About three weeks ago my doctor decided to switch from my weekly injection to monthly. I made it about 10 days before I could start to feel the symptoms returning. The main symptoms being exhaustion, dizziness, trouble catching my breath and numbness, weakness and tingling in my legs. I went to see my doctor and we started again with weekly injections. I have since had 2 weekly injections. I haven’t seen much relief like I did last time my doctor tried to switch me to monthly injections. I started to feel much better last time by my second injection.
Yesterday I started to feel really bad, my back started hurting too so I went to the ER. I had to use a cane to move. They ran tests (bloodwork, urine and chest X-ray) and found nothing. I am still hoping that B12 injections are the cure for what’s ailing me. It seemed to give me some relief in the past.
I did have another run of tests from my doctor 2 weeks ago:
Homocysteine: 9.3 (5.1-13.9)
MMA-Methylmalonic Acid: 145 (0-378)
Folic Acid: greater than 20 (2-20)
B12: Greater than 2000 (232-1245)
I have a Neurologist appointment Wednesday and another appointment with a Gastroenterologist to have a colonoscopy and an endoscopy in a couple weeks.
I am concerned that there might be more to this than just B12 deficiency although no one seems to be able to give me a diagnosis. Because my doctor switched me from my weekly injection I was sure that was the cause of my returning symptoms but that may have been just a coincidence and there might be more to all of this. Does anyone have any insight on this? Questions for my upcoming appointments?