B-complex restarted healing? - Pernicious Anaemi...

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B-complex restarted healing?

MrsTuft profile image
11 Replies

I’ve been SI B12 for a year now since the NHS injections aren’t sufficient these past few years and I crashed terribly after major surgery. I’m significantly better in terms of the neuro symptoms (balance / leg weakness) but the fatigue only got worse and I felt I was going a little backwards with my legs recently. I’ve started taking a bcomplex and it lifts the fatigue and has restarted the healing pains in my legs i had last year. So i guess I needed it? Can anyone relate? Or maybe it just takes ages for fatigue to lift??

(Previously I’d been doing high folate as suggested by another b12 group but this made me poorly. The bcomplex is without b6 as mine is very high from a wholefood diet at a last blood test and I believe that gives me numbness but I noticed that my folate had dropped and my other bvits are low/mid normal range).

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MrsTuft
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Nackapan profile image
Nackapan

Glad you've found a b complex thst works for you to compliment your b12 injections. I eas losing the plot a bit ax in what supplements to take.

Have stuck with going by bloods as far as what can get tested.

Have settled at present alternating on multivits .

Vit d and k2 spray

Low maintenence of iron

Vit c and zinc

On days j don't take a multi vit i take one specifically for vision.

I tried a b complex before but folic acid too high a dose.

Even on 400mcg I went over the top of the range .

Minefield and so individual

MrsTuft profile image
MrsTuft in reply toNackapan

I’m pulsing thr bcomplex a few times a week as daily is too much for me.

Cornwaller profile image
Cornwaller

Hi, Have you come across Antonio Constantini and his work with b1 and fatigue? Might be worth a read?

MrsTuft profile image
MrsTuft in reply toCornwaller

Yes I’ve considered that but working with bcomplex first as they work in synergy. But it’s defo on my list!

In surgery if entonox (nitrous oxide) is used, it can affect absorption of B12.

I don't know what your injections are but I believe methylcobalamin is better than other versions.

Methylcobalamin and adenosylcobalamin blend is better again I believe, but please check this information for yourself. (This exists in liquid form)

Tiredness can be caused by other deficiencies, so it is a challenge sometimes to work things out.

MrsTuft profile image
MrsTuft in reply to

my understanding is that cyano and hydroxo can covert to methyl and andeno objet methyl alone cannot so I’m not sure about that., however I have read that methyl can help particularly with energy so might be worth a go! I monitor my nutrient levels with blood testing so I know the rest are okay. I’m coeliac and prone to malabsorption.

Miss-guineapig profile image
Miss-guineapig

I used to take high folate and was prescribed 5mg but definately don’t now, and never will again. It was appropriate initially but quite detrimental laterally but I didn’t know , it was only that I got a new GP who explained everything, which matched many of the posts on this group. Its Well worth reading posts on here in relation to folic acid, a valuable resource. Wishing you well Mrs Tuft x

MrsTuft profile image
MrsTuft in reply toMiss-guineapig

Yes I’ve read them. It did me no good either but then I wonder if I’ve give too far the other way not even taking a bcomplex hence why I’ve restarted one…

Miss-guineapig profile image
Miss-guineapig

I am the very same as you and that’s what I take now, along with a D3 too x

MrsTuft profile image
MrsTuft

ah that’s reassuring! I think I realise that it’s only the B12 I need in high dose and injected.

Cherylclaire profile image
CherylclaireForum Support

The very high folate suggested is, I believe, a mistake. High folate, unlike B12, can have adverse symptoms.

I would not take high-dose folate unless prescribed short-term by GP and monitored. I had 3 months' worth of folate and ferritin, after b12 injections started for B12 deficiency. Then both folate and ferritin retested - later had to start supplements myself to get back to effective levels as not stabilised. It took about 2 years to get it to stay at useful levels, with the help of GP's advice.

The folate and ferritin were tested initially because, after B12 injections started, I still had hair loss and bleeding gums. Both were found to be low within range.

Like Nackapan , I have struggled to work out what I need and when for myself. Difficult to get GPs to be interested - my usual GP and two of her colleagues have now left the practice.

Tried magnesium salts in bath for lower leg pain but not sure if it really works or not. Lately I have been trying co-enzyme Q10 - as once advised by neurologist - but not sure this is doing much for me either. Can't even really recall what it was supposed to do for me now !

The B12 injections, the vitamin D and Raloxifene on prescription, and K2 - these are the ones that seem absolutely necessary for me. I was found to have osteoprosis of the spine.

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