I.F.A. Result with no numbers? - Pernicious Anaemi...

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I.F.A. Result with no numbers?

Chelle1310 profile image
4 Replies

Hi, I have just read my intrinsic factor antibody result online, and all it says is Satisfactory No further Action, there are no numbers, ranges or anything, is this usual?

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Chelle1310
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clivealive profile image
clivealiveForum Support

Hi Chelle1310 were you actually viewing the test report online?

You are entitled to have a printed copy at a "reasonable" charge from your practice,

Sadly the IFA test is unreliable in that it gives false negatives in people with PA half the time. So a negative result doesn't mean that you don't have PA. However, a positive result is a sure-fire, 95% certain indicator of PA.

I am not a medically trained person but I've had Pernicious Anaemia (a form of B12 deficiency) for more than 46 years.

I wish you well.

Chelle1310 profile image
Chelle1310 in reply to clivealive

I'm almost certain it was the report from the lab.

I don't understand how it can say satisfactory, rather than normal? If the result was negative, surely it would just state normal?

I am concerned that by the time any notice is taken of my current and ongoing symptoms, damage will already have been done.

clivealive profile image
clivealiveForum Support in reply to Chelle1310

Take the following up with your doctor.

The British Society for Haematology guidelines say on the Diagnosis of B12 and Folate Deficiency "In the presence of discordance between the test result and strong clinical features of deficiency, treatment should not be delayed to avoid neurological impairment".

google.co.uk/url?sa=t&rct=j...

Make a list of your symptoms and present this to your doctor and ask him to treat you according to your symptoms and (perhaps) even start you on loading doses "until there is no further improvement" according to the N.I.C.E guidelines below. Click on the link, then on "Scenario: Management" and scroll down to "Treatment for B12 deficiency"

google.co.uk/url?sa=t&rct=j...

If possible take someone with you who can validate your neurological symptoms as the doctor is less likely to pooh pooh you in front of a witness.

Chelle1310 profile image
Chelle1310 in reply to clivealive

"Make a list of your symptoms and present this to your doctor and ask him to treat you according to your symptoms and (perhaps) even start you on loading doses "until there is no further improvement" according to the N.I.C.E guidelines below. Click on the link, then on "Scenario: Management" and scroll down to "Treatment for B12 deficiency"

I already did this, she didn't even read the first page..

Taking someone with me is a great idea, thank you for your help and advice..

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