injections,methylcobalamin drops v cyanocobalamin ?

[Mollieharry]

As happening to many other people.gp has informed me that injections have stopped and gave me a prescription for 50ug 3 times daily cyanocobalamin tablets.at the moment I take methylcobalamin high strength drops daily to top up my 3 month injections.they said they would retest once their back to normal.i don’t really want to be a guinea pig,so I’m wondering if self injecting would be a better option.i’m just afraid my symptoms go back to the way they were last year ,when they blamed everything on my rhuemotoid flaring when it was actually low vit b 12.

[Nackapan]

If you've tried tablets only before I would fight your corner. List symttons ect write yo Gp. As on many posts before . This has to stop .

Meanwhile self inject if they wont give you a prescription you can buy it. I eventually got one but no needles ect. They can be bought .I collected my b12 yesterday. I'm prescribed 2 weekly and I also do get an IM at the surgery 4-6 weekly at present.

I asked for more ampoules this time as 5 for £9.15 expensive gp responded to my letter and prescribed 15. This was great until I saw the expiry date. OCT. 2020

got round it though with an iou.from pharmacy.

I personally wanted it on my notes I self inject and have it 2 weekly.

I however had already vbought some. Help from here!!

So am actually trying 5-7 days at present. I'm feeling more in control.

Waiting for more improvements . Difficult in this heat and recent dental work and antibiotics to tell at present.

Exp. 2022 on bought ones!!

So if you do get a prescription watch the dates. .

[Sleepybunny]

Hi,

Have you tried to challenge the GPs decision?

I wrote very detailed replies on another forum thread with links to B12 deficiency symptoms lists, causes of b12 deficiency, info about tests for PA, list of B12 books, list of B12 websites, more UK B12 documents, letters to GP about B12 deficiency and other B12 info including hints on dealing with unhelpful GPs, which you might find helpful.

healthunlocked.com/pasoc/po...

I left a detailed reply about impact of pandemic on B12 treatment in UK in next link.

healthunlocked.com/pasoc/po.....

I am not medically trained.

[Mollieharry in reply to Sleepybunny]

Thanks nackpan and sleepy bunny,I’m just weighing up my options at the moment.ive been reading and watching a lot lately on it and can’t believe how little some gps know about this but getting them to listen is another thing.

[fbirder]

If the drops work then it means you can absorb B12 from the gut and do not need injections at all.

[Chloe1234ava]

Hi can you tell me your symptoms from Needing b12 Please.

[Mollieharry in reply to Chloe1234ava]

Symptoms started with terrible fatigue,light headedness burning feet,tingling up legs,weak,no appetite which led to big weight loss,anemic( the gps kept saying it was anemia of chronic disease)said my rhuemotoid was not controlled,they eventually contacted rhuemotology and consultant said check vit B12b.

[Chloe1234ava]

I’ve got terrible fatigue, struggling to walk because my feet feel numb. The doctor has suggested it being b12

[Nackapan in reply to Chloe1234ava]

Hope you get tested soon

[Chloe1234ava in reply to Nackapan]

It’s come back normal to low but started a vitamin yesterday. Is numb feet and hands a symptom for anyone else?

[Nackapan in reply to Chloe1234ava]

Give the oral tablets a go if yoiuve not been prescribed injections. Symptoms sound like b12 but overlap with many other things. Tiy can have a normal level and be b12 deficient. Go by symptoms.

Did you have a full blood count including thyroid? Iron folate? Vit d.

My husband was 'borderline low ' I thought low .

It went up to the mid 300's from 180 ion a low b12 supplement .He now takes daily. He eats a mixed diet including meat and diary.

Try taking it 3x over the day as you may benefit more.

If I'd had a chance I wouldve tried tablets first as do work if dietary.

I had too many symptoms and count too low . Doctor put me on injections.

As it turns out I cant seem to absorb oral form .

I wish I could.

It appears to be te case if for some reason you are low on b12 maybe it's just you can absorb but not enough or not eating enough to fill requirements. Stock up the body with a supplement ot injection and your body can use it store it in the liver which releases it when needed and reabsorb it to use but needs top ups.

Others need a supple regularly from injections into your bloodstream. as cant absorb it via the stomach. Can store but cant absorb and use it once released. Either PA or absorbtion problem.

Simply put as it seems so much more to be researched.

I've tried everything to absorb. I've been told de dietary.

I wish it was. It isnt.

Not tested intrinsic factor . Have you had that test?

I wad given the parietal cell antybody test that was negative. Apparently not used now for a diagnosis of PA

Minefield

[Sleepybunny in reply to Chloe1234ava]

Hi,

Might be worth you starting your own thread on the forum as you'll then get more replies.

Link about "What to do next" if B12 deficiency suspected or newly diagnosed.

b12deficiency.info/what-to-...

Please look at my detailed replies in this link to another forum thread.

healthunlocked.com/pasoc/po...

[kittyflowers]

Self injecting is the way to go. It's so easy you'll wonder why you haven't taken control before.

[Nackapan in reply to kittyflowers]

I agree but took 18 months for me to get there .

I also think good to stay in ' the NHS system and recorded on your notes if possible. Or do both like many of us do.

That's me though