Vertigo?: Hi it’s been a while since I... - Pernicious Anaemi...

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Vertigo?

Amth profile image
Amth
5 Replies

Hi it’s been a while since I wrote as I’m fed up complaining my moods energy levels are at an all Time low had my shot last week so waiting for the miracle, the thing is for the past three weeks I have been suffering awful bouts of dizziness has anyone else had this might be a long shot but wanted to see if there was any link ?

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Amth profile image
Amth
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5 Replies
Ritchie1268 profile image
Ritchie1268

Hi Amth.

So sorry to hear you're struggling.

Have you had the loading doses?

Yes, I did all of a sudden get dizzy spells but didn't know why.

Zero energy levels, just couldn't be bothered with anything & when I did, I'd be exhausted after doing small tasks I used to just get on with before going onto the next.

My moods were terrible, one minute I'd be fine, then really angry about nothing at all!!

I was diagnosed last year with B12 & Folate deficiency & PA.

The every 3 month injections in UK just weren't enough for me so I started to self inject as many do on here. Though I feel like a hypocondriac, my symptoms are starting to ease, some going altogether.

Amth profile image
Amth in reply to Ritchie1268

Hi Ritchie

Thank you for your reply yes I had my 3 monthly shot last week I’m on folate tablets also just feel like as you say everything is an effort lately I was trying to joke it off and say it was because of the weather we are having but I’ve been seriously low and wanting to request a brain scan !!! Extreme I know but I’m worried about myself forget things minutes after they happen and need a pad next to my phone to take notes

Come back in 2 weeks if it hasn’t completely gone was given tablets that absolutely zonked me out times I just feel like giving up and then they can say we should have listened

Ritchie1268 profile image
Ritchie1268 in reply to Amth

Have you thought about self injecting?

I was only diagnosed last year but after keeping a diary, found I felt better for 2 days only after my 3 monthly injections.

Since regularly injecting now I am starting to see a difference.

deniseinmilden profile image
deniseinmilden in reply to Ritchie1268

Self injecting is a good idea.

I get hideous vertigo and low mood if my folate levels drop. I see you are on tablets for that so do you have regular tests to see if they are doing the job?

The other thing to consider: is your body able to use the folic acid? Mine isn't and I must have methylfolate for it to do any good. Methylfolate tablets are available online and in health food stores.

A very few people don't tolerate methylfolate and need folinic acid.

If this isn't the answer don't give up - there are other possibilities.

You may find taking a broad spectrum multivitamin and mineral supplement may help.

Wowo23 profile image
Wowo23

Hi Amth. I'm so sorry to hear this. I just feel you're not getting nearly enough jabs. Once done with my loading doses, I went to one a week. I was lucky because my docs let me decide what I needed. I then went to twice a week, but told my docs that I was spending 2 days a week with symptoms. I now inject every other day and feel so much better. I hope you have a great doc who really listens and you get the doses you need.

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