Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2021

I have noticed a great similarity between PA and other B12 deficiency, and Long...

jaybirdxNHM

•3 years ago

2 Replies

SIBO and Yakult

After reading an article/study I have been taking Yakult now for over 4 weeks for what I thought might be SIBO (diarrhoea for many years which made me feel...

After reading an article/study I have been taking Yakult now for over 4 weeks fo...

Moggy1234

•3 years ago

15 Replies

Hydroxocobalamin and nervousness

Hi all, I’ve recently increased my hydroxocobalamin injections to EOD following neurological symptoms and I’ve noticed a huge wave of nervousness and anxiety...

Hi all, I’ve recently increased my hydroxocobalamin injections to EOD following...

User2020-1

•3 years ago

33 Replies

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Ampoul openers for B12 liquid - buy them on Amazon.

Someone who was starting to self inject was worried about breaking the ampoul when trying to open it for injecting - if you go on to Amazon and look for ampoul...

Someone who was starting to self inject was worried about breaking the ampoul wh...

xeena

•3 years ago

11 Replies

Can B12 affect you liver

Hi I have been having B12 injections for the last 7 years.For the past 3 years I have needed them more often so I have been having injections every 6 weeks. I...

Hi I have been having B12 injections for the last 7 years.For the past 3 years I...

Chocolate41

•3 years ago

4 Replies

Abdominal muscle spasms

I began experiencing upper abdominal muscle spasms about 5 days ago along with stomach gurgling. Has anyone else experienced this? I had a colonoscopy in...

I began experiencing upper abdominal muscle spasms about 5 days ago along with s...

Pain12345

•3 years ago

3 Replies

Diagnosis Question - seeking advice

Hi everyone, I'm new here and could use some advice. If you were diagnosed with PA, or B12 deficiency, how did you get tested? I do not live in the US or UK so...

Hi everyone, I'm new here and could use some advice. If you were diagnosed with ...

Cherry_Angel

•3 years ago

7 Replies

Need to take the plunge with SI, can't keep waiting for progress! But should I try to get any particular bloods first?

Me, again. Thanks to all who have been so helpful. I have decided that I need to find my big girl pants, take the plunge and just start SI to see if it does...

Me, again. Thanks to all who have been so helpful. I have decided that I need to...

eclilley

•3 years ago

12 Replies

Any thoughts on test results?

So I have been treating pernicious anemia for around a year and have felt really great up until the past couple of days. My arms and legs have been...

So I have been treating pernicious anemia for around a year and have felt really...

Dakota17777

•3 years ago

2 Replies

I finally saw the neurologist! Well, more accurately I saw his registrar!

The conclusion is that I don’t have any neuro problems. All the tests she did for balance, reflexes & memory were all normal! She had no answers as to why I...

The conclusion is that I don’t have any neuro problems. All the tests she did fo...

CupCake5

•3 years ago

32 Replies

Do doctors believe us?

I’m a male 64, Diagnosed at 60 with PA. Earning a good living as a HGV tramper(sleeping in your truck) Could not understand why I was so shattered, I was used...

I’m a male 64, Diagnosed at 60 with PA. Earning a good living as a HGV tramper(s...

shaunbaxter82

•3 years ago

18 Replies

Heart Palpitations and anxiety

Has anyone experienced heart palpitations with this deficiency?

SeekingHope10

•3 years ago

37 Replies

B12 deficiency

My B12 and Folate is borderline low in range so i supplemented with B12 better you oral spray and a B complex. I started feeling worst body aches and pains...

My B12 and Folate is borderline low in range so i supplemented with B12 better y...

Odinil

•3 years ago

3 Replies

Breakthrough

Further to my last post on being told by nurse it was illegal to give jabs more than 8 weekly I duly turned up for my jab a week later than I should have had...

Further to my last post on being told by nurse it was illegal to give jabs more ...

DeeD123

•3 years ago

9 Replies

Test results query.

Good morning all. So after trying Probiotics a while ago without any improvement, (thank you Nackapan!!) my partner ordered a hair sample test for me. It shows...

Good morning all. So after trying Probiotics a while ago without any improvement...

Ritchie1268

•3 years ago

2 Replies

Pivmecillinam

Anyone had this tablet and it stick in their throat. I thought I was going to die

Anyone had this tablet and it stick in their throat. I thought I was going to di...

Hedgehogs15

•3 years ago

11 Replies

Self injecting b12

Helloo I have been having facial pain that my gp didn't know how to treat, after seeing more doctors and taking medication that did no effect whatsoever I know...

Helloo I have been having facial pain that my gp didn't know how to treat, after...

