Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for March 2023

Folic Acid Video (Discredited)

I did some more research and Dr Berg is not credible so I deleted the vidio link. This vidio was not directy discrededed. I apolgize.

I did some more research and Dr Berg is not credible so I deleted the vidio link...

WIZARD6787

•1 year ago

4 Replies

Vaccines and tinnitus

So I am pretty sure I got tinnitus through Covid Vaccine, and every month after I have had ringing in my left ear. I have been having B12 injections monthly...

So I am pretty sure I got tinnitus through Covid Vaccine, and every month after ...

Janeames

•1 year ago

16 Replies

Recent diagnosis - some questions...

Hi, I was diagnosed two month's ago, had the first wave of injections but if anything feel worse than before. I realise it might take time to work. What I...

Hi, I was diagnosed two month's ago, had the first wave of injections but if an...

BleekerStreet

•1 year ago

26 Replies

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Delivery time of B12 ampules.

I am in the UK and wondering how long I should allow from the time I order B12 hydroxocobalamin that can be injected. I understand there is no definitive...

I am in the UK and wondering how long I should allow from the time I order B12 ...

WIZARD6787

•1 year ago

20 Replies

Canada -

Anyone know anything about PA in Canada. Looking for support group or /and information. Thank you

Anyone know anything about PA in Canada. Looking for support group or /and info...

grandmacutler

•1 year ago

20 Replies

NHS dummy appointment letters response from my MP

As some of you will know I received one of these dummy letters which raised concern as to why such letters were being sent out. Original letter received...

As some of you will know I received one of these dummy letters which raised conc...

Jillymo

•1 year ago

17 Replies

SIBO test

Has anyone in the UK managed to get a SIBO test via NHS please or did they pay privately?

Has anyone in the UK managed to get a SIBO test via NHS please or did they pay ...

davina70

•1 year ago

10 Replies

Pins & Needles (Calcium Absorption & Seizures)

My apologies for posting so frequently recently but I wanted to share this in case it’s helpful for others on this forum. I have been waiting for nearly a...

My apologies for posting so frequently recently but I wanted to share this in ca...

RoseFlowerDew

•1 year ago

12 Replies

Long Covid similarities to B12 deficiency

I was just reading through a description of long Covid and was struck by the similarities to B12 deficiency....

I was just reading through a description of long Covid and was struck by the sim...

WiscGuy

•1 year ago

13 Replies

Is there a connection with High Ferritin Levels and B12 Injections.

I have had very high Ferritin levels for the past eighteen months (now 715) with a Tsat of 59% and despite a lot of BT's and proceedures checking for...

I have had very high Ferritin levels for the past eighteen months (now 715) with...

Lemondrizz1

•1 year ago

12 Replies

Close enough is good enough.

I came to this when I came to the understand my body and my neurological system did well considering and I wanted to stop thinking in terms of they failed me....

I came to this when I came to the understand my body and my neurological system...

WIZARD6787

•1 year ago

4 Replies

Trough testing?

My new gp (yet another) said she will do a 'trough' blood test 3 weeks after my injection ( as this is when my symptoms a getting worse). She said that if my...

My new gp (yet another) said she will do a 'trough' blood test 3 weeks after my ...

Hidden

•1 year ago

52 Replies

Tedx NHS: Patient compliance talk

If anyone wants to add to the conversation about PA in a more public space I have posted a comment to the Tedx NHS talk on patient compliance with regards to...

If anyone wants to add to the conversation about PA in a more public space I hav...

RoseFlowerDew

•1 year ago

10 Replies

German online Hydroxocobalamin ??

Help! Today I went online to find my ordinary package of 10 "ampullen" B12 Hydroxocobalamin on Amazon.de, but they only had cyano..., and so did Versand Apo,...

Help! Today I went online to find my ordinary package of 10 "ampullen" B12 Hydr...

indywindy

•1 year ago

13 Replies

Double Checking

Working with a friend who has confirmed B12 deficiency, that their GP does not understand that fact, has decided seeking further medical help their deficiency...

Working with a friend who has confirmed B12 deficiency, that their GP does not u...

WIZARD6787

•1 year ago

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Newbie to this group (hello!), iron overload and possible PA question :/

Hello all, I'm new to this group, I have autoimmune thyroid disease, but along with it have been looking at sorting out my iron and B12, so would like to...

Hello all, I'm new to this group, I have autoimmune thyroid disease, but along...

Ebx_design

•1 year ago

3 Replies

puzzled

I have underactive thyroid and other medical problems have been tested in the past as positive for intrinsic factor antibodies and my mother had pernicious...

I have underactive thyroid and other medical problems have been tested in the pa...

Sususulio

•1 year ago

7 Replies

High active b12

Hi everyone just wanted to know is it normal to have high active b12 when on 3 monthly Injections. I have had a private blood test done for multiple thing....

Hi everyone just wanted to know is it normal to have high active b12 when on 3 m...

alpeec

•1 year ago

3 Replies

Is it possible to have B12D with normal Active B12 levels?

Hi everyone, I posted earlier today about my progress so far. I'm still trying to understand this whole thing and whether B12D is at the root of my problems....

Hi everyone, I posted earlier today about my progress so far. I'm still trying...

KBird01

•1 year ago

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B12 Toothpaste - The latest advice to vegans

I have a few professional contacts in my network who promote veganism for children. When I looked at the small print, they suggested children can get their...

I have a few professional contacts in my network who promote veganism for childr...

Pickle500

•1 year ago

18 Replies

Treatment for PA the same as B12 deficiency?

I got so caught up in preventing permanent neurological symptoms I have not done any reading on PA. I tested positive which confirmed what was found by a...

I got so caught up in preventing permanent neurological symptoms I have not done...

WIZARD6787

•1 year ago

4 Replies

Next steps on my GP journey - advice please!

Hi everyone, I've just made another appointment with my GP now my blood test results are back. I'm told there are 'no abnormal issues', but I can't have a...

Hi everyone, I've just made another appointment with my GP now my blood test re...

KBird01

•1 year ago

43 Replies

does stress deplete your B12 quicker

hi i was just wandering do you think stress depletes your B12 injections quicker im on 3 monthly at the moment also does anyone else get jaw clenching...

hi i was just wandering do you think stress depletes your B12 injections quicker...

pinkypurple58

•1 year ago

15 Replies

Serious Nerve Damage from Use of Nitrous Oxide

More on the news today about nitrous oxide and the serious nerve damage to those using it but, again, no mention of how use depletes vitamin B12. Also...

More on the news today about nitrous oxide and the serious nerve damage to those...

Polaris

•1 year ago

9 Replies

Blood test for intrinsic factor. How accurate is it?

Have been well for quite a while on my eight weekly B12 injections but had been referred to a gastroenterologist for worsening IBS . He wants to find out why...

Have been well for quite a while on my eight weekly B12 injections but had been...

Mavis15

•1 year ago

7 Replies

Self injection issue - thigh muscle spasm

Hello, I'm wondering if anyone else here has had this problem? I've been self-injecting for over four years, and I still find injecting IM into my thighs...

Hello, I'm wondering if anyone else here has had this problem? I've been self-...

ktwing

•1 year ago

10 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2023

Folic Acid Video (Discredited)

Vaccines and tinnitus

Recent diagnosis - some questions...

Delivery time of B12 ampules.

Canada -

NHS dummy appointment letters response from my MP

SIBO test

Pins & Needles (Calcium Absorption & Seizures)

Long Covid similarities to B12 deficiency

Is there a connection with High Ferritin Levels and B12 Injections.

Close enough is good enough.

Trough testing?

Tedx NHS: Patient compliance talk

German online Hydroxocobalamin ??

Double Checking

Newbie to this group (hello!), iron overload and possible PA question :/

puzzled

High active b12

Is it possible to have B12D with normal Active B12 levels?

B12 Toothpaste - The latest advice to vegans

Treatment for PA the same as B12 deficiency?

Next steps on my GP journey - advice please!

does stress deplete your B12 quicker

Serious Nerve Damage from Use of Nitrous Oxide

Blood test for intrinsic factor. How accurate is it?

Self injection issue - thigh muscle spasm

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive