Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for September 2019

Nausea and b12??

It’s a week until my b12 injection, and all week I have felt so nauseous, can low b12 make you feel this way ?? Thanks in advance

It’s a week until my b12 injection, and all week I have felt so nauseous, can lo...

Elleeee

•5 years ago

2 Replies

Red patches on face and around eyes

Hi I have red patches on my face and around my eyes.They don’t itch and they are not sore.Some days they are worse than others.Could it be the B12 that is...

Hi I have red patches on my face and around my eyes.They don’t itch and they are...

Chocolate41

•5 years ago

6 Replies

High b6 related to low folic acid level

Has anyone had high b6 related to low folate levels. My b6 level is 113.6 high without supplements. I was told low folate is probably the cause

Has anyone had high b6 related to low folate levels. My b6 level is 113.6 high w...

CW12

•5 years ago

4 Replies

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GP has stopped my NHS B12 injections because I self-inject

I have just received a letter informing me that it has been decided by the practice that, because I self-inject, my NHS B12 injections will be stopped, unless...

I have just received a letter informing me that it has been decided by the pract...

Cherylclaire

Forum Support•5 years ago

49 Replies

Itchy legs

Hi, So I was diagnosed with B12 deficiency early last year and I’ve been on 12 weekly injections since. I had my most recent one about 3 weeks ago. I really...

Hi, So I was diagnosed with B12 deficiency early last year and I’ve been on 12 ...

JodieLouise

•5 years ago

16 Replies

rant regarding neurologist appt, so ignore if you don’t want to read

I need to vent somewhere and if you don’t like it please scroll on. I feel that this is a safe place and am struggling with my recent neurologist appt. anyone...

I need to vent somewhere and if you don’t like it please scroll on. I feel that ...

JennaShi

•5 years ago

19 Replies

Healing, at last...

I just wanted to post as I’m finally feeling a little bit more like my old self!!. I’m not 100% yet but I’m getting there, I’m healing 🙏🏻. I’ve had 1 week...

I just wanted to post as I’m finally feeling a little bit more like my old self!...

SMXX

•5 years ago

7 Replies

Treatment every other day

Can any one explain to me, is there likely to be any more neurological improvement after the ' every other day' injections stop. My improvement seems to...

Can any one explain to me, is there likely to be any more neurological improvem...

Damseltree

•5 years ago

9 Replies

B12 safe to use past best before date ?

Hi all, Just noticed my supply of B12 Ampules are past the date stamped on box. Can anyone advise if safe to use or could they be harmful ? Unfortunately...

Hi all, Just noticed my supply of B12 Ampules are past the date stamped on box...

Barry1955

•5 years ago

3 Replies

B12 and Myasthenia Gravis

I have been on regular B12 injections for close on 15 years and doing very well. In January 2018 i was diagnosed with generalised Myasthenia Gravis and I was...

I have been on regular B12 injections for close on 15 years and doing very well....

maridunian

•5 years ago

4 Replies

B12 deficiency

I was diagnosed as b12 deficient over four years ago and it was assumed, therefore, that I had PA and I have been on b12 injections ever since. I have none of...

I was diagnosed as b12 deficient over four years ago and it was assumed, therefo...

Alfabeta

•5 years ago

2 Replies

Update re GP

GP has now looked at guidelines and agrees i shouldnt be tested for b12 again and that i should get treatment every two months. Regarding every other day...

GP has now looked at guidelines and agrees i shouldnt be tested for b12 again an...

Luac

•5 years ago

2 Replies

MS Hug

What can anyone tell me about this symptom. It’s like a band around my rib cage which is fine in the morning and more annoying as the day goes on and goes away...

What can anyone tell me about this symptom. It’s like a band around my rib cage ...

Gsmandin

•5 years ago

11 Replies

Acne

I’m getting acne type symptoms on my scalp a few days after an injection. Does anyone know if it’s just injections that do this, or does the sublingual spray...

I’m getting acne type symptoms on my scalp a few days after an injection. Does a...

Lurcher-lady

•5 years ago

8 Replies

CliveAlive

Was wondering if anyone knew anything of CliveAlive? He’s usually very active in this community, but I haven’t seen his comments or posts in a while. I did a...

Was wondering if anyone knew anything of CliveAlive? He’s usually very active in...

loves-dogs

•5 years ago

10 Replies

Can I have PA (pernicious anemia) even with normal B12 amount test results?? I have many of the symptoms!! plz help

Hi im new to this forum but im looking for advice to what im experiencing For the last year and a half Ive been experiencing some of the symptoms like of PA...

Hi im new to this forum but im looking for advice to what im experiencing For th...

izaldumbide

•5 years ago

8 Replies

Vitamin B Strong tablets

Hello there, I have PA, diagnosed in 2012. I've had the B12 injections since every 12 weeks. Along with the injections, I have been prescribed Vitamin B...

