Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2019

PA diagnosis or b12 d

If IF antibodies are not present, regardless of symptoms, how can anyone ever be diagnosed with P A specifically, rather than just b12 deficiency?

If IF antibodies are not present, regardless of symptoms, how can anyone ever be...

Damseltree

•5 years ago

2 Replies

Had enough

i went to GP yesterday i was trying to tell her how much I’m feeling worse, I’m full of bruises , i just want it too end ….. i don’t get treatment & never have...

i went to GP yesterday i was trying to tell her how much I’m feeling worse, I’m ...

Queeniz

•5 years ago

23 Replies

B12deficency and migraines

Because of b12 deficiency this migraine is killing me...that’s the worst symptom of my deficiency...I have consistent migraines...will only my b12 injections...

Because of b12 deficiency this migraine is killing me...that’s the worst symptom...

Gunj_redjem

•5 years ago

11 Replies

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Does lowered homocysteine mean B12 supplements are working?

Hey everybody, I've posted on here a lot and if you want any background on my situation please check my previous posts. Ive been b12 deficient for 10 years....

Hey everybody, I've posted on here a lot and if you want any background on my si...

lownskater52

•5 years ago

3 Replies

Hello

I’m wishing you all the best & luck in the world xx

Queeniz

•5 years ago

1 Reply

Can B12 deficiency cause Autonomic breathing problems

Does anyone know if B12 deficiency can cause problems with your autonomic system, in particular, I'm having sleep apnea and breathing problems. Its as if my...

Does anyone know if B12 deficiency can cause problems with your autonomic system...

montague53

•5 years ago

11 Replies

B12 deficiency questions

Hi there. I hope some of you can help me with a few questions. Some background: I got diagnosed with pernicious anaemia back in 2015 and also Hashimoto's. I...

Hi there. I hope some of you can help me with a few questions. Some background...

Nadpa

•5 years ago

2 Replies

Thinking of self injecting b12, any advice?

Hi there, I'm new here, I was recommended this forum from a fellow person with M.E/cfs from twitter. I've been diagnosed with M.E/cfs since 2009 and recently...

Hi there, I'm new here, I was recommended this forum from a fellow person with M...

blueivy_4

•5 years ago

10 Replies

blood test of b12 is 290 [200-900] and feretin is high

i stoped b12 and after two weeks i had blood test and my b12 from 101 went 290 but feretin is high and i have no anemia my doctor thinks i dont...

i stoped b12 and after two weeks i had blood test and my b12 from 101 wen...

weazle74

•5 years ago

3 Replies

Puzzled

Just back from b12 injection and got my blood results printed off. Ferritin Oct. 2018 61 ng/ml Jan. 2019 39 April 2019 31. I've been taking g iron since the...

Just back from b12 injection and got my blood results printed off. Ferritin Oct...

Nackapan

•5 years ago

15 Replies

Travel Insurance

Does anyone know if I need to declare b12 deficiency on my travel insurance? Since putting this into existing quotes, it’s almost doubling the premium. I have...

Does anyone know if I need to declare b12 deficiency on my travel insurance? Sin...

Lurcher-lady

•5 years ago

9 Replies

Good methyl folate

Hi all, this is such a wealth of information. I am new to PA and have been having injections 1000 Hydrocobalamine for 6 weeks now. The hematologist prescribed...

Hi all, this is such a wealth of information. I am new to PA and have been havin...

Heidiv

•5 years ago

8 Replies

Advice on endoscopy

Hi guys does anyone else suffer these symptoms Bloating that comes and goes and puts pressure in middle of sternum, fullness in stomach that makes pressure...

Hi guys does anyone else suffer these symptoms Bloating that comes and goes and...

sbadd

•5 years ago

2 Replies

Has anyone been self injecting for years?

Hi All My deficiency is new, only 12 months and as I'm now self injecting as of two months I have created a horrible fear. From experience and what I read its...

Hi All My deficiency is new, only 12 months and as I'm now self injecting as of ...

Sunshine1932

•5 years ago

25 Replies

3 years of wrinkled fingers

After buster_uk posted his wrinkled fingers, I wanted to show everyone what I think is another symptom of b12 deficiency. This started after I was put under...

After buster_uk posted his wrinkled fingers, I wanted to show everyone what I th...

Andrianna

•5 years ago

24 Replies

They have arrived

My B12 arrived today from Versandapo am so chuffed first order.So here we go. Thanks everyone for your input. X

My B12 arrived today from Versandapo am so chuffed first order.So here we go. Th...

Chocolate41

•5 years ago

8 Replies

Which is more accurate? Urine calcium test or blood test

Does anyine know which test is more accurate. My calcium urine test came back low via medichecks, but my blood test via my GP came back normal. My GP said to...

Does anyine know which test is more accurate. My calcium urine test came back lo...

Aly2

•5 years ago

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Emails Etc. From Versandapo.de

To those that order from versandapo.de - do you receive all their emails in German? I do!

To those that order from versandapo.de - do you receive all their emails in Germ...

Clemmi

•5 years ago

8 Replies

Advice on supplements to help B12 work to its optimum.

Hi all firstly can I just thank everything one for taking the time to post all your helpful information it is so good to know that I’m not alone in this...

Hi all firstly can I just thank everything one for taking the time to post all y...

DFFA

•5 years ago

3 Replies

Pernicious anemia

Hi , was looking for some advice as this is all new to me . Have been feeling extremely tierd , no motivation, dizzy , migraines a whole range of thing over...

Hi , was looking for some advice as this is all new to me . Have been feeling ex...

Kennedy12

•5 years ago

4 Replies

PA and thyroid issues

Hi, I've had PA for many years and when first diagnosed a consultant asked me if I had any thyroid issues as both are autoimmune issues. I didn't at the time...

Hi, I've had PA for many years and when first diagnosed a consultant asked me if...

rosyG

•5 years ago

11 Replies

Help - hoping Doc will do Intrinsic Factor test

Hi all! Long time user of the Thyroid UK HealthUnlocked forum, first time poster over here. I am diagnosed hypothyroid (I think it's hashimotos due to...

Hi all! Long time user of the Thyroid UK HealthUnlocked forum, first time poster...

queenmabroo

•5 years ago

3 Replies

How Long

I have ordered B12 from Versandapo can anyone tel. Me how long it takes to come approx please.Do they email you when it has been posted. Thankyou in advance.

I have ordered B12 from Versandapo can anyone tel. Me how long it takes to come ...

Chocolate41

•5 years ago

4 Replies

PA and activity

I have been on treatment for 16 months inject quiet frequently..my question is with any activity I become short of breath feel like fainting and dizzy.. does...

I have been on treatment for 16 months inject quiet frequently..my question is w...

Gunj_redjem

•5 years ago

11 Replies

Homocysteine

Hi Everyone, Will a homocysteine blood test be accurate while I’m on B12 shots? Thanks to everyone on here helping me navigate this situation.

Hi Everyone, Will a homocysteine blood test be accurate while I’m on B12 shots?...

Andrianna

•5 years ago

1 Reply

B12 Subcut or IM

Is B12 injections effective when given subcutaneously. Or is it more effective given intramuscular. Does anyone know please.

Is B12 injections effective when given subcutaneously. Or is it more effective g...

montague53

•5 years ago

33 Replies

Diverticulosis and b12 d

Does anyone know why diverticulosis would contribute to b12d? It occurs in the large bowel and not in the area involved with absorbing b12 as I understand...

Does anyone know why diverticulosis would contribute to b12d? It occurs in the...

Damseltree

•5 years ago

2 Replies

B12 IV vs B12 shots

Hi Everyone Can I get B12 through one of these new med spas that give IVs? Does anyone know if it's as effective as getting a B12 shot? Thanks for any tips!

Hi Everyone Can I get B12 through one of these new med spas that give IVs? Does ...

Andrianna

•5 years ago

4 Replies

Fed up

Hello..so got b12 deficiency dignosis last Xmas and am having injection every 3 months..with the last one by the time the injection came round I was literally...

Hello..so got b12 deficiency dignosis last Xmas and am having injection every 3 ...

leasparkles

•5 years ago

6 Replies

B12 and pregnancy

Is there any mother who with high b12 levels had a normal child...?im planning a child and concerned

Is there any mother who with high b12 levels had a normal child...?im planning a...

Gunj_redjem

•5 years ago

16 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2019

PA diagnosis or b12 d

Had enough

B12deficency and migraines

Does lowered homocysteine mean B12 supplements are working?

Hello

Can B12 deficiency cause Autonomic breathing problems

B12 deficiency questions

Thinking of self injecting b12, any advice?

blood test of b12 is 290 [200-900] and feretin is high

Puzzled

Travel Insurance

Good methyl folate

Advice on endoscopy

Has anyone been self injecting for years?

3 years of wrinkled fingers

They have arrived

Which is more accurate? Urine calcium test or blood test

Emails Etc. From Versandapo.de

Advice on supplements to help B12 work to its optimum.

Pernicious anemia

PA and thyroid issues

Help - hoping Doc will do Intrinsic Factor test

How Long

PA and activity

Homocysteine

B12 Subcut or IM

Diverticulosis and b12 d

B12 IV vs B12 shots

Fed up

B12 and pregnancy

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