1 year ago

23 Replies

B-complex restarted healing?

I’ve been SI B12 for a year now since the NHS injections aren’t sufficient these past few years and I crashed terribly after major surgery. I’m significantly...

I’ve been SI B12 for a year now since the NHS injections aren’t sufficient these...

MrsTuft

•1 year ago

11 Replies

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B12 and periods

clutching at straws here anyone missed a period since starting B12 injections. I found out I had low b12 in Aug 2022 (100ng/l) started b12 injections. Since...

clutching at straws here anyone missed a period since starting B12 injections. ...

Snapper246

•1 year ago

10 Replies

Whoopee, I thought. 🤔 Maybe not.

I thought I were getting somewhere with regard to my complaint against the neurologist I saw who gaslighted me with a diagnosis of FND. The ombuds person rang...

I thought I were getting somewhere with regard to my complaint against the neuro...

Jillymo

•1 year ago

4 Replies

B12 results-please can someone advise?

B12/folate level Serum vitamin B12 level > 2000 pg/mL [191.0 - 663.0]; Above high reference limit Serum folate level 2.0 ug/L [4.5 - 37.3]; <3.0 g/l :...

B12/folate level Serum vitamin B12 level > 2000 pg/mL [191.0 - 663.0]; Above h...

Milsean

•1 year ago

13 Replies

White Paper on subcutaneous injection

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6822791/ I found this article helpful. Most of it I had learned on this site. That subcutaneous injections is...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6822791/ I found this article help...

WIZARD6787

•1 year ago

2 Replies

New Google AI called Bard

I’ve been trying out Bard with various questions. Still beta, so US spelling and orientation, but I think it made a pretty good fist of this one:- Why don’t...

I’ve been trying out Bard with various questions. Still beta, so US spelling and...

Midnight_Voice

•1 year ago

7 Replies

B12 brand

Has anyone ever used b12 Gerot Lannach brand from doctors it says to be given IM does that mean it cannot be given sc .iv just ordered pasco b12 as I hadn't...

Has anyone ever used b12 Gerot Lannach brand from doctors it says to be given IM...

Andypandy30

•1 year ago

7 Replies

sickness bug

I recently had a sickness bug. And ever since I’ve had nausea. Could the have something to do that I’ve got pernicious and it’s irritated my stomach

I recently had a sickness bug. And ever since I’ve had nausea. Could the have so...

Becca2023

•1 year ago

4 Replies

Best description of Fatigue I have heard

Every waking moment of every day all I want to do is lay down and sleep. I know I will not sleep if I lay down so I do what I can in a fog. When I can be...

Every waking moment of every day all I want to do is lay down and sleep. I know ...

WIZARD6787

•1 year ago

4 Replies

ANRC Plus instead of B complex?

The below is my own work which I am simply sharing. I have no other agentia other than to invite comments and zero expectations. I make no claim to legitimacy...

The below is my own work which I am simply sharing. I have no other agentia othe...

WIZARD6787

•1 year ago

2 Replies

Sorry to ask again but.....Panpharma?

I recently posted saying that I have been SI'ing for 6 years now, and that I have been trying to source Panpharma B12 Depot. I am aware that everywhere is out...

I recently posted saying that I have been SI'ing for 6 years now, and that I hav...

BeachArt

•1 year ago

5 Replies

Definitive answers to questions about B12 treatments

The only way to get definitive answers to questions about treatment about B12 deficiency is to ask a physician. Thing is they all are confident in their...

The only way to get definitive answers to questions about treatment about B12 de...

WIZARD6787

•1 year ago

15 Replies

HOW LONG CAN B12 be in a Syringe, before use.

Hi folks, this site has been a tremendous help for me in dealing with my B12, deficiency. I prepare my B12 ampoules (I use 1ml syringe) 8-10 at a time to...

Hi folks, this site has been a tremendous help for me in dealing with my B12, de...

RisingOne

•1 year ago

7 Replies

Advice on iron supplements

So... the next steps in taking control of my own treatment. I've been for my private bloods this morning including IFAB and gastric parietal antibodies, MMA...

So... the next steps in taking control of my own treatment. I've been for my pri...

KBird01

•1 year ago

9 Replies

Finally ! B12 loading doses and 3 monthly injections

After a long battle (6 years plus), and countless GPs telling me blood tests are “within range” blah blah blah I have just been booked in for B12 loading doses...

After a long battle (6 years plus), and countless GPs telling me blood tests are...

Edso57

•1 year ago

22 Replies

Getting a diagnosis

Hi I've had symptoms potentially related to a b12 problem just about all my life (I'm 50 now). I became very ill about 3 years ago with a typical list of...

