Finally a diagnosis not B12 def - Pernicious Anaemi...

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Finally a diagnosis not B12 def

lunez22 profile image
6 Replies

sorry for the long absence, it dawned on me I should post my story in case someone else benefits.

I was finally diagnosed after 2 1/2 years. although I did have b12 deficiency I did not notice huge improvements with injections. I kept up with supplementation but the only thing that helped was an initial immunoglobulin injection. finally I was diagnosed with Lyme disease in April. it will be a long road to recovery but at least I can start treatment. My major symptom has been neurological pins and needles, numbness, nerve pain etc.. never a bull eyes rash ever. have yourself check out. you never know.

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lunez22
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6 Replies
wedgewood profile image
wedgewood

Thanks for telling us , and very best wishes for your treatment . All information is important

What test were you given to get to that diagnosis?

Ajane profile image
Ajane

Thank you for sharing.

Although I’ve never read any medical research to support this, there seems to be anecdotal evidence for a correlation between Lyme Disease and B12 deficiency. I, as well as a couple of others I know of, had Lyme Disease a couple of years before being diagnosed with low B12.

I wish you all the best with your recovery. I remember how ill I felt with Lyme Disease.

Nackapan profile image
Nackapan

Thsnk goodness for the start of correct treatment

I wish you well

Ryaan profile image
Ryaan

Wishing you well.

Cherylclaire profile image
CherylclaireForum Support

Very best of luck with recovery- I have heard that there are similarities in the 2 conditions and that not everyone gets any obvious signs with Lyme Disease.

Wonder how many others, like Ajane , have had Lyme disease followed by B12 deficiency ?

Perhaps like SIBO (Small Intestine Bacterial Overgrowth) there is a vitamin-stealing element to it ? Interesting.

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