Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2016

Got PA and Doctor stopped injections

I have confirmed PA and my doctor refuses to give me any more injections as she knows I self inject. Trouble is I had run out and needed my two monthly...

I have confirmed PA and my doctor refuses to give me any more injections as she ...

christmas63

•8 years ago

9 Replies

Seeing a biochemist to discuss maximising PA treatment...any ideas for questions?

I was eventually diagnosed with PA 3 years ago after having it for 10 years. Consequently have some nerve damage. Brain MRI showed numerous lesions and I also...

I was eventually diagnosed with PA 3 years ago after having it for 10 years. Con...

Songbird63

•8 years ago

34 Replies

Dry mouth

Hi All I had my six injections about four weeks ago. I've had a couple of 'events!' With symptoms I experienced before the injections which I was told were...

Hi All I had my six injections about four weeks ago. I've had a couple of 'event...

Alfabeta

•8 years ago

6 Replies

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Spelling mistakes and loss of words and their meanings!

Hi guys, So finally I am going back to India for my treatment but yesterday a very weird thing happened. I used the word "vicinity" without quite being sure...

Hi guys, So finally I am going back to India for my treatment but yesterday a ve...

Dlonelyguy

•8 years ago

20 Replies

Is a probiotic always a good idea ?

I have posted previously regarding my b12 and folate deficiency and neuropathy. I am currently on b12 loading course and then hols so not sure what happens...

I have posted previously regarding my b12 and folate deficiency and neuropathy. ...

Kenbowns

•8 years ago

5 Replies

Advice on haematology and neurology consultations please ? ☆♡☆

Hello all . I've not been on for a while as I've been really unwell and had yet another bad fall :/ Finally after asking 3 times the GP practice has finally...

Hello all . I've not been on for a while as I've been really unwell and had yet ...

Kittycaite

•8 years ago

23 Replies

b12 defficient

I nton had a blood test asked for by my consultant, as my MS quite suddenly got worse!, much worse. It came back as significantly low on B12. His words not...

I nton had a blood test asked for by my consultant, as my MS quite suddenly got ...

Rustyk

•8 years ago

5 Replies

Started B12 injections again

Hi small query wondering if anyone on here had noticed a difference to Peri-menopause symptoms whilst having B12 injections? I was having cytamen ( excuse the...

Hi small query wondering if anyone on here had noticed a difference to Peri-meno...

Fiona1039

•8 years ago

7 Replies

Sun tan

Does b12 make you go browner? I have never been so tanned!!!???

Carolyn1964

•8 years ago

9 Replies

Burning feeling on feet

Ok, bit of a weird one but along with all the lovely hypothyroid symptoms I also feel like my feet are burning. I keep thinking I must have got sunburnt when I...

Ok, bit of a weird one but along with all the lovely hypothyroid symptoms I also...

misslissa

•8 years ago

3 Replies

Can you have too much?

I was diagnosed with PA, last summer, ive also more recently been diagnosed with Hasimotos, but the endocrinologist has now stopped my 3 monthly injections...

I was diagnosed with PA, last summer, ive also more recently been diagnosed with...

Hidden

•8 years ago

8 Replies

Almost passed out.

I took a tiny amount of B12 (maybe 500mcg that I cut from a 2500mcg chewable) and nearly passed out. Does anyone know what the cause of this is?

I took a tiny amount of B12 (maybe 500mcg that I cut from a 2500mcg chewable) an...

horowitz1992

•8 years ago

12 Replies

Newcomer - B12 Deficiency Advice Please

Hi All, I'm new to here having ended up here through a worry more recently about a B12 deficiency. Just to give you a bit of info, I'm 26 average fit and...

Hi All, I'm new to here having ended up here through a worry more recently about...

2torts

•8 years ago

18 Replies

toe spasms

Does anyone know why I get spasms in my toes like muscle spasms ,they cross over and stay there for a while , I supplement methyl folate 1600 mcg a day, plenty...

Does anyone know why I get spasms in my toes like muscle spasms ,they cross over...

lcunliffegizmo123

•8 years ago

10 Replies

Aaaaargh! They're here! And I've just had my first jab at the nurse's...

Got all the stuff now - ampoules, syringes, wipes, sharps bin .. and I've just had my first subcutaneous injection at the surgery with the nurse. It bl**dy...

Got all the stuff now - ampoules, syringes, wipes, sharps bin .. and I've just h...

Schenks

•8 years ago

47 Replies

Is this sufficient extras?

Can anyone advise if the vitamins in Berocca are enough extras?

Carolyn1964

•8 years ago

5 Replies

"Dangerous" to give too much B12?

HI all, As per my previous post, I am struggling to get my new GP to agree to jabs every month-6 weeks which is what I seem to need given my neurological...

HI all, As per my previous post, I am struggling to get my new GP to agree to ja...

ClaraJ

•8 years ago

18 Replies

introduction

Dear all This is my fists post on PAS. I have an under active thyroid which was discovered in February - not yet controlled but I'm working on it! Taking...

Dear all This is my fists post on PAS. I have an under active thyroid which was...

Lulu_65

•8 years ago

2 Replies

Pernicious anemia levels and doctors belief of patient needing B12 injections according to the lab levels

I do not know how many patients realize that being in the middle range B12 levels does not mean the patient does not need B12 injections esp when you have...

I do not know how many patients realize that being in the middle range B12 leve...

pappysgal80

•8 years ago

2 Replies

Liver therapy and PA

Hi, I was diagnosed with PA 3 years ago and receive 8 weekly injections from my GP. My B12 level was 74 at diagnosis. Over 50 years ago ,as a small child, on...

Hi, I was diagnosed with PA 3 years ago and receive 8 weekly injections from my ...

doityourself

•8 years ago

5 Replies

B12

Hello, I was diagnosed with B12 deficiency March 2015 and my 3 monthly injections are not enough, my tiredness and confusion is getting worse. After many...

Hello, I was diagnosed with B12 deficiency March 2015 and my 3 monthly injection...

Marishka1a

•8 years ago

3 Replies

b12 taken before a blood test for b12 ?

how long do I need to be free of any b12 sublinguals before a correct diagnosis of PA ?

how long do I need to be free of any b12 sublinguals before a correct diagnosis ...

lcunliffegizmo123

•8 years ago

14 Replies

Pernicious anaemia

Hi I've just been diagnosed with pernicious anaemia after a blood test, I'm afraid I know little about it. Dr said I needed injections of. B12 so I suggested I...

Hi I've just been diagnosed with pernicious anaemia after a blood test, I'm afra...

Fishey

•8 years ago

14 Replies

So down today

Why do i feel so down and weepy today and why do I feel that everything is such a struggle? Had a great day yesterday - even managed to walk in a straight...

Why do i feel so down and weepy today and why do I feel that everything is such ...

Carolyn1964

•8 years ago

5 Replies

Should I continue?

Hi, Nice to meet you all. I am a 36 year old, new on this site. I was wondering if anyone would be able to help with some advice. After going to my GP with...

Hi, Nice to meet you all. I am a 36 year old, new on this site. I was wondering ...

willkar

•8 years ago

12 Replies

Technical help, please

Hi all, Last week this health unblocked forum decided to be in Portuguese- not what people post or what I post but the instructions and everything else. I...

Hi all, Last week this health unblocked forum decided to be in Portuguese- not ...

ndodge

•8 years ago

17 Replies

Metal taste in mouth !!!

Good Afternoon Everyone, weather very changeable, one minute sunny next minute cloudy. I've two questions :- First question is, I keep getting a metal taste...

Good Afternoon Everyone, weather very changeable, one minute sunny next minute c...

Bentleyboo

•8 years ago

3 Replies

b12 and vitamin a

Hi I have had b12 injections and now my readings are much better but i wanted to know if anyone nows anything about vitamin A my blood test result is 0.4 and...

Hi I have had b12 injections and now my readings are much better but i wanted to...

kaya12

•8 years ago

6 Replies

Oh to not feel tired ...

Was diagnosed with underactive thyroid around 15 years ago. Been on 100mcg of levothyroxine for quite a while, but started to go downhill again. After a bit...

Was diagnosed with underactive thyroid around 15 years ago. Been on 100mcg of l...

Simba01

•8 years ago

2 Replies

still tired after all this shots

Happy. hi this is going to be my 7th B12 shot and i still feel the same as after the first one.i'm so tired all the time and so much more. the doctor is not...

Happy. hi this is going to be my 7th B12 shot and i still feel the same as after...

Muttilina

•8 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2016

Got PA and Doctor stopped injections

Seeing a biochemist to discuss maximising PA treatment...any ideas for questions?

Dry mouth

Spelling mistakes and loss of words and their meanings!

Is a probiotic always a good idea ?

Advice on haematology and neurology consultations please ? ☆♡☆

b12 defficient

Started B12 injections again

Sun tan

Burning feeling on feet

Can you have too much?

Almost passed out.

Newcomer - B12 Deficiency Advice Please

toe spasms

Aaaaargh! They're here! And I've just had my first jab at the nurse's...

Is this sufficient extras?

"Dangerous" to give too much B12?

introduction

Pernicious anemia levels and doctors belief of patient needing B12 injections according to the lab levels

Liver therapy and PA

B12

b12 taken before a blood test for b12 ?

Pernicious anaemia

So down today

Should I continue?

Technical help, please

Metal taste in mouth !!!

b12 and vitamin a

Oh to not feel tired ...

still tired after all this shots

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