Hidden

•3 years ago

34 Replies

CONUNDRUM

Hello, this is my first post. Here's a conundrum. Can anyone out there please help out? A 22 year old patient who last month tested positive for intrinsic...

Hello, this is my first post. Here's a conundrum. Can anyone out there please he...

Chenders

•3 years ago

27 Replies

Please help me

Does ANYONE know of a doctor in USA that is knowledgeable about pernicious anemia? I've been to so many doctors. You just wouldn't believe how many don't...

Does ANYONE know of a doctor in USA that is knowledgeable about pernicious anem...

Hidden

•3 years ago

28 Replies

Badly treated B12D(/PA?), can heart attack risk increase??

A question relating to my brother this time. Can low B12 and not having it treated properly put you at greater risk of heart attack? His B12 found at c.80, IF...

A question relating to my brother this time. Can low B12 and not having it treat...

eclilley

•3 years ago

13 Replies

Burning tongue or burning mouth

If any of you have burning tongue or mouth syndrome you might want to check this out as it helped me. Many years ago when I was doing some research for...

If any of you have burning tongue or mouth syndrome you might want to check this...

Moggy1234

•3 years ago

2 Replies

Birthday present .

After an unnecessary hoo ha of tracing my prescription I'd been assured was ready I went to pay. No charge I wax told?? They grinned abd said I'd reached 'the...

After an unnecessary hoo ha of tracing my prescription I'd been assured was rea...

Nackapan

•3 years ago

24 Replies

How long do PA symptoms last after the loading doses?

I've just had my loading doses (6 over two weeks) after my B12 being as low as 79. I have near constant muscle twitches all over my body (neck, stomach, hands,...

I've just had my loading doses (6 over two weeks) after my B12 being as low as 7...

Holly444

•3 years ago

7 Replies

BNF b12 guidelines

My nurse told me last time I had my jab that gp couldn’t prescribe more frequently than 8 weekly because it against the law and this is stated in the BNF. Is...

My nurse told me last time I had my jab that gp couldn’t prescribe more frequent...

DeeD123

•3 years ago

6 Replies

Mouth ulcers & bleeding

Has anyone else suffer from bad mouth ulcers & / bleeding gums?? Mine has got worse lately plus I’m soooo tired , weak … etc 😿 I also keep tensing my jaw...

Has anyone else suffer from bad mouth ulcers & / bleeding gums?? Mine has got w...

Queeniz

•3 years ago

10 Replies

B12 and liver issues

Has anyone experienced any liver issues with high amounts of injected B12? I have been experiencing pain/odd pressure in the area of my liver. It’s been on...

Has anyone experienced any liver issues with high amounts of injected B12? I ha...

Ctadds1

•3 years ago

10 Replies

Oral Lichen Planus

Oral Lichen Planus I would like to hear of other people with this condition

Rose1bud

•3 years ago

2 Replies

High B12 without injections - Symptoms of deficiency

TL;DR: Has anyone had levels of B12 above the standard reference range (while never having had any B12 injections) before getting diagnosed with PA? Hi, over...

TL;DR: Has anyone had levels of B12 above the standard reference range (while ne...

pk97

•3 years ago

19 Replies

Purchase methylcobalamin

Does anyone know which German Pharmacist sell methylcobalamin?

Gudge66

•3 years ago

5 Replies

Possible Pernicious Anemia?Blood results

So due to my recent blood results, my doctor ordered a b12 antibody test (Intrinsic factor I think). I had a look at my recent bloods, and as far as I can tell...

So due to my recent blood results, my doctor ordered a b12 antibody test (Intrin...

XxAnyaxX

•3 years ago

11 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2021

Similarities.

SIBO and Yakult

Hydroxocobalamin and nervousness

Ampoul openers for B12 liquid - buy them on Amazon.

Can B12 affect you liver

Abdominal muscle spasms

Diagnosis Question - seeking advice

Need to take the plunge with SI, can't keep waiting for progress! But should I try to get any particular bloods first?

Any thoughts on test results?

I finally saw the neurologist! Well, more accurately I saw his registrar!

Do doctors believe us?

Heart Palpitations and anxiety

B12 deficiency

Breakthrough

Test results query.

Pivmecillinam

Self injecting b12

CONUNDRUM

Please help me

Badly treated B12D(/PA?), can heart attack risk increase??

Burning tongue or burning mouth

Birthday present .

How long do PA symptoms last after the loading doses?

BNF b12 guidelines

Mouth ulcers & bleeding

B12 and liver issues

Oral Lichen Planus

High B12 without injections - Symptoms of deficiency

Purchase methylcobalamin

Possible Pernicious Anemia?Blood results

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