Blood tests advice please: Can anyone... - Pernicious Anaemi...

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Blood tests advice please

Bunny12345678 profile image
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Can anyone advise me please as to if they think I need hydroxycobalamin injections or oral supplement please? I have a lot of symptoms and have been off work ill since December. I've attached my recent blood tests. I'm getting nowhere with my gp...I have tinnitus, shortness of breath, fatigue, bowel problems, pleuritic aches, raynauds, all developed since December.

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Bunny12345678
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fbirder profile image
fbirder

I would try oral B12 for a few months to see if they help with the symptoms and B12 levels.

Sleepybunny profile image
Sleepybunny

Hi,

Have a look at these symptoms lists.

Symptoms of B12 Deficiency

pernicious-anaemia-society....

b12deficiency.info/signs-an...

b12d.org/admin/healthcheck/...

Link about "What to do next" if B12 deficiency suspected

b12deficiency.info/what-to-...

Have you at least been tested for PA and Coeliac disease?

There are many potential causes of B12 deficiency.

Risk Factors for PA and B12 Deficiency

pernicious-anaemia-society....

b12deficiency.info/what-are...

b12deficiency.info/who-is-a...

What's your diet like?

Do you eat plenty of b12 rich food eg meat, fish, eggs, dairy, foods fortified with b12?

If yes to B12 rich food then dietary B12 deficiency is unlikely and it's more likely that any B12 deficiency symptoms are due to absorption problems in the gut.

BSH Cobalamin and Folate Guidelines (UK document)

b-s-h.org.uk/guidelines/gui...

NICE guidelines Coeliac Disease (UK document)

nice.org.uk/guidance/ng20/c...

Coeliac Blood Tests

coeliac.org.uk/coeliac-dise...

Have you considered joining PAS (Pernicious Anaemia Society)?

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

Blog post about how PAS can support PAS members seeking PA diagnosis

martynhooper.com/2017/06/24...

I wrote very detailed replies on another forum thread with more info eg tests for PA, list of B12 books, list of B12 websites, more UK B12 documents, letters to GP about B12 deficiency and other B12 info including hints on dealing with unhelpful GPs, which you might find helpful.

healthunlocked.com/pasoc/po...

If you're in UK, be aware that the pandemic is impacting patients B12 treatment.

I left a detailed reply about impact of pandemic on B12 treatment in UK in next link.

healthunlocked.com/pasoc/po.....

I am not medically trained.

Bunny12345678 profile image
Bunny12345678 in reply toSleepybunny

Thankyou very much for all of this information. I've just bought some Floradix to get me started. I've struggled to find the UK advice on what's deemed as low. My results printout states that I have insufficient levels but I can't find anything anywhere that supports this.

Sleepybunny profile image
Sleepybunny in reply toBunny12345678

Hi,

I suggest you search online for reference ranges for B12 blood tests in your part of UK.

Your B12 results are using pmol/L. Sometimes ref ranges use ng/L.

If you suspect you have B12 deficiency but your diet is B12 rich then be aware that supplementing may make it more difficult to get a confirmed diagnosis.

See next link.

b12deficiency.info/what-to-...

Link about writing to GP if symptomatic for B12 deficiency with an in range serum B12 result.

b12deficiency.info/b12-writ...

HopetoB12better profile image
HopetoB12better

Have MMA tested! Methylmalonic acid. With low to low normal b12 which you have, if MMA is high you might need injections. I did. I had awful symptoms. Couldn’t balance or walk a straight line, pins and needles in fingers and toes, thigh and calf pain. After loading doses of b12 my symptoms improved a ton!

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