Hi I've had symptoms potentially related to a b12 problem just about all my life...

Uluru72

•1 year ago

9 Replies

Electrolyte Panel

In my reading here I have not come across a electrolyte panel test being mentioned. Perhaps as that test is commonly done. In the USA it is called a total...

In my reading here I have not come across a electrolyte panel test being mention...

WIZARD6787

•1 year ago

3 Replies

Low blood sugar and sleep paralysis

Hello! My daughter is B12 deficient and is starting to get shots. She recently has experienced a couple of instances where she felt like she had low blood...

Hello! My daughter is B12 deficient and is starting to get shots. She recently...

Rummie

•1 year ago

3 Replies

different b12 form

diagnosed mid January with low b12 and PA. Originally told to do once a week cyanocobalamin and that just wasn’t helping so start of feb I did everyday...

diagnosed mid January with low b12 and PA. Originally told to do once a week cya...

Asb2

•1 year ago

1 Reply

Holiday travel

Hi all, travelling to Spain in 3 weeks time will it be OK to put my b12 vials , a couple of needles and syringes in my hand luggage? I don't have a doctors...

Hi all, travelling to Spain in 3 weeks time will it be OK to put my b12 vials , ...

Teloch

•1 year ago

10 Replies

Pains

Hi, I was diagnosed with PA a year ago. I've got a vibrating in my feet like a mobile phone on vibrate, is this normal. Also just received my b12 injection and...

Hi, I was diagnosed with PA a year ago. I've got a vibrating in my feet like a m...

roxicat

•1 year ago

8 Replies

TIRED like crazy after B12 shot

So, about a month back, i got my b12 tested and it was 130pg/ml (normal range - 180 to 900) I had all sorts of symptoms, tingling, extreme fatigue, no mental...

So, about a month back, i got my b12 tested and it was 130pg/ml (normal range - ...

Shipship

•1 year ago

11 Replies

Hi New Symptoms

Hi I’m experiencing constant pins and needles and loss of sensation in my fingers I was diagnosed with pernicious anaemia 2022 after having Covid19 - initially...

Hi I’m experiencing constant pins and needles and loss of sensation in my finger...

Angllama

•1 year ago

12 Replies

Subcutaneous vs Intermuscular

When I go back to the USA I am going to take the information that I now have, mostly gained from this site and go over all my supplements and dosages and do...

When I go back to the USA I am going to take the information that I now have, mo...

WIZARD6787

•1 year ago

15 Replies

Do others find their symptoms are generally the worst first thing in the mornings?

Neuropathy, nausea, shaking start to settle in as soon as I wake. Once up and going for an hour or so I can generally function most days but the mornings are...

Neuropathy, nausea, shaking start to settle in as soon as I wake. Once up and go...

Benjamin1212

•1 year ago

7 Replies

Source of B12 for SI

Hi, up until covid and brexit, I sourced my B12 from Germany. I had to stop for a while due to financial reasons. However I am desperately trying to source...

Hi, up until covid and brexit, I sourced my B12 from Germany. I had to stop for ...

Horsecrazylady79

•1 year ago

2 Replies

Folate deficient

Hi all, I had my bloods done and was told I’m folate deficient. I’m currently taking 5mg of folic acid for 4 months, since 1st March. I’m now injecting...

Hi all, I had my bloods done and was told I’m folate deficient. I’m current...

qwertystar

•1 year ago

4 Replies

Could my son's "normal blood test" results be pernicious anemia?

My 25 year old son suffers from extreme lethargy and lack of concentration. He is otherwise healthy but is unable to engage in normal activities even one's he...

My 25 year old son suffers from extreme lethargy and lack of concentration. He i...

Mindseye

•1 year ago

10 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2023

A goodbye

New method of dosage of B12--Discredited!

B-complex restarted healing?

B12 and periods

Whoopee, I thought. 🤔 Maybe not.

B12 results-please can someone advise?

White Paper on subcutaneous injection

New Google AI called Bard

B12 brand

sickness bug

Best description of Fatigue I have heard

ANRC Plus instead of B complex?

Sorry to ask again but.....Panpharma?

Definitive answers to questions about B12 treatments

HOW LONG CAN B12 be in a Syringe, before use.

Advice on iron supplements

Finally ! B12 loading doses and 3 monthly injections

Getting a diagnosis

Electrolyte Panel

Low blood sugar and sleep paralysis

different b12 form

Holiday travel

Pains

TIRED like crazy after B12 shot

Hi New Symptoms

Subcutaneous vs Intermuscular

Do others find their symptoms are generally the worst first thing in the mornings?

Source of B12 for SI

Folate deficient

Could my son's "normal blood test" results be pernicious anemia?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive