Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for March 2023

Confused newbie

I'm so glad I've found this forum, I've feel like I've learned a lot already from all of the experience's, advice and information provided by you amazing peeps...

I'm so glad I've found this forum, I've feel like I've learned a lot already fro...

woo79

•1 year ago

15 Replies

Pain when injecting

Hi everyone. So I’ve been self injecting for 18 months & all been well. Three weeks ago I went to inject & was very painful but did get the b12 in. This...

Hi everyone. So I’ve been self injecting for 18 months & all been well. Three we...

Winniepoo15

•1 year ago

29 Replies

B12 tablets better than injection!

Hi, after taking Hydroxocobalaminacetat 1000ug I.M. for over a year once every 12 days I decided to switch to tablets. Having been put on an anticoagulant for...

Hi, after taking Hydroxocobalaminacetat 1000ug I.M. for over a year once every 1...

john159

•1 year ago

36 Replies

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Checking on my understanding of Folic Acid

The friend I am giving information to and not advising has Serum Folate test results of 3.3 ug/l. It is my understanding it is thought that folic acid 5mg once...

The friend I am giving information to and not advising has Serum Folate test res...

WIZARD6787

•1 year ago

19 Replies

ANRC-EP

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9558401/ Having completed my 'investigation of B complexes and concluded that in general it was a "seems like a...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9558401/ Having completed my 'inve...

WIZARD6787

•1 year ago

3 Replies

Started IM B12 Loading Injections, Symptoms ? Worse

Hi, I'm new to the group from Australia, After several months of worsening symptoms (nausea, pins and needles in fingertips, burning sensations neuropathy in...

Hi, I'm new to the group from Australia, After several months of worsening symp...

Benjamin1212

•1 year ago

3 Replies

Body pain

Not had this for a while but knee pain then goes in to my toes and feet. Then very random pain sharp stabbing. As soon as I take iburefen it starts to ware of...

Not had this for a while but knee pain then goes in to my toes and feet. Then ve...

Mozza127

•1 year ago

2 Replies

Confused & could do with some advice please...

I had to have a re-blood test done a couple of days ago since having my b12 loading doses in Nov/Dec 2022 when I was told that I have Pernacious Aneamia caused...

I had to have a re-blood test done a couple of days ago since having my b12 load...

Electricblue22

•1 year ago

22 Replies

B12 deficiency. ???

Hi Just needed some advice i have a folate deficiency and am currently taking folic acid.I was told my b12 was fine.But had an appointment with a dietician...

Hi Just needed some advice i have a folate deficiency and am currently taking fo...

Rachel20

•1 year ago

14 Replies

B12 deficiency

Is the nerve pain felt all through day long now? It seems to not leave me through out the day lately. My upper back between shoulder thighs & legs, neck and...

Is the nerve pain felt all through day long now? It seems to not leave me throug...

mbhembe

•1 year ago

2 Replies

PAS Helpline

Am using the telephone nimber;01656 817085 Opening times: 0830-1230 Tues. -Friday. 3 options 1.professionals . No answer but cxn leave 2 message Left one a...

Am using the telephone nimber;01656 817085 Opening times: 0830-1230 Tues. -Frid...

Nackapan

•1 year ago

3 Replies

B12 hydro

HiI am having problems buying b12 Rotexmedica Depot, usually places its unavailable anyone have a source?

HiI am having problems buying b12 Rotexmedica Depot, usually places its unavaila...

ollie7horse

•1 year ago

3 Replies

B12 injections and vaginal bleeding.

Hi all, I am new here and I would value some imput. I'm 68 and recently discovered that my B12 is too low. I received six B12 injections from a nurse at my...

Hi all, I am new here and I would value some imput. I'm 68 and recently discove...

susieflooz

•1 year ago

16 Replies

Methycobalamin Powder Needed

Hi everyone, I have been ordering methycobalamin in powder form from a lab in the UK. I get it in this form because b12 loses potency when water is added and...

Hi everyone, I have been ordering methycobalamin in powder form from a lab in th...

headypuma

•1 year ago

24 Replies

Weakness and fatigue after nearly 3 years of injections

Hi there, I started injections nearly 3 years ago. I have had varying frequencies, everything from eod to every 2 weeks. I had so much improvement in the...

Hi there, I started injections nearly 3 years ago. I have had varying frequenci...

KittyKitten

•1 year ago

7 Replies

All Symptoms could be Neurological?

It seems to me that all symptoms of B12 deficiency that are known and some I experience that are not not associated with B12 deficiency could be attributed...

It seems to me that all symptoms of B12 deficiency that are known and some I ...

WIZARD6787

•1 year ago

2 Replies

HELP!! b12 deficiency, small fibre neuropathy and dysautonomia

hi! I’m sorry me again! So I have breathlessness, bladder problems, excessive sweating, very high heart rate especially on standing, dry mouth, dry eyes...

hi! I’m sorry me again! So I have breathlessness, bladder problems, excessive...

Amyflood246

•1 year ago

10 Replies

Neurologist able to tell the difference between PA and MS on an MRI

Hello, I hope someone can point me in the right directly. I am desperately seeking a neurologist in the UK who is able to tell the difference between...

Hello, I hope someone can point me in the right directly. I am desperately seeki...

SeaglassMenagerie87

•1 year ago

30 Replies

Where Can I Purchase B12 Ampoules ?

I have not posted on here for a long time so hope I am doing it correctly. I have been a self injector of B12 for over 6 years now. My usual site that I go to...

I have not posted on here for a long time so hope I am doing it correctly. I hav...

roddogsbody

•1 year ago

3 Replies

DaphneD

I’m new to this app but have been struggling with chronic fatigue off and on for many years. I find doctors quite unhelpful although well meaning. Years ago...

I’m new to this app but have been struggling with chronic fatigue off and on for...

Daphne-D

•1 year ago

8 Replies

Choline supplements?

I am wondering whether choline supplement might be helpful in nerve healing. Anyone have any insights?

I am wondering whether choline supplement might be helpful in nerve healing. Any...

WiscGuy

•1 year ago

10 Replies

Vitb12 deficiency?

Hi can anyone tell me if my blood test shows deficiency. Be so grateful. I've copied and pasted it.Full blood count Haemoglobin concentration 136 g/L [120.0 -...

Hi can anyone tell me if my blood test shows deficiency. Be so grateful. I've co...

Lulubobs

•1 year ago

20 Replies

Atropic gastritis? Symptoms of B12 deficiency?

Hi all. I've been having some concerning symptoms for about 3 months. It all started with random abdominal pains and low back pain. It is now radiating...

Hi all. I've been having some concerning symptoms for about 3 months. It all ...

vetnurse76

•1 year ago

10 Replies

On the lighter side.

I was thinking that those UK folk seem to be all about more even numbers. They only inject 1 or maybe 1.5 mg and no other dose. I was also thinking how...

I was thinking that those UK folk seem to be all about more even numbers. They o...

WIZARD6787

•1 year ago

5 Replies

b12 high so refusing to give b12 injections even though i had my small bowel removed at 4yrs old but all bloods on fbc are above high

results of tests given

Julie6873

•1 year ago

3 Replies

So Confused . . . . .

I have been dealing with trying to get my B-12 levels up for about three years now. I also have adrenal fatigue and am so sensitive to drugs, supplements and...

I have been dealing with trying to get my B-12 levels up for about three years n...

Hidden

•1 year ago

7 Replies

vitamin overload?

hi! So I’ve just done another post a couple of hours ago about a neurologist saying that I don’t have b12 deficiency but a private specialist saying that I do!...

hi! So I’ve just done another post a couple of hours ago about a neurologist say...

Amyflood246

•1 year ago

30 Replies

Is there a connection between PA and high serum osmolality?

I have diagnosed PA and also high serum osmolality. It was tested to check for diabetes insipidis. Anyone else have this high serum osmolality and PA? Thankyou...

I have diagnosed PA and also high serum osmolality. It was tested to check for d...

Sea-blue

•1 year ago

6 Replies

help!!! Kind of in limbo with a diagnosis!

hi! So sorry if this is a long one… so I’ve been experiencing symptoms of b12 deficiency since 2016. It started with cuts in the corners of my mouth and then...

hi! So sorry if this is a long one… so I’ve been experiencing symptoms of b12 de...

Amyflood246

•1 year ago

41 Replies

It is is easier to be me.

I may be premature and this may be temporary. It came to me 7 days ago and I waited until now to 'declare it.'. The reason is I have improved for 2 years and...

I may be premature and this may be temporary. It came to me 7 days ago and I wai...

WIZARD6787

•1 year ago

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2023

Confused newbie

Pain when injecting

B12 tablets better than injection!

Checking on my understanding of Folic Acid

ANRC-EP

Started IM B12 Loading Injections, Symptoms ? Worse

Body pain

Confused & could do with some advice please...

B12 deficiency. ???

B12 deficiency

PAS Helpline

B12 hydro

B12 injections and vaginal bleeding.

Methycobalamin Powder Needed

Weakness and fatigue after nearly 3 years of injections

All Symptoms could be Neurological?

HELP!! b12 deficiency, small fibre neuropathy and dysautonomia

Neurologist able to tell the difference between PA and MS on an MRI

Where Can I Purchase B12 Ampoules ?

DaphneD

Choline supplements?

Vitb12 deficiency?

Atropic gastritis? Symptoms of B12 deficiency?

On the lighter side.

b12 high so refusing to give b12 injections even though i had my small bowel removed at 4yrs old but all bloods on fbc are above high

So Confused . . . . .

vitamin overload?

Is there a connection between PA and high serum osmolality?

help!!! Kind of in limbo with a diagnosis!

It is is easier to be me.

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