Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for April 2019

B12 deficiency, digestion and insomnia

Was diagnosed with b12 deficiency in October 18. Had the x6 loading shots and have had one of the 3 monthly shots for life about 6 weeks ago I have...

Was diagnosed with b12 deficiency in October 18. Had the x6 loading shots and ha...

Alliance11

•5 years ago

27 Replies

Forms of Oral Cobalamin

Well aware that this doesn't really apply to Pernicious Anaemia, but where else to ask? :-) NICE BNF refers to Hydroxocobalamin for injections (as well as...

Well aware that this doesn't really apply to Pernicious Anaemia, but where else ...

helvella

•5 years ago

3 Replies

I’m new and want to hear from people who had this long term and had neuropathy in arms and legs and/or lost ability to walk.

I’m new and want to see if people who had this for years and developed severe symptoms can explain their experience. Specifically people who have issues with...

I’m new and want to see if people who had this for years and developed severe sy...

Meblue

•5 years ago

40 Replies

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Vitamin D insufficiency

Hello All , I was recently diagnosed with Vitamin D insufficiency levels being 27/nmol . I have been having some sharp electrical shock sensation run through...

Hello All , I was recently diagnosed with Vitamin D insufficiency levels being...

Boldndbeautiful

•5 years ago

21 Replies

ATTACKS OF UNCONVENTIONAL AND UNCERTAIN SPELLING DRIVING ME NUTS!

The dictionary now lives by my bedside. I used to pride myself on my spelling but now have moments of panic when I forget the simplest of words. It's worse...

The dictionary now lives by my bedside. I used to pride myself on my spelling bu...

e66--

•5 years ago

33 Replies

Falling b12

Hi, I’m. A bit concerned about falling b12 levels as I thought they we had stores that lasted years. In June 18 I had a raft of tests that showed b12 at 159,...

Hi, I’m. A bit concerned about falling b12 levels as I thought they we had store...

Hsss7

•5 years ago

32 Replies

Ferriton levels

Morning. Has anyone else had trouble with their ferriton levels sine having b12 injections? I will ask g.p how much iron to take but I'm suprised even taking...

Morning. Has anyone else had trouble with their ferriton levels sine having b12...

Nackapan

•5 years ago

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Boost energy drink

Could consumption of boost energy drink be the cause of my high b12 reading? It has 95% of the recommended b12 daily intake somedays I have 2 cans! My last b12...

Could consumption of boost energy drink be the cause of my high b12 reading? It ...

Cobkingkat

•5 years ago

4 Replies

Waking with numb arms

Hi there has anyone else experienced waking to numb arms or legs , last few nights dead arm, once i move it comes good?

Hi there has anyone else experienced waking to numb arms or legs , last few nigh...

sbadd

•5 years ago

6 Replies

Does the brain fog ever go away?

I'm having this brain fog for the last 2 years along with balance issues, pins and needles and fatigue.i recently made the connection. Brain fog is the worst...

I'm having this brain fog for the last 2 years along with balance issues, pins a...

Aaro

•5 years ago

19 Replies

Ongoing symptoms - not sure what they are

Hi I am a newbie. I am 34 years old and I receive B12 injections for functional B12 deficiency. These were started in May 2017 and I get the injections every 3...

Hi I am a newbie. I am 34 years old and I receive B12 injections for functional ...

J_Louise

•5 years ago

15 Replies

Newly diagnosed, dr says loading not needed? And inj gives dopamine hit so will be addictive!? Really?

Hi, i have hashimotos for 15yrs but feeling v bad since christmas so investigating everything. tests show gpc antibodies and a lowish b12 (332). Had to fight...

Hi, i have hashimotos for 15yrs but feeling v bad since christmas so investigati...

CeiliGal

•5 years ago

15 Replies

Test result

I have been suplimenting with sublingual b12 2000ug or more a day my reading before was 185 and now its 588 I can't get the doctor to prescribe b12 injections,...

I have been suplimenting with sublingual b12 2000ug or more a day my reading bef...

Mx143

•5 years ago

4 Replies

since i started orall sprays b12 and d i have nausea

i nausea and noice in my ears so dizzy

weazle74

•5 years ago

4 Replies

Test

How long do I need to be off b12 to do test on active b12 or can I take it into consideration

How long do I need to be off b12 to do test on active b12 or can I take it into ...

Mx143

•5 years ago

1 Reply

Advice please bloods back

Hello. I'm artillery plodding on waiting to function at a better level. Im on 2 weekly hydroxocobalamin injections still. My bloods revealed folate above range...

Hello. I'm artillery plodding on waiting to function at a better level. Im on 2 ...

