Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for September 2019

B12 low told to start oral treatment

Hi I went to see the nurse recently as I was loosing lots of hair, felt tired all the time and just felt like something was off. I have been diagnosed...

Hi I went to see the nurse recently as I was loosing lots of hair, felt tired al...

Pugladymum

•5 years ago

13 Replies

GP does not believe me

It is so frustrating that when I complain of pain I am sent to Radiology and x-rays prove that nothing is broken. After my B12 injections those pains...

It is so frustrating that when I complain of pain I am sent to Radiology and x-r...

tvellepern

•5 years ago

9 Replies

B12 deficiency not treated

I am new to this website and do not know if I have PA? Went to see Gp in June 2019 as feeling worn out,dizzy spells and generally feeling unwell. (taking into...

I am new to this website and do not know if I have PA? Went to see Gp in June 20...

djtw

•5 years ago

11 Replies

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My doctor told me injections less than 10 weeks apart can be dangerous!

Hi, this is my first post, although I have been reading and soaking up all the very informative advice the lovely people on here have posted. I do apologise...

Hi, this is my first post, although I have been reading and soaking up all the v...

Newcastlelover

•5 years ago

19 Replies

B12 results

I have had FBC and B12 tested for various reasons. I have got pernicious Anaemia. My B12 was 805 only six weeks after my last injection. My new GP has been...

I have had FBC and B12 tested for various reasons. I have got pernicious Anaemia...

morgan45

•5 years ago

2 Replies

Does taking oral B12 bias a B12 test high for someone with PA?

Maybe a dumb question but does taking oral B12 bias a B12 test high for someone with PA? My doc has asked me to try oral B12 prior to my next re-test to "see...

Maybe a dumb question but does taking oral B12 bias a B12 test high for someone ...

AirAl

•5 years ago

6 Replies

"Unnecessary B12 shots costing Ontario millions" In news today

That's expensive!!! https://www.cbc.ca/news/health/unnecessary-vitaminb12-shots-1.5291960

That's expensive!!! https://www.cbc.ca/news/health/unnecessary-vitaminb12-shots...

Ritchie1268

•5 years ago

15 Replies

20 months and still on alternate day injection still neuro symptom present ....anyone here who suffer more than me...curious😫

😪

Roshan0001

•5 years ago

4 Replies

At what stage do people change over to self-injecting?

Hi folks, hope you can give me some advise. Blood test in April 2016 showed B12 of 203 (145-569pmol/l). GP no help, so started self-treated with 3000mcg/day...

Hi folks, hope you can give me some advise. Blood test in April 2016 showed B12 ...

Hidden

•5 years ago

5 Replies

Happier after seeing consultant today

Saw a really good Oral Medicine consultant today who spent a good hour and a half with me. I showed him my photos - tongue, throat and mouth: like the ones I...

Saw a really good Oral Medicine consultant today who spent a good hour and a hal...

Cherylclaire

Forum Support•5 years ago

25 Replies

Success — Short-lived

Drs appointment today following 2 weeks of every other day injections... said he’s stopping them due to neuro symptoms and won’t have another for 2 months!! I...

Drs appointment today following 2 weeks of every other day injections... said he...

SMXX

•5 years ago

10 Replies

Frustrated!

I’m so frustrated, I had B12 levels of 179 and was given the 6 injection loading dose at the end of June. I was told I’d need injections every 3 months...

I’m so frustrated, I had B12 levels of 179 and was given the 6 injection loading...

Yogijo

•5 years ago

12 Replies

Is this a waste of NHS money?

I was in my local Boots the other day for something & the Pharmacist called me over as she knows me from the days when I had to go their daily. "We have a...

I was in my local Boots the other day for something & the Pharmacist called me o...

Ritchie1268

•5 years ago

12 Replies

Discontinuing B12 injections.

My mother had PA. According to parietal cell and intrinsic factor tests, I don't. My B12 was low but at the time I was taking omeprazole. If I had a blood test...

My mother had PA. According to parietal cell and intrinsic factor tests, I don't...

ABC852031

•5 years ago

6 Replies

Still feeling ill

Hi new to this, about 2 and half months ago after feeling ill for months and after Several trips to the doctors I finally got tested for b12 and came back I...

Hi new to this, about 2 and half months ago after feeling ill for months and aft...

Dolphins19

•5 years ago

11 Replies

Halfway through loading doses feeling unwell

Hi all , I'm just about to have my 4th loading dose of b12 of 6. Last week during my first injections I started to feel very fatigued mild shortness of breath...

Hi all , I'm just about to have my 4th loading dose of b12 of 6. Last week durin...

Gmanfooty

•5 years ago

7 Replies

Gp appmnt 😫

Hi everyone, first time posting on here. I have an appmnt with GP tomorrow and i know i wont be able to fully explain to him how i'm feeling. I had bloods done...

