Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2019

Too much hydroxocobalamin

Can I pose a question? Someone said to me that the more you have B12 injections the more your body needs it. I have self injected (I am prescribed 3 monthly by...

Can I pose a question? Someone said to me that the more you have B12 injections ...

Countrylou

•5 years ago

8 Replies

Easter

Wishing you all a Very Happy Easter and hopefully we call all enjoy a little of the sunshine that has been forecast, have a healthy weekend everyone :) Best...

Wishing you all a Very Happy Easter and hopefully we call all enjoy a little o...

pitney

•5 years ago

6 Replies

B12 pregnancy

Hi I'm looking to get pregnant can anyone tell me if Bi weekly IM hydro 2ml is safe to have whilst pregnant and breast feeding?

Hi I'm looking to get pregnant can anyone tell me if Bi weekly IM hydro 2ml is s...

Zoe99

•5 years ago

5 Replies

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My head

Has anyone had skull tightness with sizzling noises ? Sometimes going into awfuk headaches or migrain For me it's connected to using my eyes! Also vibrations...

Has anyone had skull tightness with sizzling noises ? Sometimes going into awfuk...

Nackapan

•5 years ago

11 Replies

Sublingual vs shots

Does anyone know if sublingual b12 is as effective as shots if you don’t have absorption problems.

Does anyone know if sublingual b12 is as effective as shots if you don’t have ab...

Meblue

•5 years ago

5 Replies

P.s

The neurologist has discharged me! Saying b12 damage and post concussion disorder? Only solid test result is b12 defiency. His answerve to dealing with my...

The neurologist has discharged me! Saying b12 damage and post concussion disorde...

Nackapan

•5 years ago

8 Replies

Still struggling

Despite trying to do all the right things am stuck it seems. My main problem is using my eyes!! Causes my skull to tighten and hut. Also sizzling starts in My...

Despite trying to do all the right things am stuck it seems. My main problem is ...

Nackapan

•5 years ago

9 Replies

Low folate

Hiya ive had low iron levels for almost a year taking medicine daily ,i dont feel as this is helping at all i recently visited my gp and told him so and can i...

Hiya ive had low iron levels for almost a year taking medicine daily ,i dont fee...

Marleyted

•5 years ago

2 Replies

Urine

I am sorry, this might sound stupid but I always thought that you pee'd the excess b12 out and your urine would be yellow. Infact when I got my loading doses...

I am sorry, this might sound stupid but I always thought that you pee'd the exce...

Goaliegirl

•5 years ago

17 Replies

Intrinsic factor test

My B12 levels are good at the moment but I’m considering having intrinsic factor test today at the doctors. I know the test isn’t that reliable but would my...

My B12 levels are good at the moment but I’m considering having intrinsic factor...

Sunnydevon

•5 years ago

8 Replies

Can b12 shoots help me

Hi just a quick insite I suffer with external tiredness and can sleep up to four hours in the day feel like I can’t function if I don’t sleep, always have...

Hi just a quick insite I suffer with external tiredness and can sleep up to four...

Carlz211

•5 years ago

4 Replies

B12 dose and frequency question

Hi all, I have been self-injecting 1mL of hydroxycobalamin for about five months. At first every 10 days, but cut down to every 7 days based on my symptoms....

Hi all, I have been self-injecting 1mL of hydroxycobalamin for about five months...

Greena51

•5 years ago

13 Replies

Empathic GP's - rarer than Hens Teeth!

Hello, Can you help, My niece who is a member but just feeling rough at the moment so I said I would see what I could find. She is at wits end with GP. They...

Hello, Can you help, My niece who is a member but just feeling rough at the mome...

EVMD

•5 years ago

1 Reply

B12 injections

Hi all, Sorry I never got back on here following the tests I had done a while back, Ive had other problems happen My tests all came back in range MMA IFA and...

Hi all, Sorry I never got back on here following the tests I had done a while ba...

Pascha1

•5 years ago

11 Replies

Anaemia private clinic

I am new here. Can somebody recommend a specialist private clinic in the UK for anaemia: and in particular Vitamin B12 deficiency anaemia Thanks J Admin note:...

I am new here. Can somebody recommend a specialist private clinic in the UK for...

Westonhanger1

•5 years ago

3 Replies

Why greed comes before health.

Daily Mail: How doctors are peddling £150 ‘pointless’ vitamin drips....

Ritchie1268

•5 years ago

1 Reply

Severe fatigue and brain fog destroying my life!

Hello friends, I have been dealing with these same issues for far too long! Little long, but here goes: Starting when I was 16, I woke up one day and noticed...

