New regime : Hi everyone, well I’ve... - Pernicious Anaemi...

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New regime

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Hi everyone, well I’ve come a little way since I last posted.

I’m now taking:

Vitamin D3 5000iu daily

Vitamin K2 100 mcg daily

Folic acid 5 mg per day

Magnesium 200mg two tablets

B6 complex 1 tablet a day

and a B12 injection once a month (was once a week.)

My last tests on Monday came back as:

Vitamin D 73.5 nmol/L Range 50-200

Folate. 45.3nmol/L. Range 4.5-45.3

B12 1476pmol/L. Range 138-652

I know we go by symptoms and not B 12 levels but hard to say if this protocol is working as I’ve had a UTI and have felt rough anyway,

Thoughts anyone ?

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8 Replies
deniseinmilden profile image
deniseinmilden

Looks OK to me!

I'm sorry you've had a UTI and hope you get well again soon. It does seem to be a "thing" of B12 deficiency so make sure you drink at least 1.5 to 2 litres (2 and a half to 3 and a half pints) of liquid per day (tea, coffee, squash, soup, water, juice - everything non alcoholic counts) and ideally more, especially if its hot. If you worry about peeing all the time the secret is to take lots of small sips throughout the day, rather than a glass (or whatever) full at once and be aware of things that are diuretic for you (for me it's coffee and citrus - but with healing, over time, I can tolerate these slightly more too).

I wonder why you decreased your B12 jab frequency? As you say, it's best to go on symptoms rather than figures and I'd suggest that as those B12 figures aren't off the scale (usually above 2000), I'd say there's room for more as most of us who jab to keep symptoms at bay are usually way off the testing scale.

Be aware that if you have been supplementing with the co-factors at a high rate to get you up to those excellent figures it might mean that having got there you can back off slightly to maintain those levels now, rather than continuing to increase ever more.

Well done so far and I hope you feel the benefits soon!

in reply to deniseinmilden

Thanks deniseinmilden for your reply, yes I must admit I am a bit worried about going to once a month injections as would hate to go backwards again! and yes have definitely tried to up my fluid intake after the UTIs I didn’t realise this was possibly to do with the B12 deficiency! When you say back off with the Co factors what would you suggest I cut down , and what to? Thks

deniseinmilden profile image
deniseinmilden in reply to

Thank you for your reply.It's hard to give recommendations just reduce things a bit - maybe lower dose tablets or less per day or miss one every few days or something like that - and see what your next test results come back like. If they are up then it will give you an idea that you can back off further, if down then you can reintroduce a bit more.

You seem to have quite a good handle on things so I think it's OK to trust yourself. If you cut something back and feel worse then put it back up and feel better it will give you the solution!

Good luck with it!

Gambit62 profile image
Gambit62Administrator

5mg folate is a dosage used to treat a deficiency - it isn't recommended as a matinenance dose - 1000mg would be the maximum for a maintenance dose unless advised by a medical professional as it can affect how the processes in your cell use B12 and cycle it into the right form to use in your cells.

in reply to Gambit62

Thanks Gambit62, I’ve only been on 5 mg folate for a couple of weeks, when would you suggest I cut back? Thks

Gambit62 profile image
Gambit62Administrator in reply to

if you weren't deficient when you started taking them I would recommend you cut back now.

Nackapan profile image
Nackapan

I woujd suggest trying 400mcg of folic acid daily now. My daughter hascto do this as s maintenence.

I'm sure the 5mg prescribed was short term only.

Lemon barley eater is said to be good as lines the urethra (barley)

Easy to drink lots of it too .

My mum finds it the best.

She's tried everything!

in reply to Nackapan

Hi Nackapan thanks for replying will try the lemon barley

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