Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2018

B12 Injections

I have just had three bt12 injections over five days. How long before I feel any benefits?

I have just had three bt12 injections over five days. How long before I feel any...

JNH77

•6 years ago

2 Replies

alternative to b12 injection

Hello. I'm kindna new here but believe I've posted before. I was wondering if anyone has used the B12 Eligen pill which it states that it is just as effective...

Hello. I'm kindna new here but believe I've posted before. I was wondering if a...

maymay28

•6 years ago

2 Replies

Advice needed regarding doctors treatment of low b12 and low folate, please.

Hi, my niece in law has been diagnosed with b12 level of 89, range 200-900, and low folate 3, <3.5 and low ferritin, 20 , range 24 -240. She was first told...

Hi, my niece in law has been diagnosed with b12 level of 89, range 200-900, and ...

Paulinemac

•6 years ago

6 Replies

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Support for GP appointment

Ages since I posted but wondered if anyone had any tried and tested methods for getting their GP on side? Almost 2 years ago full blood count showed B12...

Ages since I posted but wondered if anyone had any tried and tested methods for ...

Nicoleflower81

•6 years ago

9 Replies

Dr says I'm fine...I can feel me dying. [USA Help Please]

I wish there were straight email communication to the UK from the US. I have celiac disease & pernicious anemia un-diagnosed though not for lack of effort & Dr...

I wish there were straight email communication to the UK from the US. I have cel...

Lif3sav

•6 years ago

1 Reply

Brain fog? Could it be probiotics?

Many of us here suffer from brain fog. Many also consume probiotics. Could the former be caused by the latter?...

Many of us here suffer from brain fog. Many also consume probiotics. Could the f...

fbirder

•6 years ago

9 Replies

Really need some help with GP practice and blood test please

Hello, I'm so grateful for this forum and all your amazing knowledge and advice. I posted some results a while back and clivealive gave a very helpful answer...

Hello, I'm so grateful for this forum and all your amazing knowledge and advice....

Vickymoonpixie

•6 years ago

8 Replies

Exercise

Can I ask can anyone still go to the gym? I am still doing my loading doses but I miss exercise, and I need to do it. Unfortunately after a few minutes I get...

Can I ask can anyone still go to the gym? I am still doing my loading doses but ...

RJGFiona

•6 years ago

6 Replies

Treatment for low Vitamin B12 88ng/L and low serum folate

Hi, new to this forum however just looking for some advice regarding my recent discovery of low B12 88ng/L and Serum Folate 3.0 ug/L (both classed as...

Hi, new to this forum however just looking for some advice regarding my recent d...

1966sll

•6 years ago

18 Replies

Vit d supplements

Hi can anyone recommend a good vit d supplement . My gp gave me stexerol -D3 is anyone on this Since starting 1000 units a day I have felt unwell and I...

Hi can anyone recommend a good vit d supplement . My gp gave me stexerol -D3 is ...

Andypandy30

•6 years ago

13 Replies

Adenosylcobalamin

So far I have had shots of cyano, hydroxo and methyl forms of cobalamin. Methyl felt the best both in terms of fewest symptoms after shot and feeling of well...

So far I have had shots of cyano, hydroxo and methyl forms of cobalamin. Methyl ...

topher2018

•6 years ago

15 Replies

B12D with neuro symptoms - are there official Guidelines to inform GP to support increased injections

I need backmup information for GP appt this Thursday. I understand there are guidelines regarding treating patients with neurological symptoms, rather than...

I need backmup information for GP appt this Thursday. I understand there are gui...

JillMaryC

•6 years ago

4 Replies

Megadose of hydroxocobalamin

After researching the different types of b12 shots I decided to forego ny regular 1000 mcg shot of cyano and try a shot of hydroxo from a private provider....

After researching the different types of b12 shots I decided to forego ny regula...

topher2018

•6 years ago

11 Replies

Gratitude and thanks for all the knowledge shared!!!

I just wanted to write a post to give thanks. I’ve only been on the group for a couple days and I’m just so amazed by all the folks who share their knowledge...

I just wanted to write a post to give thanks. I’ve only been on the group for a ...

Runnerlove

•6 years ago

5 Replies

Visual disturbances

I've read that PA can cause visual disturbances, and googling more I found that it can cause optic neuropathy. I don't have the symptoms of that, but I have...

I've read that PA can cause visual disturbances, and googling more I found that ...

cdragin

•6 years ago

8 Replies

B12 level of 1,200 without supplements and loss of power to both legs

hi all....hope for some help and advice. Currently I have a herniated disc L4/L5 and having surgery later this month. But I have ongoing loss of power and...

hi all....hope for some help and advice. Currently I have a herniated disc L4/L5...

jarlethblue

•6 years ago

1 Reply

I.F.A. Result with no numbers?

Hi, I have just read my intrinsic factor antibody result online, and all it says is Satisfactory No further Action, there are no numbers, ranges or anything,...

