Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2019

Interesting B12D Video

Love this channel and this video was on the recent b12d story in the news. You'll enjoy it. https://youtu.be/VINtwoyaF_8

Love this channel and this video was on the recent b12d story in the news. You'l...

lownskater52

•5 years ago

14 Replies

B6 level is high

Hi Everyone, I was recently diagnosed with Pernicious Anemia. I have been taking B12 shots over the past 50 days. I recently went to the doctors to test my...

Hi Everyone, I was recently diagnosed with Pernicious Anemia. I have been taking...

Andrianna

•5 years ago

7 Replies

high b12 results consistently

I wonder if anyone can give insight to my B12 always at 1476 when I do blood tests. I stop injections a good week before test but it always the same. A bit...

I wonder if anyone can give insight to my B12 always at 1476 when I do blood tes...

islandlass

•5 years ago

5 Replies

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How to increase or normalise acid levels in your stomach

I'm currently scratching my head trying to work out how to get some acidity into my stomach without actually ingesting anything, as this solution is out for me...

I'm currently scratching my head trying to work out how to get some acidity into...

expatkerry

•5 years ago

36 Replies

Are my nerves recovering from my b12 deficiency?

B12 Nerve Recovery? In 2016 I became really sick. I ended up having liver surgery. I had a 10cm blood mass on it. The mass was removed. Next, a cyst removed...

B12 Nerve Recovery? In 2016 I became really sick. I ended up having liver surge...

Chris5629

•5 years ago

4 Replies

Cmt2

I have just been diagnosed with charcot Maria tooth 2 CMT 2 which is a genetic condition I have always thought I had pernicious anemia not sure what the future...

I have just been diagnosed with charcot Maria tooth 2 CMT 2 which is a genetic c...

Kerri05

•5 years ago

7 Replies

Nerve repair - time it takes -evidence?

As explained before, my GP has taken advice from a haematologist on the likely time for repair of symptoms including neuro symptom. He told her that 4 weeks...

As explained before, my GP has taken advice from a haematologist on the likely t...

Damseltree

•5 years ago

3 Replies

Low B12, symptoms, confused

I've been in and out of specialist clinics for the last 7 months now trying to figure out why I have muscle fasciculations in all these random places. I get it...

I've been in and out of specialist clinics for the last 7 months now trying to f...

CaptainHypochondriac

•5 years ago

14 Replies

Questions regarding symptoms

Is it normal to have random bouts of nausea and dizziness (feeling like your going to pass out)? I’ve had lower blood pressure in general, but was higher for a...

Is it normal to have random bouts of nausea and dizziness (feeling like your goi...

JennaShi

•5 years ago

19 Replies

MyCare.de

I’ve just tried to reorder from MyCare but it’s saying delivery not currently available on the rotexmedica B12. Is anyone else getting this? I had no problem...

I’ve just tried to reorder from MyCare but it’s saying delivery not currently av...

Lurcher-lady

•5 years ago

7 Replies

Folic acid vitamin warnings

After realizing that all my neurological symptoms of B12 started with folic acid vitamins, I opened the packaging of my vitamins and saw these warnings. This...

After realizing that all my neurological symptoms of B12 started with folic acid...

Andrianna

•5 years ago

16 Replies

Cold night sweats

I have been having cold night sweats for two years. Recently they’ve got increasingly worse. I change my pjs at least 3 times per night. I am soaked, every...

I have been having cold night sweats for two years. Recently they’ve got increas...

Maggie333

•5 years ago

7 Replies

Iron question?

So my friend had ferreton in the 90's but serum iron is 8 Range for serum 10 - 30 Ferreton 30 - 200 Would you need to supplement, im also told by my...

So my friend had ferreton in the 90's but serum iron is 8 Range for serum 10 - 3...

sbadd

•5 years ago

6 Replies

Finally — SUCCESS

Success- appointment this morning, I went in and he had BNF book on his desk doing his research!! He said that he agrees to bi-daily injections for 2 weeks!!!...

Success- appointment this morning, I went in and he had BNF book on his desk doi...

SMXX

•5 years ago

5 Replies

Allergies and B12D - issues with new work environment

3 weeks ago I started a new job and the smell pervading the new office makes me really sick. Within an hour of being in it I have weeping eyes; sore chest...

3 weeks ago I started a new job and the smell pervading the new office makes me...

Mashie44

•5 years ago

19 Replies

Low MPV

Hi guys I did a blood test yesterday. It was horrific I almost fainted and when I got back home I felt like I needed to go the emergency room for a few hours...

Hi guys I did a blood test yesterday. It was horrific I almost fainted and when ...

Reemfali

•5 years ago

1 Reply

Importing B12 from Germany - The MHRA ruling.

A couple of weeks ago I wrote to the MHRA regarding the importation of B12 for injections from Germany. Their full response is below. Here is a summary -...

A couple of weeks ago I wrote to the MHRA regarding the importation of B12 for i...

fbirder

•5 years ago

18 Replies

Finally — SUCCESS

Success- appointment this morning, I went in and he had BNF book on his desk doing his research!! He said that he agrees to bi-daily injections for 2 weeks!!!...

