Suggestions for B12 regime: Recent... - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members23,121 posts

Suggestions for B12 regime

LJH50 profile image
5 Replies

Recent blood test shows >1500 b12 (from 11 in Feb) folate 12.4 (6 in Feb) all symtoms have gone. Currently SI once a week with 12 weekly at Drs. Dropped from twice weekly SI one month ago.

Should I stick with what I am doing or SI less frequently?

If symtoms return would that mean my levels are very low again and need to start loading again?

My plan is to have another b12 blood test privately to see where I am on new routine.

Any advice greatly appreciated.

Written by
LJH50 profile image
LJH50
To view profiles and participate in discussions please or .
Read more about...
5 Replies
LJH50 profile image
LJH50

Another b12 blood test in 3 months that should say.

wedgewood profile image
wedgewood

If you want to inject less frequently than once a week , try once every 2 weeks . If symptoms start to come back , return to weekly again . You know that you cannot overdose. Your B12 blood results are immaterial . The guide lines state that b12 blood tests are unnecessary once injections have begum. It is your symptoms that are the crucial indicators, NOT the blood results . We all have different requirements for regularity of injections . When injecting , the results will always be high . Whatever it takes to keep symptoms at bay is the order of the day ! Best wishes .

Nackapan profile image
Nackapan

If I got sympyom free j wouldn't change a thing!

LJH50 profile image
LJH50 in reply to Nackapan

I know but I find the injections really painful so if I can space the gap a little I will. Will try one every 10 days and see how I get on.

Adsypadsy profile image
Adsypadsy in reply to LJH50

If you are feeling generally well and symptom free, why not try going as long as you can from your last B12 jab until symptoms start to return. That should give an indication of how frequently you need to SI. Take a jab as soon as symptoms return then plan your next one slightly sooner than the time it took for the symptoms to return and hopefully you shouldn't be too far away from your personal needs. It may take a few tweaks until you find your optimum frequency.Apparently you can't overdose on B12 but you don't want to be injecting yourself more frequently than is necessary.

I found that I started feeling a bit run down around 5-6 weeks after my previous jab, then other symptoms soon followed. I now SI every 4 weeks (missing out the week when I get my official jab at GP treatment room) and currently that's working for me.

Hopefully you will find what's right for you.

You may also like...

Treatment Regime For B12 def. with neurological symptoms

on here in respect of the standard treatment of b12 deficiency where there appears to be no...

b12 supplement suggestions

hi all, i am currently supplementing b12 through b complex effervescent drinks which have about...

Purchasing B12 online - suggestions?

Hello everyone! My doctor has prescribed B12 for my PA and my insurance won't cover it. Does anyone...

B12 deficiency but doctor now suggests it's Parkinsons because symptoms are no better in a year.

going further down hill. He had 4 blood tests in about 18 months with Drs saying there was nothing...

Functional B12 problem, advice wanted

SI Serum b12, active b12, IF/parital cell antibody tests were normal. From my normal B12 levels,...