Hello there, I have PA, diagnosed in 2012. I've had the B12 injections since ev...

StaffsLass

•5 years ago

4 Replies

Positional sense - arms. Help!

Hi all, I’m wondering if anyone has had a loss of positional sense particularly in arms. My arms feel heavy and odd, like I almost can’t feel where they are...

Hi all, I’m wondering if anyone has had a loss of positional sense particularly ...

avock26

•5 years ago

10 Replies

Help with b12

Hi. I don't have anemia, just low in b12. My doctor recommended I take 1 shot a week for the next 10 weeks. I felt great after I got the injections at the...

Hi. I don't have anemia, just low in b12. My doctor recommended I take 1 shot a ...

Hidden

•5 years ago

7 Replies

Unusually high dose B12 supplement

Someone has just mentioned the product below. (As with most things people are trying to flog, easy to find by searching - and I do not want to put a link and...

Someone has just mentioned the product below. (As with most things people are tr...

helvella

•5 years ago

16 Replies

Diet changes?

Hi guys Total newbie here- diagnosed this week with b12 level 164 & folate below 2. 2 questions.., First- is it worth trying to change diet to eat more b12...

Hi guys Total newbie here- diagnosed this week with b12 level 164 & folate belo...

Loucotty

•5 years ago

5 Replies

Above range Active b12

I’m asking some advice for my friends daughter who I’m convinced has a b12 problem. 5 yrs ago she was very ill and diagnosed with CF( (all started after a trip...

I’m asking some advice for my friends daughter who I’m convinced has a b12 probl...

Vicky2822

•5 years ago

5 Replies

Finally a diagnosis not B12 def

sorry for the long absence, it dawned on me I should post my story in case someone else benefits. I was finally diagnosed after 2 1/2 years. although I did...

sorry for the long absence, it dawned on me I should post my story in case someo...

lunez22

•5 years ago

6 Replies

Worse after b12 injections

My husband has just finished 6 loading doses of b12. His blood result was 160 and apart from the injections no further tests were deemed necessary by gp. His...

My husband has just finished 6 loading doses of b12. His blood result was 160 an...

Auntyp62

•5 years ago

13 Replies

B12 & MMA Test result

Following on from my last post I have my MMA results, photo attached. I will put my most recent Thyroid test results which include active B12 although I have...

Following on from my last post I have my MMA results, photo attached. I will p...

jamjar67

•5 years ago

8 Replies

B12 & MMA Test Result

Continuing from my previous post I now have received my test results. Does this result conclude I don’t have a B12 issue? I have been supplementing high...

Continuing from my previous post I now have received my test results. Does this ...

jamjar67

•5 years ago

9 Replies

Can or does stress cause an increased need for B12?

I’m putting a house on the market and it’s been an insane amount of stress, much more than ever before. As it goes on I’m noticing more frequent muscle...

I’m putting a house on the market and it’s been an insane amount of stress, much...

loves-dogs

•5 years ago

8 Replies

Headaches after B12

Anyone suffer with headaches and flushes after B12 injections? I have noticed headaches and hot flushes that last at least 2 weeks after I am past the...

Anyone suffer with headaches and flushes after B12 injections? I have noticed h...

lilly60

•5 years ago

4 Replies

Blood pressure and pain.

Hi all, I just wondered if anyone experienced excruciating pain whilst taking their blood pressure. I do, to the point of not wanting to do it, and it might...

Hi all, I just wondered if anyone experienced excruciating pain whilst taking th...

Mannequin18

•5 years ago

11 Replies

Travel?

Hi can you travel with very low levels of iron ? Hemoglobin normal iron. Extremely low 7.6 reference range (4.6/204)

Hi can you travel with very low levels of iron ? Hemoglobin normal iron. Extreme...

Reemfali

•5 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2019

Nausea and b12??

Red patches on face and around eyes

High b6 related to low folic acid level

GP has stopped my NHS B12 injections because I self-inject

Itchy legs

rant regarding neurologist appt, so ignore if you don’t want to read

Healing, at last...

Treatment every other day

B12 safe to use past best before date ?

B12 and Myasthenia Gravis

B12 deficiency

Update re GP

MS Hug

Acne

CliveAlive

Can I have PA (pernicious anemia) even with normal B12 amount test results?? I have many of the symptoms!! plz help

Vitamin B Strong tablets

Positional sense - arms. Help!

Help with b12

Unusually high dose B12 supplement

Diet changes?

Above range Active b12

Finally a diagnosis not B12 def

Worse after b12 injections

B12 & MMA Test result

B12 & MMA Test Result

Can or does stress cause an increased need for B12?

Headaches after B12

Blood pressure and pain.

Travel?

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