Hello friends, I have been dealing with these same issues for far too long! Lit...

zheshi14

•5 years ago

12 Replies

B12 self injecting advice

Could anyone self injecting IM B12 please explain what the usual NHS procedure is to ensure a patient can do this capably before they do this alone at home. I...

Could anyone self injecting IM B12 please explain what the usual NHS procedure i...

onyx33

•5 years ago

21 Replies

B12 injection

I’ve been having b12 injections for 2 years now after being diagnosed with a deficiency. I had the loading doses to start with now have one every 3 month. This...

I’ve been having b12 injections for 2 years now after being diagnosed with a def...

Elleeee

•5 years ago

4 Replies

Ongoing issues

Hi all. I have recently joined. I was diagnosed with B12 deficiency in 2017 and I receive regular B12 injections for this every 3 months. I also take folic...

Hi all. I have recently joined. I was diagnosed with B12 deficiency in 2017 and ...

Laurencardell

•5 years ago

8 Replies

In a bad way again

I'm feeling really bad again the last few weeks. I'm extremely tired all of the time. I have B12 every week and it was working well, but just seemed to get...

I'm feeling really bad again the last few weeks. I'm extremely tired all of the ...

Hayley31

•5 years ago

4 Replies

Severe fatigue and brain fog destroying my life!

Hello friends, I have been dealing with these same issues for far too long! Little long, but here goes: Starting when I was 16, I woke up one day and noticed I...

Hello friends, I have been dealing with these same issues for far too long! Litt...

zheshi14

•5 years ago

20 Replies

Storing hydroxocobalamin

I have started self injecting thanks to all your help. I have just done my second one. Actually found this one more difficult than the first maybe because it...

I have started self injecting thanks to all your help. I have just done my seco...

Goaliegirl

•5 years ago

10 Replies

Rhesus disease - any connection to b12 deficiency?

Hi Just wondered if anyone was born with rhesus disease and needed a full blood transfusion at birth? (Mum rh neg, dad rh positive - mums body kills babies red...

Hi Just wondered if anyone was born with rhesus disease and needed a full blood ...

Vicky2822

•5 years ago

4 Replies

What’s a good b12 level?

Now I know this is a piece of string type of question as everyone will have their own personal optimal level. My results (ng/l) don’t come with a range and...

Now I know this is a piece of string type of question as everyone will have thei...

Hsss7

•5 years ago

5 Replies

Intrinsic factor antibodies

Can someone explain this test to me please. I got a numerical result and reference range rather than positive or negative as is the usual explanation in just...

Can someone explain this test to me please. I got a numerical result and referen...

Hsss7

•5 years ago

12 Replies

Vitamin B12 as a Treatment for Pain

Found this new paper and was interested to see some work being done. Sadly, it just reviews existing data. (Oddly, it uses the term hydroxycobalamin, which is...

Found this new paper and was interested to see some work being done. Sadly, it ...

helvella

•5 years ago

12 Replies

Nerve Pain

I have B12 deficiency and have injections 3monthly. I have severe nerve pains in legs and teeth. Pains in my legs feel like I'm being ripped with a knife......

I have B12 deficiency and have injections 3monthly. I have severe nerve pains i...

B12injections

•5 years ago

5 Replies

Dummies guide to self injecting please!

I am due my prescribed injection on the 25th. When there I am going to ask the nurse about self-injecting. The Doctor seems reluctant to up my dose to 2...

I am due my prescribed injection on the 25th. When there I am going to ask the n...

Itchyislander

•5 years ago

13 Replies

Where to get b12 injections from?

Hi where can i get the injections from.. ive looked on the Germany website but dont understand a word of it? Please help xx

Hi where can i get the injections from.. ive looked on the Germany website but d...

Louisehepper84

•5 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2019

Too much hydroxocobalamin

Easter

B12 pregnancy

My head

Sublingual vs shots

P.s

Still struggling

Low folate

Urine

Intrinsic factor test

Can b12 shoots help me

B12 dose and frequency question

Empathic GP's - rarer than Hens Teeth!

B12 injections

Anaemia private clinic

Why greed comes before health.

Severe fatigue and brain fog destroying my life!

B12 self injecting advice

B12 injection

Ongoing issues

In a bad way again

Severe fatigue and brain fog destroying my life!

Storing hydroxocobalamin

Rhesus disease - any connection to b12 deficiency?

What’s a good b12 level?

Intrinsic factor antibodies

Vitamin B12 as a Treatment for Pain

Nerve Pain

Dummies guide to self injecting please!

Where to get b12 injections from?

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