Hi everyone, first time posting on here. I have an appmnt with GP tomorrow and i...

Magtee

•5 years ago

22 Replies

Hairloss - very worried 😧

Hello All, I am regular poster on the thyroid forum but this is my first post here! My question is has anyone experienced hairloss due to very low B12 and...

Hello All, I am regular poster on the thyroid forum but this is my first post he...

Sarahlouise1980

•5 years ago

20 Replies

Best absorbed iron for people with gastric sensitivity

Anything tried with success please. This is for a family member who has regular b12 injections for deficiency due to malabsorbtion we think. Low ferritin 10...

Anything tried with success please. This is for a family member who has regul...

Nackapan

•5 years ago

27 Replies

Advice needed - could these results mean possible pernicious anaemia?

I am in a quest to find out what is going on with my body - whilst waiting (rather a long time) for a neurology appointment to come though. I am suffering with...

I am in a quest to find out what is going on with my body - whilst waiting (rath...

meggiemog

•5 years ago

4 Replies

Oral B12 Maintenance dose

I heard a lot about B12 injection loading doses and then the maintenance dose ( which goes on every 2nd/3rd month) but what should be the maintenance oral...

I heard a lot about B12 injection loading doses and then the maintenance dose ( ...

Riseup01

•5 years ago

4 Replies

Thank you

I just want to say I’m I’m very thankful to find this community of people going through the same thing. All responses have been thoughtful. It is helping...

I just want to say I’m I’m very thankful to find this community of people going ...

CW12

•5 years ago

4 Replies

IF Negative after cutting alcohol, B12 descending?

I just put most of this in my profile for convenience, but thought I'd post to ask a couple questions. Short version of next two paragraphs: Feb-18 B12...

I just put most of this in my profile for convenience, but thought I'd post to a...

AirAl

•5 years ago

10 Replies

Recovery

Did any one have an initial b12 level of around 230 low 200s. What were you neurological symptoms ? How long before you started to feel better? We’re you...

Did any one have an initial b12 level of around 230 low 200s. What were you ne...

CW12

•5 years ago

18 Replies

Vision after B12

I have been on B12 injections for 63 days now and I'm starting to notice clear trends. For sure, my vision gets very blurry and disturbed immediately after...

I have been on B12 injections for 63 days now and I'm starting to notice clear t...

Andrianna

•5 years ago

9 Replies

Gastroscopy

Hello everyone, I am having this heart palpitation after eating a meal from the last 7 months now. Cardiologist checked my heart (ECG,ECHO, HOLTER) everything...

Hello everyone, I am having this heart palpitation after eating a meal from the...

ShaneWarne

•5 years ago

3 Replies

Vision Technology

I've managed to do the journey and get a full assessment done for precision tinted glasses . It took 1 . 3/4hrs very thorough. I've been prescribed grey/green...

I've managed to do the journey and get a full assessment done for precision tint...

Nackapan

•5 years ago

3 Replies

a packet of love hearts with my delivery of supplies

Hi everyone, l just received my needles syringes etc from Medisave to enable me to SI and in the box was mini packet of love heart sweets... it’s the little...

Hi everyone, l just received my needles syringes etc from Medisave to enable me ...

Carol130764

•5 years ago

13 Replies

Weakness

Hi I was diagnosed in the beginning of August with pernicious anemia. My most persistent symptom has been weakness in my right arm. Leg pain in right leg. I...

Hi I was diagnosed in the beginning of August with pernicious anemia. My most p...

CW12

•5 years ago

5 Replies

EYES.

Can you please help me ,my eye keep watering,i tried a few different drops,I need to get a soloution,tell me please thanks Davjd Leigh.

Can you please help me ,my eye keep watering,i tried a few different drops,I nee...

davidleigh

•5 years ago

12 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2019

B12 low told to start oral treatment

GP does not believe me

B12 deficiency not treated

My doctor told me injections less than 10 weeks apart can be dangerous!

B12 results

Does taking oral B12 bias a B12 test high for someone with PA?

"Unnecessary B12 shots costing Ontario millions" In news today

20 months and still on alternate day injection still neuro symptom present ....anyone here who suffer more than me...curious😫

At what stage do people change over to self-injecting?

Happier after seeing consultant today

Success — Short-lived

Frustrated!

Is this a waste of NHS money?

Discontinuing B12 injections.

Still feeling ill

Halfway through loading doses feeling unwell

Gp appmnt 😫

Hairloss - very worried 😧

Best absorbed iron for people with gastric sensitivity

Advice needed - could these results mean possible pernicious anaemia?

Oral B12 Maintenance dose

Thank you

IF Negative after cutting alcohol, B12 descending?

Recovery

Vision after B12

Gastroscopy

Vision Technology

a packet of love hearts with my delivery of supplies

Weakness

EYES.

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