Success- appointment this morning, I went in and he had BNF book on his desk doi...

SMXX

•5 years ago

17 Replies

Numbness in fingertips, and hand. I have PA and Hypothyroidism.

Hi all, my left index fingertip has gone numb, and I am experiencing numbness that comes and goes in my right hand. I have autoimmune pernicious anaemia and...

Hi all, my left index fingertip has gone numb, and I am experiencing numbness th...

Mannequin18

•5 years ago

20 Replies

Where to start? Self injection B12

Hi, I am new here and having a hard time with my GP with my B12 and want to have my own health in my own hands since my symptoms are worse and I don't believe...

Hi, I am new here and having a hard time with my GP with my B12 and want to have...

LittleA

•5 years ago

7 Replies

Can someone explain what my Blood Test Results mean?

In 2018 I got a blood test following a Kallman Syndome diagnosis (age 17 at time of test), but several problems have arrisen since then. After several months I...

In 2018 I got a blood test following a Kallman Syndome diagnosis (age 17 at time...

BecauseGenes

•5 years ago

5 Replies

Can improved b12 affect need for thyroid hormones in hypothyroidism?

I have been self injecting b12 for about 2 months ( using to date 10 plus ampoules) and after a 2 week gap certainly feel the need for more, so believe b12...

I have been self injecting b12 for about 2 months ( using to date 10 plus ampoul...

Judithdalston

•5 years ago

9 Replies

Intrinsic Factor Reference Ranges

Hi, I wonder if anyone can shed some light on these reference ranges for intrinsic factor. The first one was done 2013, when I was convinced I had PA. The...

Hi, I wonder if anyone can shed some light on these reference ranges for intrins...

miravet

•5 years ago

11 Replies

B12 & Eye Issues & Eye Cancer

Hello all from Dallas, Texas! This is my first post here. I am very grateful for this site, it has helped on my Pernicious Anemia journey. I was diagnosed...

Hello all from Dallas, Texas! This is my first post here. I am very grateful f...

TexasMomSLK

•5 years ago

27 Replies

fbc pls help me understand resaults if you do

this is te resaults rbc 5.86 [4.20-5.40] hct 39.3 [37.0-47.0] mch 20.65 [27.00-32.00] mcv67.06 [82.00-92.00] mchc 3079 [32.00-36,00]...

this is te resaults rbc 5.86 [4.20-5.40] hct 39.3 [37.0-47.0] mch 2...

weazle74

•5 years ago

4 Replies

Information needed.

Following a blood test my GP told me that my B12 level was low and that I was aneamic, I then started the loading doses and am now on the 3 monthly injection....

Following a blood test my GP told me that my B12 level was low and that I was an...

Stephanie6637

•5 years ago

19 Replies

Advice needed

I have recently been signed off work with chronic pain and fatigue that my previous GP thought was Fibromyalgia. I have had abnormal shaped red blood cells...

I have recently been signed off work with chronic pain and fatigue that my previ...

AJWSOMERSET

•5 years ago

10 Replies

Leber and B12 injections

Hi Everyone, I was diagnosed with pernicious anemia about 1.5 months ago. Injections have helped with 90% of the symptoms. But my vision seems to be worse....

Hi Everyone, I was diagnosed with pernicious anemia about 1.5 months ago. Injec...

Andrianna

•5 years ago

6 Replies

Self Injecting - Do you tell your GP/Nurse?

Hi. I’ve just started self injecting (only once so far) and I had my first 12 weekly injection with the nurse, since loading doses last Friday but didn’t...

Hi. I’ve just started self injecting (only once so far) and I had my first 12 w...

Bumbles0404

•5 years ago

25 Replies

Buying b12

Hi. Has anybody found out where we can buy the b12 ampuole from. Was going well with versandapo but saying they dont ship to the UK? Thanks guys

Hi. Has anybody found out where we can buy the b12 ampuole from. Was going well ...

Quigley2005

•5 years ago

12 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2019

Interesting B12D Video

B6 level is high

high b12 results consistently

How to increase or normalise acid levels in your stomach

Are my nerves recovering from my b12 deficiency?

Cmt2

Nerve repair - time it takes -evidence?

Low B12, symptoms, confused

Questions regarding symptoms

MyCare.de

Folic acid vitamin warnings

Cold night sweats

Iron question?

Finally — SUCCESS

Allergies and B12D - issues with new work environment

Low MPV

Importing B12 from Germany - The MHRA ruling.

Finally — SUCCESS

Numbness in fingertips, and hand. I have PA and Hypothyroidism.

Where to start? Self injection B12

Can someone explain what my Blood Test Results mean?

Can improved b12 affect need for thyroid hormones in hypothyroidism?

Intrinsic Factor Reference Ranges

B12 & Eye Issues & Eye Cancer

fbc pls help me understand resaults if you do

Information needed.

Advice needed

Leber and B12 injections

Self Injecting - Do you tell your GP/Nurse?

Buying b12

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