Nackapan

•5 years ago

5 Replies

Self injections

Hi I understand some people do self injections. When doctors won't help you Just wondered how you get on. Have you. Had any difficulties getting supplies....

Hi I understand some people do self injections. When doctors won't help you Jus...

Aprilbreeze

•5 years ago

13 Replies

Tablets as temporary fix?

I have to wait until the 25th for my loading dose. Im of to the Drs on an emergency appointment soon, but I suspect they wont give me a jab then and there. Is...

I have to wait until the 25th for my loading dose. Im of to the Drs on an emerge...

Itchyislander

•5 years ago

3 Replies

Folate level

My serum folate is 10.43 range 3.89-19.4 is this ok?

Littledancingtiger

•5 years ago

4 Replies

Best time for active b12 test

Hi I'm doing the thyroid ultra vit test from medichecks which includes active b12 I had my last b12 injection 6 weeks ago and feeling so fatigued and skin is...

Hi I'm doing the thyroid ultra vit test from medichecks which includes active b1...

Clare184

•5 years ago

2 Replies

Adenosylcobalamin

Hey guys, what is the difference between this form and the other main forms (metyl and hydroxo)? Is it worth giving the injectable version a try if one can...

Hey guys, what is the difference between this form and the other main forms (met...

forummm

•5 years ago

3 Replies

Oh the brain fog!!

Just to bring a little humour to the daily struggles we all go through. After just making a coffee with cold water from a kettle I didn't even boil, it...

Just to bring a little humour to the daily struggles we all go through. After j...

Ritchie1268

•5 years ago

18 Replies

Erratic heart beat

Hi, I was diagnosed with pernicious anemia 15 years ago, have B12 injections every 12 weeks, out of all the appalling symptoms the erratic heartbeat must be...

Hi, I was diagnosed with pernicious anemia 15 years ago, have B12 injections eve...

dunc01977

•5 years ago

6 Replies

Methylcobalamin Europe

Hey, Anyone know a Methylcobalamin source in Europe? Thanks a lot

forummm

•5 years ago

12 Replies

Could it be - a functional disorder

There's an interesting article in this week's New Scientist about something called Functional Disorders -...

There's an interesting article in this week's New Scientist about something call...

fbirder

•5 years ago

6 Replies

Private blood tests

Can anyone recommend private blood test company for Gastrin test and parietal cell test ?

Can anyone recommend private blood test company for Gastrin test and parietal ce...

Sunnydevon

•5 years ago

17 Replies

Too much B12??

It is my understanding that getting to toxic levels with B12 has NOT be established. https://www.healthline.com/nutrition/too-much-vitamin-b12...

It is my understanding that getting to toxic levels with B12 has NOT be establis...

garretttimson

•5 years ago

2 Replies

Weird feeling after B12 jab

I have had B12 jabs for about 40 years. In SA you used to be able to get them easily. I used to have the Cyno plus a b complex jab. In UK I have bought Hydroxy...

I have had B12 jabs for about 40 years. In SA you used to be able to get them ea...

Slosh

•5 years ago

17 Replies

Can't sleep after B12 jab

I was chatting to my brother recently (73) who has recently had a hernia op. He didn't do so well after that and the doc has put him on PPI's - which has...

I was chatting to my brother recently (73) who has recently had a hernia op. He...

Slosh

•5 years ago

1 Reply

Anaemia check - Medichecks results

Hello, I did a Medichecks anaemia check a few weeks ago as I was feeling pretty terrible and have suffered with low B12 in the past. The test results came...

Hello, I did a Medichecks anaemia check a few weeks ago as I was feeling pretty ...

jostafford0

•5 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2019

B12 deficiency, digestion and insomnia

Forms of Oral Cobalamin

I’m new and want to hear from people who had this long term and had neuropathy in arms and legs and/or lost ability to walk.

Vitamin D insufficiency

ATTACKS OF UNCONVENTIONAL AND UNCERTAIN SPELLING DRIVING ME NUTS!

Falling b12

Ferriton levels

Boost energy drink

Waking with numb arms

Does the brain fog ever go away?

Ongoing symptoms - not sure what they are

Newly diagnosed, dr says loading not needed? And inj gives dopamine hit so will be addictive!? Really?

Test result

since i started orall sprays b12 and d i have nausea

Test

Advice please bloods back

Self injections

Tablets as temporary fix?

Folate level

Best time for active b12 test

Adenosylcobalamin

Oh the brain fog!!

Erratic heart beat

Methylcobalamin Europe

Could it be - a functional disorder

Private blood tests

Too much B12??

Weird feeling after B12 jab

Can't sleep after B12 jab

Anaemia check - Medichecks results

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