B12 specialist?

[JillMaryC]

Hi, I'm newly diagnosed with B12 def. In addition to fatigue, memory fog, muscle stuff, tinnitus, and I now now laid up with severe dizziness and low BP 82/53. My GP only recommended three monthly injections, no load dose. Help! Feel I need monitoring. Anyone recommend a consultant in SW who is specialist in B12?

[wedgewood]

I hate to tell you that there is no such consultant in the whole of the U.K.. it is not an interesting subject for the medical profession. If there was such a person , most people on this forum would be beating a path to his/ her door .You will get better advice from the advisors on here who have no medical qualifications , but experience . They can give you chapter and verse on what action you should take.

[JillMaryC in reply to wedgewood]

Aaaagh! Thought this was the case. Was just hoping! My GP wouldn't explain fully, or clearly B12 and/or if I had Pernicious Anaemia. But a nurse in family says sounds like I have PA. it's a minefield. I am going to get another nurse friend to show me how to self inject. But... Is it also useful to get tested Intrinsic Factor? Many thanks

[wedgewood in reply to JillMaryC]

Yes, it could well be useful , if you test positive . Trouble is, a negative test doesn’t disprove PA . You can still have PA with a negative test result. But if you have the the symptoms and do not receive any benefit from oral supplements , it’s likely that you could have PA . I’m taking it as read that you are not on any medication that inhibits B12 absorption (Google for that info ) don’t have Helicobacter Pylori infection or fish tapeworm infestation . Veganism and strict Vegetarian diet included obviously . I recommend you read books by our chairman Martyn Hooper obtainable from Amazon.uk .Very best wishes

[JillMaryC in reply to wedgewood]

Thank you so much. Appreciated.

[kmalbasich]

Hi Jill I was diagnosed over two years ago with PA mine is genetic runs in the family.

I keep a diary from day to day so I know what works for me.

I self inject twice a week, or my symptoms of shortness of breath horrid dreams,tripping when walking tiredness return very fast.

Mine was so bad while under the treatment of a Dr I knew I would be in a wheel chair within weeks from the muscle spasms.

So trial and error and much research I find twice a week best suits me to inject

I take mthf (active folate)

Maltofer iron tablets as they don't cause constipation and easier on the stomach

Magnesium malate,great for muscle and nerve repair

lipoic acid for cellular energy

l glutamine in powder form ,great for healing the gut but also energy

Hope that helps for info to search out for yourself.

Good luck on healing yourself