Pins and needles with light headed ness - Pernicious Anaemi...

Pernicious Anaemia Society

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Pins and needles with light headed ness

philward
philward

Hi, I am due to have my quarterly B12 Jab tomorrow but have been feeling unusually tired and emotionally sensitive, things getting on top of me for the past 2 weeks.

This evening I had a weird episode where I had pins and needles in my arms and legs, particularly feet and biceps. Couldn’t move my hands properly either. This was accompanied with light headed ness. A general ‘drunken’ feeling I guess.

This evening the pins and needles have been coming and going.

Could the above be to do with my B12 problem?

I will mention to the nurse in the morning and see if they can check blood pressure also.

I have checked my heart rate recorded via iWatch at the time and it was pretty normal.

7 Replies
clivealive
clivealiveForum Support

Hi philward

It could be that like many in this community that you need more frequent injections of vitamin B12. Ask your nurse if she has any other patient who have their jabs more frequently than the "one size fits all" three monthly ones. If you have a diagnosis of P.A. with neurological symptoms you can have your injections every 2 months according to the N.I.C.E guidelines below. Click on the link, then on "Scenario: Management" and scroll down to "Treatment for B12 deficiency"

google.co.uk/url?sa=t&rct=j...

It is also important that your Folate level is monitored as this is essential to process the B12.

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

Symptoms of a folate deficiency can include:

symptoms related to anaemia

reduced sense of taste

diarrhoea

numbness and tingling in the feet and hands

muscle weakness

depression

Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body.

.

I am not a medically trained person but I've had Pernicious Anaemia (a form of B12 deficiency) for more than 46 years.

I wish you well.

philward
philward in reply to clivealive

Thanks Clive. I am making appointment with Dr also for MOT inc bloods.

ButlerNM
ButlerNM in reply to clivealive

I am about to cry!! You telling me to ask for a folate test lead to my Doctor finding out that I am still anemic even though the “usual” tests they run say I am not!! Mchc, hematocric, hemoglobin, protein and calcium are all low!!! The doctor is running more test!! THANK YOU SO MUCH!!

I used to get that in my hands and forearms until they upped my dosage frequency. Good luck!

philward
philward in reply to ButlerNM

What frequency were you changed to and from what?

ButlerNM
ButlerNM in reply to philward

I was doing monthly Ana went to three weeks. I have moved to biweekly because I am always tired and still sigh a lot

Went to get my 3 monthly jab and got told off by the nurse for being 3 days early. I explained that I was going on holiday and had been advised previously by a different nurse that it was fine to go early. She even told me there would be a problem if I did it again. Really!

Made appointment to see a Dr and discuss recent neurological episode also.

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