vibrations

[jeanettelcoffey]

I have developed a vibration in my left groin. Previously I was suspected to have Covid 19 however I dont think my I did as I have Poly myalgia rheumatic and was tapering and the symptoms were very similar to Covid. I was having these strange feelings running up my legs from my feet to the ankles and my feet are tingling. I have the vibration in my left groin. Has any one else had all these symptoms?

[JanD236]

Yes I’ve had similar but mine occurs on my outer thigh. It feels just like having a phone on vibrate in my jeans pocket.

It happens randomly now and then.

[deniseinmilden in reply to JanD236]

Exactly!

[Nackapan]

I've had similar too.Weird and not pleasant

That was early on .

One thing I rarely get now on regular b12 injections.

I don't to date have anything else diagnosed.

Definitely nerve activity i assume fir me involved with B12 deficiency and body re booting

[Sleepybunny]

Hi,

I hope you find answers soon.

Do you also have a diagnosis of PA (Pernicious Anaemia) or B12 deficiency from another cause?

When my symptoms were at their worst, my whole body felt like it was vibrating, very strange. That symptom disappeared after lots of B12 injections but returns if I ever go a long period without a B12 injection. I need far more B12 than NHS will give me so had to resort to treating myself.

I just wondered if you're getting adequate treatment for B12 deficiency.

I have come across articles about people with Long Covid having low levels of B12, Vitamin D and some other nutrients.

May be helpful for you to say in your post where you are in the world as this may get attention from people in the same country. I'm in UK.

PAS (Pernicious Anaemia Society)

Based in Wales, UK. Has some members in other countries.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

B12 Deficiency Info website

b12deficiency.info/

B12 Awareness (US website)

b12awareness.org/

Stichting B12 Tekort (Dutch website with English articles)

stichtingb12tekort.nl/weten...

Two useful B12 books

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society).

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies.

Films and videos about PA and B12 deficiency

PAS conferences

pernicious-anaemia-society....

Films about B12 deficiency

b12deficiency.info/films/

[jeanettelcoffey in reply to Sleepybunny]

Hi Jeanette Coffey here I live in Alice Springs Northern Territory Australia.

[Sleepybunny in reply to jeanettelcoffey]

Hi,

There was a thread started a few weeks ago on the forum that you might find interesting

"Taking Control of PA in Australia"

healthunlocked.com/pasoc/po...

You could search forum posts using term "Australia" which should show other threads/posts started by people in Australia.