Hi, I have just read my intrinsic factor antibody result online, and all it says...

Chelle1310

•6 years ago

4 Replies

Vibrating body parts

Hi not sure i can post this but just found it on dr Google. . Pallesthesia worth a look for those of us that suffer with vibrating parts of the body.explains...

Hi not sure i can post this but just found it on dr Google. . Pallesthesia worth...

Sandra_Holmes_R

•6 years ago

1 Reply

Need some help understand my test results

First try at this. So this is my current lab work. Total bilirubin went down to 14. In November it was 18 ALT is 31 but was 30 in November and my TSH WAS...

First try at this. So this is my current lab work. Total bilirubin went down t...

Runnerlove

•6 years ago

17 Replies

Just a question?

Hi I am a week into my loading doses for a B12 deficiency and I have been told I will be in them for life due to not being able to absorb B12 naturally. Can I...

Hi I am a week into my loading doses for a B12 deficiency and I have been told I...

RJGFiona

•6 years ago

14 Replies

Vibrating left breast

I know it sounds very odd but my breast has been vibrating the last few days - just like there was my mobile phone in my bra - very strange! I had mastitis...

I know it sounds very odd but my breast has been vibrating the last few days - j...

Bluedragon

•6 years ago

3 Replies

Megabolastic madness

http://www.austinscdfriends.com/articles/article/3691417/133905.htm Hi All My recurring symptom after b12 deficiency diagnosis four years ago is a recurring...

http://www.austinscdfriends.com/articles/article/3691417/133905.htm Hi All My re...

Alfabeta

•6 years ago

12 Replies

High liver levels and low B12

Is it safe to take b12 5000 mcg when one has elevated level of liver. I’m new to low level b12 and have gained a lot of hope from your site. Thanks Sorry...

Is it safe to take b12 5000 mcg when one has elevated level of liver. I’m new to...

Runnerlove

•6 years ago

25 Replies

Severe acne breakout from B12 injections

I've had acne for years and have really been struggling with my skin and it's been made 10x worse after I started self injecting at home. My back, chest,...

I've had acne for years and have really been struggling with my skin and it's be...

thyroidorwhat

•6 years ago

3 Replies

Sorry, another B12 serum question....

Sorry if this has been done a million times before.... I’m coeliac (proper, not elective) and went to my gp as in a private blood test my B12 had come back as...

Sorry if this has been done a million times before.... I’m coeliac (proper, not ...

Fhikn

•6 years ago

1 Reply

Thigh muscle pain after self injecting

I have previously done 3 SI with someone else watching me for moral support. This morning I have done my fist SI without anyone else around. Had to sit a few...

I have previously done 3 SI with someone else watching me for moral support. Th...

carer999

•6 years ago

10 Replies

Good information on Pernicious Anaemia and B12 deficiency .

I found a good article at — https://patient.info/doctor/pernicious-anaemia-and-b12-deficiency This site is supported by the NHS . So you can always quote...

I found a good article at — https://patient.info/doctor/pernicious-anaemia-and-b...

wedgewood

•6 years ago

17 Replies

Your advice please - not sure what to do next

Hi all This is my second post with some more info and the hope that you can advise on what my next steps should be as feel like going round in circles at...

Hi all This is my second post with some more info and the hope that you can advi...

Scully12

•6 years ago

24 Replies

B12 or not B12??

Hi all, I’ve been feeling unwell (dizzy, tired, confused, weak) for over 18 months, B12 was 392 at the “beginning”, so seemed ok. When I feel unwell my blood...

Hi all, I’ve been feeling unwell (dizzy, tired, confused, weak) for over 18 mont...

Jojothorpe

•6 years ago

1 Reply

Best test for PA

CCPET

•6 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2018

B12 Injections

alternative to b12 injection

Advice needed regarding doctors treatment of low b12 and low folate, please.

Support for GP appointment

Dr says I'm fine...I can feel me dying. [USA Help Please]

Brain fog? Could it be probiotics?

Really need some help with GP practice and blood test please

Exercise

Treatment for low Vitamin B12 88ng/L and low serum folate

Vit d supplements

Adenosylcobalamin

B12D with neuro symptoms - are there official Guidelines to inform GP to support increased injections

Megadose of hydroxocobalamin

Gratitude and thanks for all the knowledge shared!!!

Visual disturbances

B12 level of 1,200 without supplements and loss of power to both legs

I.F.A. Result with no numbers?

Vibrating body parts

Need some help understand my test results

Just a question?

Vibrating left breast

Megabolastic madness

High liver levels and low B12

Severe acne breakout from B12 injections

Sorry, another B12 serum question....

Thigh muscle pain after self injecting

Good information on Pernicious Anaemia and B12 deficiency .

Your advice please - not sure what to do next

B12 or not B12??

Best test for PA

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